ENDO Messages for October, 2007: Re: Lupron for endo treatment...what should I expect?

Re: Lupron for endo treatment...what should I expect?

From: niki (anonymous@obgyn.net)
Fri Oct 26 23:19:21 2007

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In reply to: Luv2teachk: "Lupron for endo treatment...what should I expect?"

Hi! My ob convinced me to do lupron to. However my experience was horrible. not trying to scare you but would also like to advise you to research before you make your decision. Lupron is a temporary bandaid. When treatment begins you may be one of the lucky ones who dont have many side effects. or you could be like the 100's of women who are still suffering today (yahoo group lupronvictims) Dont just rely on the website tap runs for your info. I had my first shot of 6 on 10/2 by 10/4 i was in severe joint pain. once i complained to my ob/gyn he claimed not from lupron. then after my 3rd time calling his office manager/nurse stated that i had reumatoid arthritis and they could no longer treat me. to find another doctor. I went to a new ob/gyn who is doing lap surgery next week. I also saw a reumatologist. my ra panels came back normal one test he did however showed i was in drug induced lupus. his exact words were never ever take another shot. that lupron more than likely was the cause. He also confirmed that lupron caused the joint pain. I would suggest seeing a specialist. I spoke with Heather at Dr Sinervos and Albee office. She is very helpful. They cut out the endo. She too suffered fertility issues for many years and had like 20 something surgeries for her endo. she went to dr albee and after excision surgery she conceived 4 weeks later. she has been painfree for 11 years. the specialists such as dr redwine, albee, sinervo do not use lupron. As soon as I have all my records together I plan on forwarding them to dr sinervo's office for consult. Sorry such a book just wanted to let you know what i have learned! Good Luck in your decision and congrats on your twin girls!

At Fri, 26 Oct 2007, Luv2teachk wrote: >
>Hi ladies,
>This is my first post here! I have always used fertility friend in the
>past but was hoping to find a larger group of women (sadly) with endo
>and experience with various endo treatments.
>I was dx with endo in 2001.
>1st lap: November 2001 - stage I endo everywhere
>2nd lap: November 2004 - stage II endo everywhere
>TTC for 1 year, then did IVF due to male infertility (and my endo) and
>now have 18 month old twin girls. Started having more endo symptoms 6
>months ago and had an early m/c in September 2007.
>3rd Lap: October 2007 - stage II & some III everywhere
>
>So, DH and I REALLY want more babies and would like to do an FET next
>summer, in the meantime, to help keep the endo from coming back, OB is
>starting me on monthly lupron injections next monday for approx 6
>months.
>
>has anyone had this? Can you fill me in on what to expect????
>
>THANKS A MILLION!

Next message: niki: "Re: advice on treatment for younger woman"
Previous message: anonymous@obgyn.net: "input from other who have taken lupron or got hyst."
In reply to: Luv2teachk: "Lupron for endo treatment...what should I expect?"

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