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Re: Anyone know of good endo dr. in Chicago area?
From: Yvonne (anonymous@obgyn.net)
Mon Jan 28 23:32:58 2008
I wish I had the Money and Insurance I would go to either him or Center
for Endo Care in Atlanta. I hear wonderful things about both places.
But because of the issues I have been having with the Endo and pain I am
not working at all. So I am literally stuck between a rock and a hard
place.
At Mon, 28 Jan 2008, Amylyn wrote:
>
>ALL:
>
>The absolute best surgeon in the world is Dr. David Redwine in Oregon.
>I had surgery for sever endo 5 years ago including a bowel resection
>etc. It is a trip to get to him but worth it!
>
>At Sun, 27 Jan 2008, Yvonne wrote:
>>
>>Shawna,
>>
>>Not sure if I mentioned but I personally do not reccommend Lupron. I
>>did 2 rounds of it 6 months each time. First in 2001 and second time in
>>2003. It was horrendous It made me feel soo terrible because of the
>>side effects. I know some women have had good experiences with it but I
>>hear of more women having terrible problems with and after it myself
>>included. I traveled to Milwaukee because most of the time I was able
>>to stay with a friend and I wasnt completely driving from where I live
>>near midway to there. I would go after work which at the time I was
>>working by Ohare and make the rest of the drive, stay at a friends house
>>got to the appt the next day then drive back to work. and so on. I
>>could not make the drive because of the pain it travels down my legs
>>making it difficult to drive or I loose feeling. Now I definately can't
>>make the drive. If you do it go to Milwaukee have someone go with you,
>>it is helpful because of the drive and for having moral support. Dr.
>>Koh and his staff we very helpfull. Ohh and if you go either place I
>>went "Packing" I had my calender of my cycles so they could see how
>>often and stuff printed out about everything I feel when and how it
>>affects me and so on. Parts of me wishes Koh was closer, But as I said
>>before I love the fact that Rush Univ the Doctors that I am seeing work
>>together and that they understand that I have Endometriosis and it is a
>>problem and it affects other areas of the body and how they function or
>>not function. I never went to Oakbrook because everything I got from
>>there all seemed it was for "Well if you are not going to get pregnant
>>now we cannot do much of anything for you." Or Trial Studies on
>>treatments. I deal with enough which I am sure you understand I really
>>don't want to be a guinea pig, itis bad enough that with some actual
>>treatments you still feel like one. And I really hate that some places
>>tell you that you need to get pregnant..... Sorry I love kids and I
>>want them one day, but haveing one is not going to help me if after
>>pregnancy I am sick again.. Ok now I am rambling on.. Sorry...
>>
>>--
>>Yvonne
>>
>>At Sat, 26 Jan 2008, shawnamama3 wrote:
>>>
>>>Thanks Yvonne for responding. I had my surgery at Christ by Dr. Regan.
>>>However, I am unable to see him anymore because he is actually an
>>>GYNOncologist. At the time of the surgery it was probable to be
>>>endometriosis but questionable ovarian cancer. Luckily, it was not
>>>cancer. So, he has referred me to a OB/GYN in my area (Tinley Park) I
>>>am definitely willing to travel and would like someone in to help now
>>>before it comes back. I have looked into the Endometriosis Institute in
>>>Oakbrooke and the University of Chicago. I just am so afraid of going
>>>in for another surgery. It has only been about 2 1/2 months since my
>>>surgery and so far so good. I also have alot of scar tissue from 2
>>>previous c-sections. Thanks for the info and if you have any other good
>>>advise please feel free to contact me.
>>>Thanks again,
>>>>Shawna,
>>>>
>>>>Who are you currently seeing. I am in the Chicago area too. I do not
>>>>reccommend Loyola Hosp. They did not help me whatso ever and they got
>>>>my Ins all messed up because they didn't feel I was having an endo issue
>>>>because I had surger a couple months prior to seeing them that I should
>>>>be cured... LMAO what a Joke well, because of them my insurance got
>>>>discontinued. If you are able to make the Drive to Milwaukee, Dr. Koh
>>>>at Columbus-St Mary is a wonderful and understanding man. He did my
>>>>surgery a year in a half ago. I was good for a couple of months but was
>>>>back in pain again. I do hear from other women who are great after
>>>>surgery. I have a crap load of Scar tissue inside so that I am sure has
>>>>alot to do with my constant misery with the Endo. I am currently going
>>>>to Rush Univ. and I am seeing Dr. Eric Brown. he is so understanding
>>>>and helpful so far. My first visit they did not have all my records yet
>>>>so I went with a paper I typed up of everything that I have gone through
>>>>so since Day 1 to present Dr's I have seen what they have done so on in
>>>>detail. He loved it because it gave him something to go by about my
>>>>history. Especially since it took forever for the other Hosp. to get
>>>>him my Records. He also reffered me to Gastroenterologist, Urologist,
>>>>REhabilitation specialist in Neuro, Psych. They all work together and
>>>>actually talk to each other about how to help treat you. I really like
>>>>that about them. Unfortunately because of the Lack of insurance and $$$
>>>>It is really difficult for me to see them. I also hear Univ of Chgo has
>>>>some good Doctors as well. Hope this helps. Feel free to contact me if
>>>>you need anythign else.
>>>>
>>>>At Fri, 18 Jan 2008, shawnamama3 wrote:
>>>>>
>>>>>I just saw a ob/gyn and really had no good options for me. I just had
>>>>>laparotomy for endo 8 weeks ago and do not want to go through that
>>>>>again. I would like to find someone in Chicago area who specializes in
>>>>>Endo. My current dr. only offered in the choice of continuous BC pills
>>>>>or Lupron.
>>>>>I just am afraid of it coming back.
>>>>>Thanks
>>>>
>>>>--
>>>>Yvonne
>>>>
>>--
>>Yvonne
>>
--
Yvonne
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