|
Re: Please help! endometriosis pain management and PMDD
From: tanya (anonymous@obgyn.net)
Wed Jan 30 07:20:11 2008
Thank you for responding, I am new to this site and after over a year am
desperate for other opinions, I have tried the Lupron and UGH!!! My doc
said that most everyone had side affects but didn't mind since it
lessened there pain, well of course I had to be the exception. I also
tried Yaz and bled 3 weeks out of the month with horrible pain the whole
time. The surgery, lupron, birth control pills did not work. I seem to
be the exception to all of it, with no answers for what will work. I
have been leaning towards a hysterectomy lately but when I read some
stuff in this site, it hasn't seemed to help anybody so you go through
the surgery then a few months to a year later you have pain again. It
is so depressing because NOBODY understands what we go through unless
they have it. The luna procedure is supposed to either take out or cut
off (deaden) the nerve to the uterus. Apparntly some women that have
had it have gone into labor and not been aware of it. Some I'm thinking
wow that must work, but apparently it doesn't always work or last. I am
going to meet with the specialist to talk to her about her success rate.
I used to think a hyserectomme would be a last resort but would take it
all away when i was ready, now even that seems far fetched. Have yo
heard about or tried the diet for endo? It seems like you elimnate
EVERYTHING. Have you ever had pain when you are not bleeding?
At Tue, 29 Jan 2008, anonymous wrote:
>
>Tanya, I understand your frustration! I am so frustrated and confused. I
>don't know what to do anymore. I have PMDD and Endometriosis.
>I had a laparoscopy, which they found cysts and removed them. They
>'lasered' out what they could find of the endo, but it didn't help at
>all. The depression and fatigue that I have for a week to two weeks
>prior to my period is almost unbearable. I feel like it's the end of
>the world, and then I realize the date and that my period is coming. I
>immediately take a pill as soon as I start my period, but usually only
>need it for pain two days out of the month. I'm wondering if I need
>something beyond the pain meds for the depression, but again this only
>happens about two weeks out of the month.
>I was on birth control for 16 years and finally decided to quit. Every
>doctor since has tried to get me back on them. I did try Yaz because I
>was at my wits end--it didn't work and I hate the way I feel on them.
>Doctors have given me motrin, anaprox, oxycontin, darvacet, ultracet,
>percocet, celebrex, and bextra. Percocet takes the pain away, if dosed
>high enough, but then I feel loopy.
>My doctor acknowledges my situation, but is prescribing me lower pain
>meds that do not help with my pain at all. What's up with that?! Bextra
>was my miracle drug, but the FDA took it off the market. I found some
>more, but this last time it worked in the morning, but then I ate lunch
>and I had horrible cramps, diarrhea, and vomiting until 4:30 in the
>morning.
>My doctors suggested the Lupron shots, but I'm 38 and time is of the
>essence, plus I've only heard that the side effects are not worth it. My
>doctors also suggested a hysterectomy, but I'd like to have kids before
>I'm 40. I haven't heard of the LUNA, but will have to look it up.
>This is ridiculous and I am at my wits end with this whole thing. After
>this last month, I have mentioned and thought about having a
>hysterectomy twice. Any suggestions (and forgive my spelling!)?
>
>At Tue, 29 Jan 2008, tanya wrote:
>>
>>I am 30 years old and have been dealing with endometriosis with intense
>>pelvic pain for over a year. I have always had intense periods and was
>>started on birth control and nsaids early. I could take 800 motrin and
>>deal with the pain after the first day or two. Then Jan 2007 I went off
>>all birth control to try for a second child, and BAM!! I can't fully
>>describe the pain I was having. I had a lap done and endometriosis was
>>discovered, we didn't do anything else because i was going to try having
>>another baby, but geezz when you are in that much pain who wants to be
>>intimate. Next I was put on vicodin, and had the Lupron shots, I had
>>maybe two months relief out of that and mood swings, hot flashes etc.. I
>>really did not like the Lupron! I was put back on birth control pills
>>and have bled for 3 weeks out of the month. I have just tried the depo
>>shot and I have finally stopped bleeding for a week! we will see if that
>>last. My questions are:
>>
>>1-Is there any affect that vicodin and percocet can have on your heart
>>or liver after a over a year of constant use?
>>
>>2-Has anyone else had endo pain even when you are not bleeding?
>>
>>3-My doc is talking about doing the LUNA nerve resection or alabation ,
>>has anyone had this if so what is your experience?
>>
>>--
>>Tanya
>>
--
Tanya
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)