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Re: Need Endo Specialist Wa State For 2nd Opinion
From: anonymous@obgyn.net
Sat Oct 27 21:31:45 2007
I accidentally found your post here by accident. After reading, I
thought I might give you a lead to what might by chance (albeit small)
be the answer to your questions. "Arachnoiditis"
I went 10 years in pain before getting a diagnosis of it. Here is a
link to my support group.
http://health.groups.yahoo.com/group/cofwa
Good Luck
Paul Millick
At Tue, 24 Sep 2002, Michele wrote:
>
>Hi, I have stage 4 endo that was finally diagnosed 9/2001. I have had
>pain/problems since I was in my late teens. I am now 36. I currently
>am seeing an endo specialist that has had me taking Lupron on & off for
>10 months. When I am taking the Lupron I do get some relief from the
>excruiating pain. As soon as I go off the drug the pain returns. The
>specialist is hoping that if I have almost no add back therapy that this
>time the drug will hopefully do it's job and I can be pain free for a
>longer amount of time. The problem, he also suspects that I have
>adhesions & as we all know do not respond to Lupron therapy. He has
>been unwilling to do another lap for a second look (and hopes that
>Lupron will eventually do the trick). He worries that another lap may
>cause more damage. Although he may do another lap if all else fails. It
>is taking so long! He has been treating me for 5 months! My opinion is
>that the 1st lap to diagnose the endo caused the adhesions (if I have
>them). I have been thru a battery of tests for this back pain that
>started after my 1st lap. I did not injure my back, have no history of
>back problems and all of the tests I have gone through show nothing
>related to my back pain. If anything the endo (pelvic/back) pain seems
>to be getting worse instead of better. I used to get 1 good week per
>month. Now I hurt everyday!
>
>I also am seeing a pain specialist due to the tolerence I developed to
>taking short acting opiates for 2 years. I now take an opiate that
>gives small amounts of morphine all day, which only takes edge off and
>is better than nothing.
>
>I lost my job last Jan. due to company down-sizing or so I was told. I
>think that I really lost it due to time taken off work for surgery and
>short-term memory problems (1 of the many lovely side effects of
>Lupron). I have always worked before this lay-off. Since then, I have
>been in too much pain or had too many side effects to return to work.
>
>After the pain/endo is somewhat controlled. I am to go off all drugs,
>try to get pregnant and have been told by 2 doctors to have a hyst.
>
>My hubby tries to be understanding. He doesn't seem to understand the
>memory problems caused by the drugs. He thinks that I make up the
>memory loss to excuse me from my recent lack of responsibility. NOT
>TRUE! I have tried many things to help compensate for my new disability
>and nothing has proved to always work! I write things to remember down
>then forget where I put the note pad or forget to look at the damn thing
>because I forgot that I had something that I was supposed to remember
>for that day! Before this I was extremely organized, had a phenominal
>memory and above all was the responsible one in the family.
>
>I feel sick, tired and really could really use some support! If any of
>you are in simular situations or know of a good doctor in WA state
>please respond.
>
>Thx
>
>P.S. Sorry for the long post. I guess I needed to vent.
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