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Sherri
From: andrea (anonymous@obgyn.net)
Fri Jan 18 00:27:03 2008
I hate to hear that you are still in pain after a hysterectomy! Did you
get any relief at all in the beginning? I want to know this will be over
for me....was your surgery done by a specialist? Had you had previous
surgeries? It makes me feel better, knowing I am going to one of the
best, best equipment and have not been messed with at all in there by
anyone else, so hopefully it will go smoothly. I'm sorry if you've told
me your past before, but what all have you been through? Your doctor is
an *ss, if he won't give you an MRI! My mind's a little foggy right now
and I can't even think straight. You can send it e-mail if you like.
At Thu, 17 Jan 2008, Sherri wrote:
>
>Andrea,
>
>I am so happy that you finally received some validation re:the pain you
>have been having. I remember that feeling well! Before one of my major
>surgeries for endo and adhesion removal and a PSN, I was treated like a
>junkie or pill-seeking patient by everyone. All the doctors, my
>"friends", husband, parents and other family members did not believe me
>when I first started complaining about my pain and other symptoms. It
>took the surgeon telling them in the waiting room immediately after my
>surgery that I had good reason to have been in so much pain! Besides all
>the endo (stage IV) and adhesions, my bladder was adhered to my cervix,
>blah, blah. Anyway, I will never forget the looks on their (my parents
>and hubby)faces when they had to actually admit that they had been so
>wrong in treating me the way they had for all those years.
>
>Sorry, I went off on a tangent there for a sec. My question to you is
>how did you get the doc to order an MRI for you? I have asked my doctors
>for the last 4 years (since my total abdominal hyst in May 04)to give me
>an MRI b/c I KNOW that something is wrong again, or more likely, the
>endo was not all removed during my hyst in the first place. I have had
>a ton of CT-Scans, ultrasounds (including vaginal) and nothing ever
>shows up on them. I have been told by 3 different doctors (my GYN, PCP,
>and PM)that an MRI would not show anything at all and would be a waste
>of my time and money. I don't understand why they won't give me one. I
>mean, if they are positive that nothing will show up on a MRI, then why
>not humor me and do it anyway! I have great insurance so I don't think
>that is the issue. I'm just confused b/c they have given me so many
>cat-scans, yet they also tell me that nothing like endo or adhesions
>will show on those either. This disease and these "doctors" never cease
>to amaze me! What all can an MRI show?
>
>At Thu, 17 Jan 2008, andrea wrote:
>>
>>Finally. REAL PROOF of my pain!! All these doctors all these years,
>>telling me I was exaggerating my pain...them not believing me or helping
>>me...accusing me of pain pill seeking...I have so many lesions!
>>
>>I remember, when I was 14, my cousin and I drawing pictures of little
>>monsters, holding pitch-forks and saying "these are our period
>>monsters!" We would pass them on notes in class to let each other know
>>we hurt on our periods that day in school. My God, I've had this soooo
>>long. I'm 37 now.
>>
>>My uterus is stuck to my large intestine by a long, gross looking lesion
>>that looks like a chewed peice of gum. It is about 3 inches long. That
>>is what hurts my lower back so badly. I could not believe my eyes!
>>
>>And my cul-de-sac is obliterated, full of lesions too. He will have to
>>dissect my colon to get to it. I opted to get a full hysterectomy next
>>Wednesday, after seeing what my body looked like on the inside today. I
>>don't think picking at the lesions around my reproductive system would
>>be good enough to get it all and I would just end up back in surgery.
>>
>>I think this is my best chance to be pain-free. Dr. Dulemba only gave
>>me a 53% chance of having lesions NOT grow back with one lap, but gave
>>me a 97-98% chance of them not growing back with the hysterectomy. I
>>want this to be my ONE AND ONLY surgery and no more pain, periods,
>>canceling plans because of this junk every month...no more pills or pain
>>meds!
>>
>>I really believe it will be like starting my life over. The day I wake
>>up with no pain will be the first day of a happy life for me. This
>>surgery is with one of the best specialists out there and he uses the
>>top state-of-the-art equipment The DaVinci Robot(newer and better than
>>the Carbon 13 CO2 laser), so I think I have a pretty darn good chance at
>>beating this! I'm not messin around with this anymore. I'm so done.
>>
>>And, happy to say, me and my boyfriend made up. I just over-reacted
>>because it was our very first fight. I was overwhelming him with all my
>>crying and he is overwhelmed at work as well. And he admitted he's been
>>a bit insensitive. Whew! He really has been an angel and I would have
>>not made it through this last year without him. I truly believe I am
>>making the best choice.
>>
>>My other doctor assures me that the bio-identical progesterone should be
>>enough to keep any menopause symptoms at bay, so hopefully! I will keep
>>you all updated on my progress.
>>
>>Thank you all for being such great, supportive, sweet women! So many of
>>you have helped tremendously and you have kept me from falling apart at
>>times. I am so grateful and I am always here for you too!
>>
>>Sincerely, Andrea :)
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