ENDO Messages for November, 2007: Re: Endo/Sacrum pain & swelling/depo lupron

Re: Endo/Sacrum pain & swelling/depo lupron

From: Marci (http://anonymous@obgyn.net)
Wed Nov 28 19:06:24 2007

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Reply: Debbie: "Re: Endo/Sacrum pain & swelling/depo lupron"

At Wed, 28 Nov 2007, Debbie wrote: >Hi Debbie,

Thanyou so much for responding. I was wondering, when you had the dark bruise on your sacrum, was their also swelling? My sacrum is always swollen and always causing me pain. At times, especially right before and during my period it causes me severe pain, is extremely swollen and black & blue. Are you still experiencing sacral pain? I I looked on your website (love the name) and truly found a lot of helpful information. I have already had one laprascopy and am now thinking that I should not have another. I also dont think depo lupron is going to be a wise choice for me. I hated the pill and at least you can stop taking that, with the shot it seems rather permanent. I was going to see an Endocriniologist(sp?), and the only expert on Endometriosis in New Mexico , do you think that is a bad idea? My first laproscopy was performed by a resident (the one below attending?) obgyn and now I am regretting that. I just started seeing a regular obgyn and she is the one who said depo-lupron before another laprascopy. I am going to tell her no and ask about having the endo excised. Tell me if I'm wrong, when it is excised the surgery is a lot more complicated, but the results are better because you have a higher chance of removing all the endo? Again, thanks for your help. Have a good night! >Hi Marci,
>
>I had to respond to you because last month my partner noticed a huge
>black bruise on my sacrum and I just didn't understand where it came
>from as I hadn't hit myself or fallen. I've been having a ton of sacral
>pain too, and had Endo excised from both utero-sacral ligaments also.
>It's a weird coincidence.
>
>If your doctor thinks you have deep Endo on your sacrum then you need it
>excised. Lupron does NOT cure Endo. It may mask symptoms for a while,
>while giving you a ton of other, more unpleasant, symptoms. It's like
>exploding a nuclear bomb to kill a colony of ants. Nasty stuff. Do not
>let any old doctor operate on you....go to an Endo specialist. This can
>make a BIG difference in your treatment and outcome. Please go to my
>website and have a look around as you might find the infomration on it
>useful.
>
>--
>Debbie
>http://www.angryuterus.com
>
>At Tue, 27 Nov 2007, Marci wrote:
>>
>>Greetings! I have found much peace in reading stories like my own. It
>>helps to know that other young women are in as much turmoil over this
>>debilitating disease (endo) as I am. I had a laprascopy last April, and
>>I have not found much relief. I am stage 3 and a large mass (endo
>>tumor) was removed from my sacral -uteral ligaments. Most of my pain
>>comes from my sacrum... it is always swollen and tender. During my
>>cycle the area even bruises from the swelling. Has anyone else
>>experienced this? My gyno thinks I have deep endo directly on my sacrum
>>and wants me to take depo lupron. I am very scared. I reacted very
>>badly to the pill a year ago (migraines/increased heart rate). She also
>>wants me to have another laprascopy after the depo treatments. She said
>>they can remove layers of skin to get to where the endo is on my sarum.
>>Help! Don't know what I should do and hoping that someone else might
>>have the same pain. The pain is so severe I cant function! - Marci/28
>>yrs
>>
>>--
>>Marci
>>

--
Marci

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In reply to: Debbie: "Re: Endo/Sacrum pain & swelling/depo lupron"
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