Re: Endo/Sacrum pain & swelling/depo lupron
From: Debbie (anonymous@obgyn.net)
Wed Nov 28 19:41:43 2007
Hi Marcie, and thanks for replying. I did notice swelling when I had
that bruise but not otherwise and I still have a lot of sacral pain. I
will keep my eye out for another bruise. It was so weird.
I don't think it's a bad idea for you to have another lap, but it should
be with the right doctor. There is no point going to a regular OBGYN
and asking them to perform Excision because they just don't know how.
You need to find a REAL Endo specialist. An Endocrinologist is ONLY an
Endocrinologist, and not and Endo specialist, even if he wants to call
himself one. There are only a handful in the US and you may have to be
prepared to travel to CA or OR. I travelled from CT to ME for mine. My
previous surgery was performed by a very renowned Endocrinologist who
left me in worse pain, but then again, so did my Endo specialist so
there are no guarantees. You definitely do not want to do Lupron if you
had a bad reaction to the pill. If you react badly to Lupron you will
be very sick for a long time. Not good. Excision is only more
complicated in that it requires expert knowledge to perform it, but
depends on the extent of your disease. Get copies of your chart, notes
and photos, if any, and send to Dr Redwine for an evaluation.
Glad to help
--
Debbie
=+=+=+http://www.angryuterus.com
At Wed, 28 Nov 2007, Marci wrote:
>
>At Wed, 28 Nov 2007, Debbie wrote:
>>Hi Debbie,
>
>Thanyou so much for responding. I was wondering, when you had the dark
>bruise on your sacrum, was their also swelling? My sacrum is always
>swollen and always causing me pain. At times, especially right before
>and during my period it causes me severe pain, is extremely swollen and
>black & blue. Are you still experiencing sacral pain? I
>I looked on your website (love the name) and truly found a lot of
>helpful information. I have already had one laprascopy and am now
>thinking that I should not have another. I also dont think depo lupron
>is going to be a wise choice for me. I hated the pill and at least you
>can stop taking that, with the shot it seems rather permanent. I was
>going to see an Endocriniologist(sp?), and the only expert on
>Endometriosis in New Mexico , do you think that is a bad idea? My first
>laproscopy was performed by a resident (the one below attending?) obgyn
>and now I am regretting that. I just started seeing a regular obgyn and
>she is the one who said depo-lupron before another laprascopy.
>I am going to tell her no and ask about having the endo excised. Tell
>me if I'm wrong, when it is excised the surgery is a lot more
>complicated, but the results are better because you have a higher chance
>of removing all the endo? Again, thanks for your help. Have a good
>night!
>>Hi Marci,
>>
>>I had to respond to you because last month my partner noticed a huge
>>black bruise on my sacrum and I just didn't understand where it came
>>from as I hadn't hit myself or fallen. I've been having a ton of sacral
>>pain too, and had Endo excised from both utero-sacral ligaments also.
>>It's a weird coincidence.
>>
>>If your doctor thinks you have deep Endo on your sacrum then you need it
>>excised. Lupron does NOT cure Endo. It may mask symptoms for a while,
>>while giving you a ton of other, more unpleasant, symptoms. It's like
>>exploding a nuclear bomb to kill a colony of ants. Nasty stuff. Do not
>>let any old doctor operate on you....go to an Endo specialist. This can
>>make a BIG difference in your treatment and outcome. Please go to my
>>website and have a look around as you might find the infomration on it
>>useful.
>>
>>--
>>Debbie
>>http://www.angryuterus.com
>>
>>At Tue, 27 Nov 2007, Marci wrote:
>>>
>>>Greetings! I have found much peace in reading stories like my own. It
>>>helps to know that other young women are in as much turmoil over this
>>>debilitating disease (endo) as I am. I had a laprascopy last April, and
>>>I have not found much relief. I am stage 3 and a large mass (endo
>>>tumor) was removed from my sacral -uteral ligaments. Most of my pain
>>>comes from my sacrum... it is always swollen and tender. During my
>>>cycle the area even bruises from the swelling. Has anyone else
>>>experienced this? My gyno thinks I have deep endo directly on my sacrum
>>>and wants me to take depo lupron. I am very scared. I reacted very
>>>badly to the pill a year ago (migraines/increased heart rate). She also
>>>wants me to have another laprascopy after the depo treatments. She said
>>>they can remove layers of skin to get to where the endo is on my sarum.
>>>Help! Don't know what I should do and hoping that someone else might
>>>have the same pain. The pain is so severe I cant function! - Marci/28
>>>yrs
>>>
>>>--
>>>Marci
>>>
>--
>Marci
>
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