ENDO Messages for November, 2007: Re: Who Listens? How Long Does This Take???

Re: Who Listens? How Long Does This Take???

From: anonymous (anonymous@obgyn.net)
Fri Nov 30 21:32:11 2007

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In reply to: Sue: "Who Listens? How Long Does This Take???"

Sue, I am very sorry that you are having all of this. I empathize with you - I have had endo since age 15, two surgeries, and it has now come back with a vengeance. I cant work, have no friends because I cancel a lot and people dont understand, and I am getting dizzy and horrible headaches on top of all the endo crap. Do you exercise? Take vitamins? I find that when I eat right and exercise I feel a lot better. Also, you might want to try pain management to help you deal with the pain in the meantime. Physical therapy and/or massage can help also. If you can keep working, it is better. I tried sooo hard to hold onto my job, but I had to quit. I couldn't even stand up anymore and almost fainted in the middle of a training session I was giving. I wish you all the best. Bear in mind, the better doctors will be in high demand, so you might have to wait a bit for them. if you can, be patient. Stay with this forum and try to stay positive.

Mary

At Fri, 30 Nov 2007, Sue wrote: >
>I can't stand this much longer. It seems that everything I have to wait
>for is taking so long. Tests, tests, doctors that don't listen, doctors
>that don't care, that don't know what they're dealing with... I'm
>losing it.
>
>PAIN - my left ovary feels like it's going to burst. My body temp is
>off, my back aches - yesterday it was my shoulder. I swear with all
>these inconsistent symptoms they must think I'm a crazy person. There's
>nothing I can do about it but wait. Wait for a new doctor, wait for
>pills to work (or make it worse), wait for another pain to start in
>another place in my body! Or wait months for an IUD to start working to
>reduce symptoms? Shooting pains in my butt, my legs, what's next? It
>seems that this illness is taking over my whole body, my whole life. I
>don't want to go to work anymore but I have a great job with good people
>and a nice office even. I can't afford to lose my job but crying at my
>desk just doesn't look so good!
>
>How do we cope and get by every day? Single moms, how do you do it? My
>husband travels constantly and we're alone 60% of the time. At least I
>have a small respite when he is home and will cook and clean a little or
>drive to school.
>
>Just venting again. I have to find a way to make it until I have a
>break from this or maybe find a way to just live with it, if there is no
>break from here on out.

Next message: La: "Re: living with chronic pelvic pain"
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In reply to: Sue: "Who Listens? How Long Does This Take???"

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