Re: Anyone know of good endo dr. in Chicago area?
From: Yvonne (anonymous@obgyn.net)
Sat Jan 26 23:29:16 2008
Shawna,
Not sure if I mentioned but I personally do not reccommend Lupron. I
did 2 rounds of it 6 months each time. First in 2001 and second time in
2003. It was horrendous It made me feel soo terrible because of the
side effects. I know some women have had good experiences with it but I
hear of more women having terrible problems with and after it myself
included. I traveled to Milwaukee because most of the time I was able
to stay with a friend and I wasnt completely driving from where I live
near midway to there. I would go after work which at the time I was
working by Ohare and make the rest of the drive, stay at a friends house
got to the appt the next day then drive back to work. and so on. I
could not make the drive because of the pain it travels down my legs
making it difficult to drive or I loose feeling. Now I definately can't
make the drive. If you do it go to Milwaukee have someone go with you,
it is helpful because of the drive and for having moral support. Dr.
Koh and his staff we very helpfull. Ohh and if you go either place I
went "Packing" I had my calender of my cycles so they could see how
often and stuff printed out about everything I feel when and how it
affects me and so on. Parts of me wishes Koh was closer, But as I said
before I love the fact that Rush Univ the Doctors that I am seeing work
together and that they understand that I have Endometriosis and it is a
problem and it affects other areas of the body and how they function or
not function. I never went to Oakbrook because everything I got from
there all seemed it was for "Well if you are not going to get pregnant
now we cannot do much of anything for you." Or Trial Studies on
treatments. I deal with enough which I am sure you understand I really
don't want to be a guinea pig, itis bad enough that with some actual
treatments you still feel like one. And I really hate that some places
tell you that you need to get pregnant..... Sorry I love kids and I
want them one day, but haveing one is not going to help me if after
pregnancy I am sick again.. Ok now I am rambling on.. Sorry...
--
Yvonne
At Sat, 26 Jan 2008, shawnamama3 wrote:
>
>Thanks Yvonne for responding. I had my surgery at Christ by Dr. Regan.
>However, I am unable to see him anymore because he is actually an
>GYNOncologist. At the time of the surgery it was probable to be
>endometriosis but questionable ovarian cancer. Luckily, it was not
>cancer. So, he has referred me to a OB/GYN in my area (Tinley Park) I
>am definitely willing to travel and would like someone in to help now
>before it comes back. I have looked into the Endometriosis Institute in
>Oakbrooke and the University of Chicago. I just am so afraid of going
>in for another surgery. It has only been about 2 1/2 months since my
>surgery and so far so good. I also have alot of scar tissue from 2
>previous c-sections. Thanks for the info and if you have any other good
>advise please feel free to contact me.
>Thanks again,
>>Shawna,
>>
>>Who are you currently seeing. I am in the Chicago area too. I do not
>>reccommend Loyola Hosp. They did not help me whatso ever and they got
>>my Ins all messed up because they didn't feel I was having an endo issue
>>because I had surger a couple months prior to seeing them that I should
>>be cured... LMAO what a Joke well, because of them my insurance got
>>discontinued. If you are able to make the Drive to Milwaukee, Dr. Koh
>>at Columbus-St Mary is a wonderful and understanding man. He did my
>>surgery a year in a half ago. I was good for a couple of months but was
>>back in pain again. I do hear from other women who are great after
>>surgery. I have a crap load of Scar tissue inside so that I am sure has
>>alot to do with my constant misery with the Endo. I am currently going
>>to Rush Univ. and I am seeing Dr. Eric Brown. he is so understanding
>>and helpful so far. My first visit they did not have all my records yet
>>so I went with a paper I typed up of everything that I have gone through
>>so since Day 1 to present Dr's I have seen what they have done so on in
>>detail. He loved it because it gave him something to go by about my
>>history. Especially since it took forever for the other Hosp. to get
>>him my Records. He also reffered me to Gastroenterologist, Urologist,
>>REhabilitation specialist in Neuro, Psych. They all work together and
>>actually talk to each other about how to help treat you. I really like
>>that about them. Unfortunately because of the Lack of insurance and $$$
>>It is really difficult for me to see them. I also hear Univ of Chgo has
>>some good Doctors as well. Hope this helps. Feel free to contact me if
>>you need anythign else.
>>
>>At Fri, 18 Jan 2008, shawnamama3 wrote:
>>>
>>>I just saw a ob/gyn and really had no good options for me. I just had
>>>laparotomy for endo 8 weeks ago and do not want to go through that
>>>again. I would like to find someone in Chicago area who specializes in
>>>Endo. My current dr. only offered in the choice of continuous BC pills
>>>or Lupron.
>>>I just am afraid of it coming back.
>>>Thanks
>>
>>--
>>Yvonne
>>
--
Yvonne
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