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Re: Venting and trying to cope to Sue
From: Lisa (anonymous@obgyn.net)
Thu Nov 29 14:04:07 2007
Hi Sue, I took a look at that article. I find it so amazing how every
little piece of our body is connected somehow, no matter where it is
located. All the pains in so many different places can be caused by one
central area.
I still find my mind going to worse case scenarios with this whole
thing. as they say, we are our own worst enemies. It's hard not to let
your mind go there when most of the time that we are awake (and even
while sleeping) we are in pain. Especially when people directly around
you aren't going through the same experience. Unfortuately, I don't
have much feedback for you about fevers. I did get them while I was on
Lupon. I mainly suffer from migraines and my doctors are beginning to
believe that they may be endo related and not neurological as they
thought years ago. Although, they did find 2 cysts on my brain, they
don't think that is what is bringing on the migraines. It's hard not to
feel like a hypochondriac when everyday there is always something
causing pain or discomfort.
At Thu, 29 Nov 2007, Sue wrote:
>
>The shoulder pain has worsened in direct proportion to the worsening of
>my endo symptoms. Here's an article I found about "diaphragmatic
>endometriosis" that might explain this.
>
>http://www.endometriosistreatment.org/html/reprint9.html
>
>Mine is really bad today, but other symptoms too, and I'm only
>ovulating. I wish I could get the surgery sooner because one of the
>most difficult things about all this is wondering what it all is. My
>mind wanders to the worst case scenario and I need to stop doing that,
>it's too stressful on top of just dealing with the pain and discomfort.
>I'm having fevers too but haven't had feedback from others experiencing
>fevers with endo.
>
>At Thu, 29 Nov 2007, Lisa wrote:
>>
>>I'm so sorry for your pain and discomfort..I have the back pain too and
>>I know how it feels to not want to walk at all..I have bad knees from a
>>car accident years ago and all of this seemed to just intensify the
>>pains..I wanted to ask you about your right shoulder pain because my
>>shoulder started hurting my about 3 years ago (a year before I was
>>diagnosed with endo) and my regular dr told me it was tendonitis..have
>>you been told anything about your shoulder pain? Have you always had it
>>in conjunction with the endo?
>>I hope you feel better soon
>>Lisa
>>
>>At Wed, 28 Nov 2007, Sue wrote:
>>>
>>>After feeling good for about 3 days following the discontinuation of the
>>>birth control pills that made me feel so sick, I'm now back in endo
>>>torture. I really was hoping for a longer break from feeling awful.
>>>Ovulating and my left side is so painful... I don't want to walk. Lower
>>>back pain, and intense burning pain in my right shoulder. Nobody I know
>>>really seems to understand the weird combinations of pains and
>>>discomforts and distress that goes along with this. Any time I share
>>>this with anyone I get the feeling they think I'm just some kind of
>>>hypochondriac. I'm so tired.
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