Re: anonymous!! 2 My baby making days are over :(
From: Jess (anonymous@obgyn.net)
Wed Dec 19 15:24:07 2007
WOW,
how was I being mean. I was suggesting an alternative that might work
very well. I never said it was wrong to have a another baby, I just
said it might be a better option. I was trying to be supportive and let
her know she might not be able to make a baby but she can still have
one. If you did ever come to this forum you'd know I've never been
judgemental or rude. I think you need to stop jumping to conclusions
and don't assume I'm being rude. Thank You
But now that you mention it I don't think I could risk my life to have
another baby when if something goes wrong my kids would have no mom at
all. Thats how I feel but I would never tell her what to do or that she
shouldnt have another kid.
At Wed, 19 Dec 2007, anonymous wrote:
>
>WOW how supportive you are anon Dec 18th! First there are two issues, 1)
>being endo 2) being lupus. Now I happen to have experience with high
>risk pregnancies. WHY? I have had Severe PE/HELLP Syndrome and Severe
>PIH. What she is talking about with problems with kidneys,blood clots,
>etc is that she is high risk for pre-eclampsia/hellp syndrome/pih. That
>is why one of the reasons they are doing the hysterectomy and it has
>actually been suggested to me by 3 drs for the same reasons (one of them
>an internationally recognized pelvic pain specialist). I have suspected
>adenomyosis and confirmed endometriosis. Lupus is an auto-immune
>disease and now that she has been diagnosed with it, makes her very high
>risk for pregnancy. Lupron probably did not cause the lupus.
>
>Hearing this kind of news is very upsetting to women. I was told to
>never have another child again after my first because I almost DIED. I
>did have another 6 1/2 years later but again that was a hard complicated
>pregnancy and also ended in an emergency delivery.
>
>Here I am again 4 1/2 weeks pregnant. However, I have a team of drs
>following me (opthamologist, obgyn, endo specialist, perinatologist,
>pcp, etc). My dr when hearing that I was pregnant again (I do love her
>and she was looking out for my best interests) said congratulations. So
>are you getting that uterus removed after this one so that there are no
>more?
>
>Geez, have a little compassion. One of the reasons I only check in
>every couple of months now because of the nastiness on this board. I
>thought we were supposed to SUPPORT women here. Instead all I find is a
>bunch of know it alls who recommend treatments that are out reach for
>most women due to health insurance, costs, and very few excision
>specialists around. What you should have done was encourage her to
>explore her options. While she already has 2 children, why can't she
>wish to have more? There is nothing wrong with that. Did you ever think
>that if she could afford to adopt a child, maybe she could afford to
>have the endo excision treatment to begin with?
>
>I'm sorry your baby making days are over with. It is something that I
>am coming to terms with myself and have had a difficult time with. This
>baby now will be the last. I will be looking at permanent options after
>the baby is born.
>
>At Wed, 19 Dec 2007, anonymous wrote:
>>
>>i think lupron harms your immune system for sure,isn't it
>>immuno-suppresive?
>>
>>save your fertility if you want to, you are the only one who can know if
>>you want to adopt
>>
>>Doctors can be brutal, and have rough methods of dealing with things. If
>>you feel so strongly about this that you are crying, you have GOT to get
>>real second opinions, from experts
>>
>>Have you ever heard of this doctor? He's supposed to care very much
>>about preserving a woman's fertility, and in helping them
>>
>>http://www.naprotechnology.com/surgical.htm
>>
>>At Wed, 19 Dec 2007, Jess wrote:
>>>
>>> Are you saying Lupron caused Lupus?
>>>I think people with Endo are mroe likley to have auto-immune diseases,
>>>even without Lupron use. Maybe I miss understood you. Anyways I've
>>>prepared myself with the realization I might have to adopt and I came to
>>>realise that was a blessing all in its own. You already have biological
>>>children why don't you adopt? So many children so little homes. I feel
>>>you'd be doing an even better thing by adopting then getting pregnant
>>>but thats just my opnion.
>>>Jessica
>>>jessicarozez@hotmail.com
>>>
>>>At Tue, 18 Dec 2007, anonymous wrote:
>>>>
>>>>No, I do not want to join your pity party. Did you read the post below
>>>>about hyst's, about how they affect your hormones? Do you know you might
>>>>have MORE pain post-hyst than before? Have you read Dr Redwine's site
>>>>(and no I do not work for him, I read his site).
>>>>
>>>>Progesterone might help you SO Much with some of these problems,incl
>>>>early delivery.
>>>>
>>>>it's not going to cure the endo, but it sure as heck might help you
>>>>
>>>>i'll look for some info on doctors
>>>>
>>>>At Tue, 18 Dec 2007, niki wrote:
>>>>>
>>>>>ive seen my rheumatologist and gyno. Both agree with my ana pointing
>>>>>towards lupus (thanks lupron!) that me getting pregnant would be way to
>>>>>risky. I am already a high risk pregnancy due to both kids coming
>>>>>early. The risks of me getting pregnant would be passing clots thru the
>>>>>placenta to the baby and baby dying in utero. me going into kidney
>>>>>failure, or passing blood clots to myself. They both agreed pregnancy
>>>>>would be way to risky. So its gonna be planned for the first week of
>>>>>Jan. It will be done laprascopic. They will remove uterus and both
>>>>>ovaries. He also will burn off any endo that has grown back. I will
>>>>>not be put on any hormone replacement as the estrogen feeds endo. This
>>>>>saddens me to no end. then to put the icing on the cake i go to leave
>>>>>and in the waiting room is a lady with her newborn baby. I lost it. I
>>>>>spent 15 min sobbing in my car. I am blessed to have the two babies I
>>>>>do have. But I would love to have another baby. Im waiting on dh to
>>>>>call at 1130. Anyone wanna join my pity party????
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