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Re: Information Needed !From: andrea (anonymous@obgyn.net)Tue Oct 30 15:18:02 2007
Hi Shannon, First, I want to ask, were any of your surgeries done by a specialist? Maybe you have not had decent relief, because the doc was not able to remove the endo properly. I really have a difficult time trusting doctors who prescribe Lupron. They have to know how extremely sick it can make us....all the terrible side effects. I don't believe for a minute that the women who suffer from Lupron are in the minority. I think they just become too sick to bother reporting it, or their doctor tells them they are the "only ones" who react badly to the drug. Have you tried other doctors? I know over the years, so many doctors made me depressed, made me lose any kind of hope and were just very uncaring or even mean....until my GP helped me and balanced my hormones. That took away depression and a lot of other unbearable symptoms. I too, was thinking about having a hysterectomy because my period is so painful and heavy, but I think that was jumping the gun a little bit. I have never even had a lap, so I don't have a clue to what's going on in there, until my specialist goes in there...Now, I think I am just going to have a thorough lap and see how I feel. I have also joined another group recently, HysterSisters.com, to ask them what their experiences were, and they ALL say, that a hysterectomy is no cure for endo. It can come back no matter what. Maybe you just need your endo excised by a specialist, and get your hormones back to normal. When your hormones are out-of whack, you can feel like it's the end of the world, literally. Have you ever had your hormones checked? That's what I recommend to most women to start, because endo is an estrogen dominance disease, and if your estrogen is through the roof like mine was, or "dominates" all your other hormones, you can feel extremely terrible. Jess, a member of this forum, had her hormones tested after being on Lupron, posted them here, and she was still estrogen dominant. The Lupron had nearly diminished all of her hormones of course, but her progesterone was nearly zero, and her estrogen was way higher. If the progesterone would have been around a 14, then things are balanced, and you feel normal. Birth control pills increase estrogen, making estrogen dominance even worse, so that is NO solution. I've been told by several doctors now, that women with endo should avoid any synthetic estrogens. I think your doctor has just been doing all the wrong things for you and not offering you any real options. You need to probably find someone else who can give you some hope and not prescribe things that make you feel even worse! Let me know if you want help finding a doc who will test your hormones and prescribe natural hormones. That's a good place to start, then finding a good endo specialist is the next step. I'm sorry you are depressed. I have been through that too and still get depressed when I am in pain, but I refuse to give up this fight. I am not ready to give up my reproductive system just yet. I hope you feel better, let me know if you would like me to help in finding a better doc. You can e-mail me too, if you like. You are not alone in this! Sincerely, Andrea
At Tue, 30 Oct 2007, Shannon wrote:
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