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Re: hysterectomy! PLEASE READ IT!!! and dr orbuch
From: anonymous (anonymous@obgyn.net)
Fri Jan 18 20:04:33 2008
Just to clarify, Dr. Orbuch did NOT say that she would recommend a hyst
if she found pre-cancerous cells and adenomyosis. However, she did say
the end. biopsy is a test she likes to do BEFORE she does any surgery.
That way, she knows what she is up against. I have been the one pushing
for the hyst, not the doctor.
Mary
At Fri, 18 Jan 2008, anonymous wrote:
>
>it's clear your doctor doesn't know 'all that' about endo
>redwine is the true expert
>remove the ovaries, you remove the source of all good hormones
>estrogen is also not all bad
>
>and orbuch should not be doing hyst's if she find precancerous cells -
>there are reversions for that
>
>what the hell do these doctors know? they like to cut and take care of
>themselves
>
>they know you won't come crying to them if they can't put the uterus
>back in
>
>At Fri, 18 Jan 2008, andrea wrote:
>>
>>Thanks, Tanja, but
>>
>>I have Adenomyosis as well - endometriosis inside my uterine muscle and
>>the only cure for that pain, is the removal of the uterus. And to
>>prevent endo from returning, I am having my ovaries out to get rid of
>>the estrogen. This is my first surgery, so I am confident it will be
>>thorough and I want it to be final. And no more periods - ever. Most
>>women who have hysterectomies with regular ob's DO have their endo
>>return, because endo is left behind, or because those doctors are not
>>qualified at finding it all and can't do bowel or bladder removal.
>>
>>My doctor does removal from ALL AREAS. Even Dr. Redwine only has a 57%
>>success rate with one lap. I want better odds than that!! As long as I
>>can get my hormones in check, I will be happy. A uterine biopsy is
>>useless to diagnose Adenomyosis, my doctor said, because they may not
>>even biopsy the right area of the uterus and give you the wrong
>>diagnosis. My ultrasound showed Adenomyosis. I trust this is my
>>decision and am going to try to think of the positive things about it.
>>
>>At Fri, 18 Jan 2008, Tanja wrote:
>>>
>>>Just read the following. This is letter from one of the latest
>>>Dr.Kanayama´s patient, I got it from his site. If this is the truth
>>>then it is very impressive! Please, girls, don´t be in a hurry with
>>>hysterectomy!!! To me it is worse than Lupron.
>>>Anyway please comment on the following letter! As to me I think Dr.
>>>Kanayama sounds really great!
>>>
>>>January 4, 2008
>>>
>>>By the time I had crossed the threshold of the NY Endometriosis Center,
>>>I had just about given up hope. Quickly, that changed. As I looked
>>>around the waiting room I saw award upon award to Dr. Kanayama –
>>>including Best Endometriosis Specialist 2005, 2005, 2007. My confidence
>>>was building.
>>>
>>>I heard the Office Manager Sabrina talk with several patients and I
>>>could tell how empathetic she was; Sabrina routes and rallies for each
>>>patient – not only dealing with insurance companies to get the most
>>>coverage, but she genuinely cares how each patient is feeling. The
>>>waiting room was full of women actually smiling as they discussed Endo.
>>>Now I was optimistic. Now I was thinking that maybe there is a
>>>possibility I might be free from Endo after all these thirty years.
>>>
>>>I had become desperate. I had become distressed. I had become
>>>despondent. Why? Because I’d tried everything to eliminate my Endo.
>>>Birth control pills, five previous laparoscopies from regular GYN’s,
>>>Lupron injections for six months (horrible), continuous birth control
>>>pills, Chinese Medicine, acupuncture, hypnosis (like it was all in my
>>>head), visualization, and then, finally, a radical hysterectomy taking
>>>uterus, cervix, both tubes, both ovaries, and “removal of some Endo”. If
>>>you heard that Endo is over after hysterectomy, it is absolutely
>>>incorrect. At this point I’m depressed and miserably in pain. I
>>>googled and found this fantastically apropos quote Dr. Kanayama had on
>>>his website:
>>>
>>>“Come unto Me, all ye that are weary and heavy laden.
>>>And I shall give you Rest.” (Matthew, 11:3)
>>>
>>>Bingo! I found the right doctor! Laparoscopy shows Endo Stage IV in
>>>abdominal cavity (which had just had Endo excised by eye, not through
>>>Dr. Kanayama’s special tiny tube), Endo in my bowels and intestines
>>>too. He told me he could have saved my uterus, my ovaries, my
>>>everything. If only I had found him earlier, I would have gotten my
>>>life back years ago. It saddens me to think of all the events I could
>>>have attended, of only I had found this miracle-working Endo Specialist
>>>and my personal hero, Dr. Kanayama.
>>>
>>>But that was then, this is now – two weeks post-op. And for the first
>>>time in thirty years of silently suffering I am finally able to say, “I
>>>am not in pain. I feel healthy.” I will sing praises of Dr. Kanayama
>>>from here to eternity.
>>>
>>>Regina S.
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