Re: Pain after total hysterectomy
From: Jimmieann (anonymous@obgyn.net)
Sun Dec 30 09:52:47 2007
Donna,
Thank you for your reply. Your story sounds too familiar. I am so
disappointed and frustrated because I thought the surgery would relieve
my pain.
I just want others to know that endo is a very serious disease and
should not be dismissed. I wish I had searched for a more compassionate
and informed doctor so that maybe my endo would not have gotten to stage
IV.
I hope you find some peace and have a pain free day today!
--
Jimmieann
At Sun, 30 Dec 2007, donna wrote:
>
>Hi.
> I very seldom post on this board but do read the post from time to
> time and it seems like when I do there is always some poor woman going
> through all the misery I have been through with endo. I had a total
> hysterectomy when I was 28 (i am now 42) I did the Lupron a couple of
>times and it NEVER did me a bit of good, just managed to turn me into
>more
> of a raggin biotch than i already am. But it effects everyone
> different so one person's experience should not be a guarantee of the
> experience that someone else may have.
> And now about the pain from endo, I still have horrible pain in my
> pelvic area. I was so let down knowing I went through the surgery and
> threw away every chance I ever had (as slim as it was) to have another
> child. I only have one who is now a typical teenager, I now know why
> some animals eat their young. Don't let no dr ever tell you that a
>hysterectomy is a sure fire cure for endo, it is not. For some it can
>be
> and for some it has been a cure. If so your lucky, thank God it cured
> you. It did get rid of the God awful pain I had with my periods with
> endo though and no more crazy periods, that i am thankful for. But I
>still have problems and docs do nothing but stand around scratching
>their
> heads on what the problem could be because I have no more female
>plumbing left. I have only met one doctor who did a study on endo after
>a
>total hysterectomy. He is the only one i met that believes it can
>linger
> and cause other problems. I have even taken lupron after my
> surgery.
> I strongly suggest a good pain mang doctor to everyone who still
> suffers from this mess. It sucks living on pain meds but it is what it
> is. Its that or being stupidly brave and toughing out the pain, seeing
> it never goes away and I now have some sort of life as to where i had
> none before. I suggest everyone find a real good GI doc too. One who
>will listen to your theory of endo being around after a hysterectomy. If
> you find one that tells you no way, don't walk out of his/her office.
> RUN out! You will only spend precious time and a ton of money on
>this idiot to tell you that you just have IBS and to put you on meds
>that
> you don't need and trust me none that treat IBS will help your endo.
> Though some may actually have IBS, I didn't though and spent to much
>time and money having some guy tell me I did and put me on more meds
>that
> made me feel horrible and to get no relief what so ever.
> finally just hope and pray that some day they find a cure for this
> mess and that maybe our daughters, grand daughter or even great grand
> daughters do not have to suffer this same fate as us. That is the most
> we can hope for in the mean time. If your ever in a position to be
>part of a study for endo after a hyster, take part of it. I did and it
>did
> me no good but if it helps someone 20-30 even 40 to 50 years from now,
> it was worth it. If I knew the results would be the same again, I
>gained nothing from being in a study I would do it again in a heart
>beat,
> thinking that maybe one day someone can be spared a lot of misery.
> Good luck ladies and I hope and pray you all have a time in your
> life where you feel great and have no pain or even have a day where you
> don't have to think about endo. That will be a great day and when and
> if you ever get one, enjoy that day! :)
> hugs,
> Donna
>
>--
>Donna
>
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