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Re: living with chronic pelvic pain
From: La (anonymous@obgyn.net)
Fri Nov 30 21:32:49 2007
I've been in constant pain, EVERY minute of EVERY day for soon to be
6months! and i'm extremely poor and i cannot work due to all my pain and
it's hard to go o doctors, w no money or insurance, but the handful that
i have been to have guessed it's Endo, only giving me birth control
pills to try out and push me away, and i'm always left in tears and
saying wait a minute! what am i suppose to do about my CONSTANT pain
that is ruining my life!!?? I just don't know what to do. Having no
money severely limits my options to get help, and just turning 20yrs old
i'm at a loss of how i'm suppose to go on to LIVE my life like this? I
feel your pain! If you have the means to go to the doctors and search
for help, keep searching and fighting, for you defiently deserve some
quality of life to function. It's horrible. My whole life has been put
on hold, or more so been buried because i sit here everyday in bed and
never move or do anything but watch this stupid damn tv and just think
of all my dreams and desires i should be pursuing instead... but i
can't and it really gets me down, severely down. but there's hope, like
i said, if u can... go go go don't stop trying to get help! maybe you
should see a pain management specialist or something! also... if you're
in Cali, then ummm.. i think there is a Doctor Nezhat in cali
somewhere, and i've read he's suppose to be a good endo specialist!
I'm really sorry that you're in so much pain! I know a thousand sorry's
isn't going to take it away, and it's horrible so many have to suffer.
I really do hope you find relief!
my best wishes for you!
take care,
La Cole
At Thu, 29 Nov 2007, niki wrote:
>
>I too suffer from chronic pelvic pain. However I have yet to find
>something to help. unless you count a worn out heating pad and rice
>pack, along with percocet! With you being in california i would strongly
>recommend dr cook. He is well known for endo treatment. there is also
>a dr piaz in mexico who is fantastic too from what i have heard. good
>luck and i am sorry your in so much pain many many (((HUGS)))
>
>At Thu, 29 Nov 2007, rai wrote:
>>
>>I am trying to find someone that can relate to the difficulties of
>>living with chronic pelvic pain, that also knows what to do to cope with
>>it and how not lose your dreams, goals, and relationships because of it.
>>Someone who has been there, done that, and was able to move on. I was
>>diagnose about 4yrs again with endometriosis and pcos. Along with those
>>I also get chronic hemorrhagic ovarian cyst. I have had to have 2
>>surgeries to remove the cyst because they got to be to painful. That
>>was when they found out that I did have endometriosis and they said that
>>it was probably a big contribute to the pain. My dr had me take the
>>depo lupron shot which only made me more miserable while still
>>continuing to have severe pain. I am now on a list of narcartic but
>>still in so much pain. I feel that I have given up in away since I am
>>constantly in pain, I can't work, if I stand more then 15 min. I am in
>>severe pain to the point that I can't walk. So now I mainly sit in
>>front of the tv with nothing else to do besides make dr. appt. in
>>search for a dr. that will know how to help me. I just don't know what
>>to do. On top of which my entire family is on the east coast and my
>>husband and I are now in CA because of the USMC. I have been so lonely
>>yet to worn out to even try to make new friends (especially since once
>>you finally make a friend they get relocated). I guess that is why I
>>have turned to this forum. I really wish that I can meet someone who
>>understands what I have been and still am going through. Also if anyone
>>know of way for me to deal with this situation better, I am all ears.
>>Thanks for taking the time to read my story. I will appreciate any
>>thing at this point.
>>
>>--
>>Rai
>>
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