Re: Anyone know of good endo dr. in Chicago area?
From: Amylyn (anonymous@obgyn.net)
Mon Jan 28 13:36:19 2008
ALL:
The absolute best surgeon in the world is Dr. David Redwine in Oregon.
I had surgery for sever endo 5 years ago including a bowel resection
etc. It is a trip to get to him but worth it!
At Sun, 27 Jan 2008, Yvonne wrote:
>
>Shawna,
>
>Not sure if I mentioned but I personally do not reccommend Lupron. I
>did 2 rounds of it 6 months each time. First in 2001 and second time in
>2003. It was horrendous It made me feel soo terrible because of the
>side effects. I know some women have had good experiences with it but I
>hear of more women having terrible problems with and after it myself
>included. I traveled to Milwaukee because most of the time I was able
>to stay with a friend and I wasnt completely driving from where I live
>near midway to there. I would go after work which at the time I was
>working by Ohare and make the rest of the drive, stay at a friends house
>got to the appt the next day then drive back to work. and so on. I
>could not make the drive because of the pain it travels down my legs
>making it difficult to drive or I loose feeling. Now I definately can't
>make the drive. If you do it go to Milwaukee have someone go with you,
>it is helpful because of the drive and for having moral support. Dr.
>Koh and his staff we very helpfull. Ohh and if you go either place I
>went "Packing" I had my calender of my cycles so they could see how
>often and stuff printed out about everything I feel when and how it
>affects me and so on. Parts of me wishes Koh was closer, But as I said
>before I love the fact that Rush Univ the Doctors that I am seeing work
>together and that they understand that I have Endometriosis and it is a
>problem and it affects other areas of the body and how they function or
>not function. I never went to Oakbrook because everything I got from
>there all seemed it was for "Well if you are not going to get pregnant
>now we cannot do much of anything for you." Or Trial Studies on
>treatments. I deal with enough which I am sure you understand I really
>don't want to be a guinea pig, itis bad enough that with some actual
>treatments you still feel like one. And I really hate that some places
>tell you that you need to get pregnant..... Sorry I love kids and I
>want them one day, but haveing one is not going to help me if after
>pregnancy I am sick again.. Ok now I am rambling on.. Sorry...
>
>--
>Yvonne
>
>At Sat, 26 Jan 2008, shawnamama3 wrote:
>>
>>Thanks Yvonne for responding. I had my surgery at Christ by Dr. Regan.
>>However, I am unable to see him anymore because he is actually an
>>GYNOncologist. At the time of the surgery it was probable to be
>>endometriosis but questionable ovarian cancer. Luckily, it was not
>>cancer. So, he has referred me to a OB/GYN in my area (Tinley Park) I
>>am definitely willing to travel and would like someone in to help now
>>before it comes back. I have looked into the Endometriosis Institute in
>>Oakbrooke and the University of Chicago. I just am so afraid of going
>>in for another surgery. It has only been about 2 1/2 months since my
>>surgery and so far so good. I also have alot of scar tissue from 2
>>previous c-sections. Thanks for the info and if you have any other good
>>advise please feel free to contact me.
>>Thanks again,
>>>Shawna,
>>>
>>>Who are you currently seeing. I am in the Chicago area too. I do not
>>>reccommend Loyola Hosp. They did not help me whatso ever and they got
>>>my Ins all messed up because they didn't feel I was having an endo issue
>>>because I had surger a couple months prior to seeing them that I should
>>>be cured... LMAO what a Joke well, because of them my insurance got
>>>discontinued. If you are able to make the Drive to Milwaukee, Dr. Koh
>>>at Columbus-St Mary is a wonderful and understanding man. He did my
>>>surgery a year in a half ago. I was good for a couple of months but was
>>>back in pain again. I do hear from other women who are great after
>>>surgery. I have a crap load of Scar tissue inside so that I am sure has
>>>alot to do with my constant misery with the Endo. I am currently going
>>>to Rush Univ. and I am seeing Dr. Eric Brown. he is so understanding
>>>and helpful so far. My first visit they did not have all my records yet
>>>so I went with a paper I typed up of everything that I have gone through
>>>so since Day 1 to present Dr's I have seen what they have done so on in
>>>detail. He loved it because it gave him something to go by about my
>>>history. Especially since it took forever for the other Hosp. to get
>>>him my Records. He also reffered me to Gastroenterologist, Urologist,
>>>REhabilitation specialist in Neuro, Psych. They all work together and
>>>actually talk to each other about how to help treat you. I really like
>>>that about them. Unfortunately because of the Lack of insurance and $$$
>>>It is really difficult for me to see them. I also hear Univ of Chgo has
>>>some good Doctors as well. Hope this helps. Feel free to contact me if
>>>you need anythign else.
>>>
>>>At Fri, 18 Jan 2008, shawnamama3 wrote:
>>>>
>>>>I just saw a ob/gyn and really had no good options for me. I just had
>>>>laparotomy for endo 8 weeks ago and do not want to go through that
>>>>again. I would like to find someone in Chicago area who specializes in
>>>>Endo. My current dr. only offered in the choice of continuous BC pills
>>>>or Lupron.
>>>>I just am afraid of it coming back.
>>>>Thanks
>>>
>>>--
>>>Yvonne
>>>
>--
>Yvonne
>
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