ENDO Messages for December, 2007: Re: constant battle

Re: constant battle

From: Amy (anonymous@obgyn.net)
Wed Dec 26 08:53:33 2007

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In reply to: anonymous: "constant battle"

Sorry to hear you are feeling so bad and dealing with the toll of endo. I was diagnosed 12 years ago and know how you feel. Some days I just don't know how I can cope, other days my spirit is stronger and I get through the day. For me, the fatigue has been one of the worst symptoms. I am used to being a very active person and those days when I have no energy to do anything but lay on the couch or bed are so frustrating. In fact, had one yesterday-just so wiped out couldn't muster the energy to do much of anything. I am lucky to be married to such a wonderful, supportive man. He never complains and always tries to understand and help best he can. I must admit that being married to such a great guy has made life with endo easier-can't imagine how I could cope without his support.

I try to just take one day at a time, live the good ones to the fullest and try not to beat myself up too bad when I have a bad day where I can't do anything. At 36, I have finally realized that sometimes I just need to listen to my body and give into the exhaustion without worrying over it. Not always easy to do but worrying over how bad I feel just makes me feel worse.

Just some suggestions: this forum is a great avenue for support. It has helped me cope with endo on many a day when I thought I couldn't make it. It can help you feel not so alone and I find comfort in knowing other women out there can understand what I am going through.

I also try to treat myself to a massage once in awhile, when I can afford it. Sometimes an hour or so of someone pampering me helps to take the stress away and make it easier to cope. A great way to let it all go for awhile. I also see a counselor once in awhile. I am lucky to have decent health insurance that provides some mental health coverage so I take advantage of it. I look forward to my sessions and spend many of them talking about how endo has impacted my life. It's nice to vent to someone who has no active part in my life and can give me some objective advice and insight. I have also learned much about myself in these sessions, which in turn is helping me to cope better with the endo.

Not sure I can really offer much other than some comfort and "been there, done that" but try to hang in there and take it one day at a time.

Hugs! Amy Meyer

At Mon, 24 Dec 2007, anonymous wrote: >
>hi,
>I guess I am just looking for some advice on coping. I am 23 years old.
>I have had 4 large cysts burst and a year ago I lost one of my ovaries.
>They told me the scar tissue was so severe that I almost lost
>everything. I am trying everything I can to be healthy. I just
>recently began having problems again. irregular periods...(I have been
>on the pill for 6 years)My periods are lasting 10 days. This is just a
>constant battle, and I am getting tired. Sometimes I just wish I could
>just have a hysterectomy and be done with it. The pain the fatigue
>takes its toll on my husband and I.

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In reply to: anonymous: "constant battle"

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