Re: Endo, fibromyalgia, lupron, depression...to Laura
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From: andrea (anonymous@obgyn.net)
Wed Jan 16 01:46:16 2008
Laura,
Please don't take Lupron, especially if you already have bone pain!!!
This stuff will make it wayyy worse. I have documents that were
well-hidden online that the drug company does not want anyone to see
about Lupron. REAL TEST STUDIES that are shocking! E-mail me, and I
will send them to you. There are over 200 side effects reported to the
FDA and this is really dangerous stuff. Doctors prescribe it a lot
because they make up to 100k more a year from that drug company for
prescribing it. Hope to hear from you.
--
Andrea
At Wed, 16 Jan 2008, Laura wrote:
>
>Thanks Niki. It seems also like the more I read the more questions I
>have.
>My doctor is a regular GYN (doesn't do OB anymore, not sure why). I
>never thought about a specialist. How many shots of the lupron did you
>have? How long does it take for the side effects to go away after you
>stop taking the shot? It dawned on me just a while ago that I may not be
>able to afford it anyway. I'll be stuck with 20% of the cost and my doc
>says it's really expensive. Did your insurance cover it?
>
>What did you do after the lupron? I read something a couple days ago
>about LUNA, laparoscopic uterine nerve ablation, which must be like what
>I just had done in my back a few months ago, radiofrequency nerve
>ablation. My spine doc did that in the L4-L5 area and it should have
>worked but didn't - that's why they seem to think it might be the endo
>causing some of the lower back pain. Does anyone know anything about it
>(the LUNA)?
>
>((hugs)) to you too - it's such a help just to have someone listening
>who understands.
>
>At Tue, 15 Jan 2008, niki wrote:
>>
>>Please Please do not take lupron! It has caused so many problems and
>>with you already experiencing bone loss, fibromyalgia, and your chronic
>>pain lupron is known to cause these things and much much more!
>>
>>I know your desperate and suffering in pain daily! But lupron is not the
>>answer to your problems. Are you seeing a specialist or just a regular
>>ob/gyn? Most specialists will not recommend lupron as its basically a
>>temporary band aid and when treatment stops your symptoms reoccur
>>usually much worse than before. I know how you feel. I was at the
>>desparation point too. My doctor promised me lupron was the answer that
>>i would be pain free by 6 weeks time. and boy was i fooled! 2 days
>>after the shot i was anything but pain free. I now have lupus as well
>>as inflammatory arthritis. I have since filed for disablity as i am no
>>longer able to work do to the daily pain.
>>
>>I would seek a specialist if your able, especially one that does
>>excision surgery. Good Luck and Many (((HUGS)))
>>
>>At Tue, 15 Jan 2008, Laura wrote:
>>>
>>>Hi everyone - I'm new here and found this site out of desperation, and
>>>needing to communicate w/other women who have felt this bad. I have
>>>other problems that seem to all be feeding off each other, and don't
>>>know what to do at this point. At the moment I'm taking Lessina as a
>>>last resort BCP (the others don't work for me, for various reasons) and
>>>am about to get Lupron injections and am, frankly, just plain confused
>>>and worried. Seems like all the options have side effects that I
>>>already suffer from , like depression, bone loss (I already have
>>>osteopenia), chronic fatigue, etc. And I have fibromyalgia and some
>>>low-back problems (degenerative disc+) that cause tremendous pain in my
>>>lower back, with no relief. Ever. That is not at all an exaggeration,
>>>although people don't seem to believe that. Anyway, recently my doctors
>>>suggested that the endo may be what has made my back pain so much worse
>>>lately, since they've tried several different things w/my back that have
>>>not worked. My Gyn said that might be true (she says endo was all over
>>>the uterosacral ligaments) but no way to tell except having a
>>>hysterectomy or doing lupron to induce the 'fake' menopause.
>>>
>>>I'll be 38 next month and have no kids; even though I'm not involved
>>>w/anyone right now (the men I've met quit calling after they hear
>>>"chronic pain." cowards) I've always wanted to have a baby and am just
>>>not ready to give that up, otherwise I'd just have the hysterectomy. I'm
>>>sorry for babbling on like this, but have no one to really talk to about
>>>it all and am just so damn depressed & don't know what to do. Maybe I
>>>should get a second opinion? And find a support group.
>>>I'm trying so hard not to be so depressed but it's getting harder every
>>>day.
>>>Any thoughts any of you might have would be really helpful and greatly
>>>appreciated.
>>>Laura
>>>
>>>--
>>>Laura
>>>
>>>-"Life shrinks or expands in proportion to one's courage." - Anais Nin
>>>
>--
>Laura
>
>-"Life shrinks or expands in proportion to one's courage." - Anais Nin
>
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