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Re: Bladder issues/ IC ... thoughts please !From: ayva (anonymous@obgyn.net)Tue Jan 29 08:02:15 2008
At Mon, 28 Jan 2008, anonymous wrote: > >I went 2 weeks ago to see a Urologist for my IC like symptoms. My OBGYN >suggested this doctor. The Urologist started me on Enablex for 10 days >and told me to call back to let him know if the symptoms were any >better. Ten days have gone by so I called today to go ahead and >schedule the surgery to inflate my bladder and get a 100% diagnosis for >the IC. > >Here is when I hit the issue. I asked the Urologist to try and work >with my OBGYN, as I would like her present during the surgery in the >case that they do not find the IC. My thought is, if they are going to >have to put me out, I want to know what is causing the issue even if it >is not my bladder. The nurse called back after talking to the doctor >today after I made this request telling me that they want me to go for a >CAT Scan of my Kidneys because I had indicated on my family history that >my mother had a kidney stone once. Keep in mind, I have never even had >a kidney infection. > >I am very frustrated with the whole process because I have bladder pain, >not kidney. I am not having any back pain or any other issues besides >the bladder and endo. I am just look for a reason why they would have >me do a CAT Scan when I need relief as soon as possible because I am not >sleeping through the night. All they suggested in the mean time was >pain pills, I declined. > >Please help anyone who has had issues with IC or any other issues >involving a CAT Scan for possible diagnosis. I feel like I am being >given the run around and just another useless test thats going to cost >me and my insurance $$$ to tell me exactly the same thing, I have IC.
-- I share your frustration! I have been trying to figure out what has been causing my pelvic pain (mostly ovary pain on both sides), urinary frequency and the feeling like my bladder just feels "sick" as soon as it starts filling up. These sypmtoms I've had on and off for the past few years and I keep going back and forth between my gynecologist, primary care physician, and uroologists. I feel like I just keep getting passed back and forth with no real answers. I've had the in-office procedure of hydro-distension (I think that's what it's called) to fill up my bladder and look inside. They were looking for signs of IC but nothing showed up. I've tried Enablex with no results. I've been on birth control pills to see if that lessens symptoms. Nope. I know I need to investigate this with more tests to find out what's going on but I just don't feel like anyone really hears me when I say how disruptive this is to my life. I just want someone to look at everything instead of having the doctors say "oh it isn't your bladder, you need to go back to your gynecologist" and the gynecologist sending me back to the urologist. It's a frustrating process and so I just keep on living with the symptoms. Let me know what happens with you! Good luck!
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Last Updated: Tue Sep 2 03:58:43 2008