ENDO Messages for December, 2007: Re: ad this: Good news on endo!!!

Re: ad this: Good news on endo!!!

From: aozman (anonymous@obgyn.net)
Wed Dec 26 02:49:26 2007

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At Wed, 21 Nov 2001, Dilber wrote: >
>I just want to share an optimistic story and news about endometriosis.
>I am 30 and I was diagnosed with endo 2.5 years ago, as a coincidence. I
>was not having pain or any other problems but my period was a little
>late and the doctor wanted to find out if I was pregnant. During the
>exam (they insert a small camera in you and you see it on the computer
>screen) ıt turned out I had one 5 cm endometriosis cyst on left and a 2
>cm cyst on the right. Endo what?
>Since I was not having pain, I was told to wait and come for checkups
>every 3 months. I did not care about it much back then. Only 8 months
>ago, when I started experiencing unbearable pain during periods and went
>to the doctor's, it turned out that one of them got a diameter of 12 cm
>(size of a big grapefruit!) and the other got 5 cm. in size. After
>spending time looking for the best laparoscopy doctor in Istanbul (and
>listening to 2 doctors that I was a hopeless case and needed open
>surgery/or maybe even hystrectomy, that this disease is ruin my life
>etc! I felt terrible.)
>I met a great doctor who works in Istanbul and Belgium, and has a new
>method that has been recently published in journals. It works perfectly
>for big endo cysts that are considered impossible to get rid of by
>laparoscopy: He gives you a local anesthetic, he inserts a needle in
>you, and the camera they use for examination. He carefully inserts the
>needle in the cyst and aspires the fluid. It takes about 15 minutes and
>is like an examination. After these 15 minutes, one of my cyst shrunk
>to 3 cm., the other to about 1 cm. in size!(I had more than 1 lt. of
>fluid in them!) So now, they were not too big anymore, ready to be taken
>by laparoscopy.
>Then he gave me 1 shot of lucrin depot and told me to come back in a
>month. I felt very relieved around the abdomen.
>I had my 2nd shot, and 2 weeks after that, I had my laparoscopy, done by
>the same doctor. (The cyst had shrunk a little more because of lucrin).
>The laparoscopy took about 2 hours! They said the lesions were so
>scattered (intestines, everywhere) that they got my permission to keep
>my lap tape for education purposes (ıt seems I had everything there is
>about endo!).
>I completed my 6 shots of lucrid a month and a half ago. I did not have
>much side effects (read below), and I had my period yesterday. No pain,
>nothing! Feels great, life is wonderful.
>Get a good doctor (if you live in Istanbul, contact me) do not feel
>sorry for yourself, do not forget this is not cancer, AIDS, or
>hepatitis, diabetes or even arthiritis. This is a benign condition. Go
>have a laparoscopy, and continue to enjoy life! Best of luck!
>
>Things I have learned:
>-Never, never, never have an open surgery. A laparoscopy (if your
>doctor is really good at it, this is very important) always takes better
>care of all endometriosis. And apart from medical advantages( being
>able to see and reach everywhere on camera, not cutting your abdomen, no
>chance of complications etc.), for the patient, it is a piece of cake
>compared to surgery. Do not listen to doctors who say your cyst/lesions
>are too big, etc and you should have an open surgery. They simply are
>not very good at laparoscopy, because it is a relatively difficult and
>new technique to perform. DO NOT FORGET Almost all people who have to
>have a lap every 2 years, do it because the first laparoscopy (ies) were
>not very well done and lesions/cyst etc. were left there to grow back.
>Take time to find the best doctor.
>-Do not have laparoscopy as an outpatient. Rest at the hospital for 1
>night. Leave the other day. Go out for dinner in 4 days, go to work in
>5 days. Go party in 6 days!
>-Do not be scared of GnRh analogs like lupron. Do not read horror
>stories about side effects on the internet, think about side effects of
>endo or even a regular period instead! I used lucrin depot shots 3.75
>mg. for 6 months. I only had hot flashes (which are not that bad, and
>after 3 months they give you mild hormone pills they give to menopausal
>women, and they go away) and occasional constipation (I am not sure if
>it was caused by lucrin). Actually not having your period during summer
>months was sort of comfortable about swimming etc! After you finish the
>therapy all (if there are any) side effects go away, believe me.
>-Do not read other people's horror stories on the internet. Your story
>may be (probably will be) totally different. Read medical books,and
>texts ask your doctor.
>-GET A GOOD DOCTOR, THE BEST DOCTOR THERE IS, WHO IS SPECIALIZED ON
>LAPAROSCOPY, NOT BIRTH, OPEN SURGERY, OR ANYTHING ELSE. L A P A R O S C
>O P Y!!!
>
>--
>Nickname: Grapefruit!
>

--
hi dilber,
when I read your story I was so excited, because
I live in Istanbul and I am looking for a good
doctor to help me with my endo. I will be grateful
if you can help me with that.
best, aozmanx

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