ENDO Messages for October, 2007: Re: Hope

Re: Hope

From: Mary (anonymous@obgyn.net)
Tue Oct 30 17:59:24 2007

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In reply to: mdustin: "Hope"

I am sorry you are suffering with this awful disease. I also have been so sick with this myself lately. I do find that the disease changes with my cycle. I am horribly ill with my period and for about the first two weeks after. Then I start to feel a little better for about two weeks until my period starts - and then it starts all over again. I lost my job because of this disease, and now I feel like I am losing my husband and son also because I am always sooo sick. Since my surgery,the pain has been much worse. I am no longer enjoying living and I am praying so hard for some relief.

If you can keep a pain diary - I find it can be very helpful. You really begin to see the connection between your cycle and the pain. I am going to see my doctor on Friday and ask if he will do a complete hysterectomy - I can't deal with this anymore. I have no life at all and I am constantly sick. I hope it is not too bad to recover from - I just had surgery in June, so I might have to wait a bit though.

My prayers are with you.

-- Mary

At Tue, 30 Oct 2007, mdustin wrote: > >I'm on my way...I hope. I have exhausted my gyn doctor, I am now seeing >a GI doctor with whom I'm having a colonoscopy and a gastrointestinal >probe in December. He also requested bloodwork and an ultrasound, which >I had today. The woman who did my ultrasound said that she didn't see >anything unusual, even as she was doing the very light pressing during >the ultrasound I was wincing in pain.It's all focused on my LRQ, pelvis, >back and legs. Anyhow...I've made an appointment to see a new family >physician on this Friday. Hopefully I am on my way to figuring out why >this is all happening. I was very positive and hopefull a week ago, and >now, with my period coming on, I'm back into pain and sadness. I am >very sick to my stomach and I have an area in my back (right side) that >hurts when I sit, lay down, stand, walk, talk, even breathe. This >happend out of nowhere a couple of days ago and has not let up. I still >suspect Endo and/or something to do with the Lupron side effects. I >really don't have any other answers right now. I really wish I did. I >want the pain to stop so I can move forward and stop focusing on this. >It rules nearly every single day of mine...this can't be healthy.

Next message: Mary: "anyone have excision surgery with Dr. Iris Orbuch in NYC?"
Previous message: Jess: "Re: No where no turn!!"
In reply to: mdustin: "Hope"

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