Re: Information Needed !
From: Shannon (anonymous@obgyn.net)
Wed Oct 31 13:09:35 2007
Thanks for the advice. I would love having some help in having my
hormones checked. I have no idea in how to procede.
At Tue, 30 Oct 2007, andrea wrote:
>
>Hi Shannon,
>
>First, I want to ask, were any of your surgeries done by a specialist?
>Maybe you have not had decent relief, because the doc was not able to
>remove the endo properly. I really have a difficult time trusting
>doctors who prescribe Lupron. They have to know how extremely sick it
>can make us....all the terrible side effects. I don't believe for a
>minute that the women who suffer from Lupron are in the minority. I
>think they just become too sick to bother reporting it, or their doctor
>tells them they are the "only ones" who react badly to the drug. Have
>you tried other doctors? I know over the years, so many doctors made me
>depressed, made me lose any kind of hope and were just very uncaring or
>even mean....until my GP helped me and balanced my hormones.
>
>That took away depression and a lot of other unbearable symptoms. I
>too, was thinking about having a hysterectomy because my period is so
>painful and heavy, but I think that was jumping the gun a little bit. I
>have never even had a lap, so I don't have a clue to what's going on in
>there, until my specialist goes in there...Now, I think I am just going
>to have a thorough lap and see how I feel.
>
>I have also joined another group recently, HysterSisters.com, to ask
>them what their experiences were, and they ALL say, that a hysterectomy
>is no cure for endo. It can come back no matter what. Maybe you just
>need your endo excised by a specialist, and get your hormones back to
>normal. When your hormones are out-of whack, you can feel like it's the
>end of the world, literally. Have you ever had your hormones checked?
>That's what I recommend to most women to start, because endo is an
>estrogen dominance disease, and if your estrogen is through the roof
>like mine was, or "dominates" all your other hormones, you can feel
>extremely terrible. Jess, a member of this forum, had her hormones
>tested after being on Lupron, posted them here, and she was still
>estrogen dominant.
>
>The Lupron had nearly diminished all of her hormones of course, but her
>progesterone was nearly zero, and her estrogen was way higher. If the
>progesterone would have been around a 14, then things are balanced, and
>you feel normal. Birth control pills increase estrogen, making estrogen
>dominance even worse, so that is NO solution. I've been told by several
>doctors now, that women with endo should avoid any synthetic estrogens.
>I think your doctor has just been doing all the wrong things for you and
>not offering you any real options.
>
>You need to probably find someone else who can give you some hope and
>not prescribe things that make you feel even worse! Let me know if you
>want help finding a doc who will test your hormones and prescribe
>natural hormones. That's a good place to start, then finding a good
>endo specialist is the next step.
>
>I'm sorry you are depressed. I have been through that too and still get
>depressed when I am in pain, but I refuse to give up this fight. I am
>not ready to give up my reproductive system just yet. I hope you feel
>better, let me know if you would like me to help in finding a better
>doc. You can e-mail me too, if you like. You are not alone in this!
>
>Sincerely,
>Andrea
>
>At Tue, 30 Oct 2007, Shannon wrote:
>>
>>My name is Shannon and I have been diagnosed since 2000. I have had two
>>lap's preformed and been on lupron (hated it) and multiple birth control
>>pills. The pain as you know is extreme and even affects my legs. I am
>>considering having a hysterectomy done but would like some information,
>>guidance, support or any other solutions that may have worked for you.
>>
>>I am severely depressed and could use any help I can get.
>>
>>Thanks!
>>
>>--
>>Shannon
>>
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