Re: My baby making days are over :(
From: anonymous (anonymous@obgyn.net)
Wed Dec 19 05:11:12 2007
WOW how supportive you are anon Dec 18th! First there are two issues, 1)
being endo 2) being lupus. Now I happen to have experience with high
risk pregnancies. WHY? I have had Severe PE/HELLP Syndrome and Severe
PIH. What she is talking about with problems with kidneys,blood clots,
etc is that she is high risk for pre-eclampsia/hellp syndrome/pih. That
is why one of the reasons they are doing the hysterectomy and it has
actually been suggested to me by 3 drs for the same reasons (one of them
an internationally recognized pelvic pain specialist). I have suspected
adenomyosis and confirmed endometriosis. Lupus is an auto-immune
disease and now that she has been diagnosed with it, makes her very high
risk for pregnancy. Lupron probably did not cause the lupus.
Hearing this kind of news is very upsetting to women. I was told to
never have another child again after my first because I almost DIED. I
did have another 6 1/2 years later but again that was a hard complicated
pregnancy and also ended in an emergency delivery.
Here I am again 4 1/2 weeks pregnant. However, I have a team of drs
following me (opthamologist, obgyn, endo specialist, perinatologist,
pcp, etc). My dr when hearing that I was pregnant again (I do love her
and she was looking out for my best interests) said congratulations. So
are you getting that uterus removed after this one so that there are no
more?
Geez, have a little compassion. One of the reasons I only check in
every couple of months now because of the nastiness on this board. I
thought we were supposed to SUPPORT women here. Instead all I find is a
bunch of know it alls who recommend treatments that are out reach for
most women due to health insurance, costs, and very few excision
specialists around. What you should have done was encourage her to
explore her options. While she already has 2 children, why can't she
wish to have more? There is nothing wrong with that. Did you ever think
that if she could afford to adopt a child, maybe she could afford to
have the endo excision treatment to begin with?
I'm sorry your baby making days are over with. It is something that I
am coming to terms with myself and have had a difficult time with. This
baby now will be the last. I will be looking at permanent options after
the baby is born.
At Wed, 19 Dec 2007, anonymous wrote:
>
>i think lupron harms your immune system for sure,isn't it
>immuno-suppresive?
>
>save your fertility if you want to, you are the only one who can know if
>you want to adopt
>
>Doctors can be brutal, and have rough methods of dealing with things. If
>you feel so strongly about this that you are crying, you have GOT to get
>real second opinions, from experts
>
>Have you ever heard of this doctor? He's supposed to care very much
>about preserving a woman's fertility, and in helping them
>
>http://www.naprotechnology.com/surgical.htm
>
>At Wed, 19 Dec 2007, Jess wrote:
>>
>> Are you saying Lupron caused Lupus?
>>I think people with Endo are mroe likley to have auto-immune diseases,
>>even without Lupron use. Maybe I miss understood you. Anyways I've
>>prepared myself with the realization I might have to adopt and I came to
>>realise that was a blessing all in its own. You already have biological
>>children why don't you adopt? So many children so little homes. I feel
>>you'd be doing an even better thing by adopting then getting pregnant
>>but thats just my opnion.
>>Jessica
>>jessicarozez@hotmail.com
>>
>>At Tue, 18 Dec 2007, anonymous wrote:
>>>
>>>No, I do not want to join your pity party. Did you read the post below
>>>about hyst's, about how they affect your hormones? Do you know you might
>>>have MORE pain post-hyst than before? Have you read Dr Redwine's site
>>>(and no I do not work for him, I read his site).
>>>
>>>Progesterone might help you SO Much with some of these problems,incl
>>>early delivery.
>>>
>>>it's not going to cure the endo, but it sure as heck might help you
>>>
>>>i'll look for some info on doctors
>>>
>>>At Tue, 18 Dec 2007, niki wrote:
>>>>
>>>>ive seen my rheumatologist and gyno. Both agree with my ana pointing
>>>>towards lupus (thanks lupron!) that me getting pregnant would be way to
>>>>risky. I am already a high risk pregnancy due to both kids coming
>>>>early. The risks of me getting pregnant would be passing clots thru the
>>>>placenta to the baby and baby dying in utero. me going into kidney
>>>>failure, or passing blood clots to myself. They both agreed pregnancy
>>>>would be way to risky. So its gonna be planned for the first week of
>>>>Jan. It will be done laprascopic. They will remove uterus and both
>>>>ovaries. He also will burn off any endo that has grown back. I will
>>>>not be put on any hormone replacement as the estrogen feeds endo. This
>>>>saddens me to no end. then to put the icing on the cake i go to leave
>>>>and in the waiting room is a lady with her newborn baby. I lost it. I
>>>>spent 15 min sobbing in my car. I am blessed to have the two babies I
>>>>do have. But I would love to have another baby. Im waiting on dh to
>>>>call at 1130. Anyone wanna join my pity party????
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