ENDO Messages for October, 2007: Re: advice on treatment for younger woman

Re: advice on treatment for younger woman

From: niki (anonymous@obgyn.net)
Fri Oct 26 23:27:40 2007

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In reply to: anonymous@obgyn.net: "advice on treatment for younger woman"

hi your story is alot like mine! I was diagnosed at 14 i am 28 now. im fixing to go thru yet another lap! #5! I tried lupron one shot gave me drug induced lupus! I posted more about it on another thread titled lupron what to expect i think was the title. I would highly recommend seeing a specialist! I am copying/pasting my reply to her here as well. Good luck in your decision!

My ob convinced me to do lupron to. However my experience was horrible. not trying to scare you but would also like to advise you to research before you make your decision. Lupron is a temporary bandaid. When treatment begins you may be one of the lucky ones who dont have many side effects. or you could be like the 100's of women who are still suffering today (yahoo group lupronvictims) Dont just rely on the website tap runs for your info. I had my first shot of 6 on 10/2 by 10/4 i was in severe joint pain. once i complained to my ob/gyn he claimed not from lupron. then after my 3rd time calling his office manager/nurse stated that i had reumatoid arthritis and they could no longer treat me. to find another doctor. I went to a new ob/gyn who is doing lap surgery next week. I also saw a reumatologist. my ra panels came back normal one test he did however showed i was in drug induced lupus. his exact words were never ever take another shot. that lupron more than likely was the cause. He also confirmed that lupron caused the joint pain. I would suggest seeing a specialist. I spoke with Heather at Dr Sinervos and Albee office. She is very helpful. They cut out the endo. She too suffered fertility issues for many years and had like 20 something surgeries for her endo. she went to dr albee and after excision surgery she conceived 4 weeks later. she has been painfree for 11 years. the specialists such as dr redwine, albee, sinervo do not use lupron. As soon as I have all my records together I plan on forwarding them to dr sinervo's office for consult. Sorry such a book just wanted to let you know what i have learned! Good Luck in your decision!

At Thu, 25 Oct 2007, anonymous@obgyn.net wrote: >
>I am a 27 year old mother of two children. I was diagnosed with endo.
>at the age of 16. I have also had many other female problems on top of
>this. I have had three laparoscopys over the years and have been on
>birth control with out relief. I am now told to try the lupron therapy
>but am terrified of the prospect. I really don't think the risks are
>worth it. I am already dealing with depression among other things that
>are side effects of the drug. My doctor said I can do a hysterectomy
>but he would rather try this first since I am so young. I have been
>through so much with my female organs that I think I just want to have
>the surgery. I am not planning on having any more children. I am
>worried about having the surgery so young and what will happen to my
>body if I do. I really need to talk to some one who has dealt with this
>stuff at such an early age as myself. I really need advice. This
>illness has consumed my life and is driving me crazy. I am an emotional
>wreck.
>
>--
>misty
>

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