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Re: advice on treatment for younger woman
From: anonymous@obgyn.net
Fri Oct 26 22:13:39 2007
Thanks for the input. I am sorry you had to go through that. As if
having endo. is not enough right? I am trying to get different
perspectives from other people before I make a decision. So far though
I am not to keen on the idea of the lupron. It really don't seem worth
it. When you have dealt with the pain for so long already and lived
through it why add to it. It is really hard at times though. There are
times I get really down and have a hard time dealing with it. But it
helps to know that you are not alone and have others to relate too. My
doctor recommended this site to me. I think it was a good idea. Thanks
again. I hope things get better for you and you never have to go
through some thing like that again. It is hard enough.
At Fri, 26 Oct 2007, mdustin wrote:
>
>Misty,
>
>I am 24 years old, I have two children as well. I was just diagnosed
>with Endo in March of this year after many many years of dealing with
>the same issues. Anyhow, after my Lap to diagnose Endo, I was still in
>pain...a lot of pain. So, my doctor said that Lupron was the way to go.
>I knew of "some" side effects and was in so much pain at the time that I
>would try anything. So, I agreed to it. I was given 3.75 mg of Lupron
>per month for three months. It did stop my bleeding, however, it did
>not stop my pain. It only made things worse for me for a while. On top
>of the pelvic pain I was already getting, I begain to have
>joint/bone/muscle pain from head to toe; hot flashes; moodiness;
>confusion; eye problems including blurriness and temporary blindness; I
>could not concentrate, drive, type or do anything that required my
>attention...my head was in perminant fog, what I can only describe as
>feeling constantly drugged/drunk. I began having spasms, mostly
>pelvic/bladder, but also experienced them from head to toe.
>
>After the second month of this, I could not take it, I begged my doctor
>for something to help me. I was given an add back therapy (Premerin) to
>eliviate some of the problems. This didn't really kick in untill after
>the third shot. I still had pain untill after I stopped taking the
>shot. It takes just as long that you've taken Lupron for it to get out
>of your system....so I had this going on for almost 3 months after
>taking the last shot. It was a half of a year of this! I also did not
>understand this before taking Lupron. Since then, my pain is still
>there. And my doctor has now told me that there is nothing he can do
>for me. He won't do another Lap and said the only other option for my
>is a Hystorectomy. Now, from what I understand...once Endo is in your
>system...even if you get a hystorectomy, Endo can attach to any organ in
>your body...not just your uterus/ovaries. For that reason...I have
>decided that a Hystorectomy is not the best option for me. I, too, do
>not wish to have any more children, but how awful would it be...to go
>through a hystorectomy and all of the things that does to your
>body...and then have Endo flare up on another part of your body??? A
>hystorectomy does not cure Endo.
>
>Don't get me wrong...I understand where you're coming from...believe me.
>And I know that Lupron has "helped" some women. But, for those women,
>Lupron is a temporary "fix". And for some women...like me...it may do
>more harm than good. It is a decision that we must all make for
>ourselves. Before you decide, I hope you will dig deep into research
>about it before putting it in your body. Ask questions from women who
>have experineced it...get informed. That is your best defense. I am
>here if you should have any questions.
>
>Hoping for painfree days,
>Maggie
>
>At Thu, 25 Oct 2007, anonymous@obgyn.net wrote:
>>
>>I am a 27 year old mother of two children. I was diagnosed with endo.
>>at the age of 16. I have also had many other female problems on top of
>>this. I have had three laparoscopys over the years and have been on
>>birth control with out relief. I am now told to try the lupron therapy
>>but am terrified of the prospect. I really don't think the risks are
>>worth it. I am already dealing with depression among other things that
>>are side effects of the drug. My doctor said I can do a hysterectomy
>>but he would rather try this first since I am so young. I have been
>>through so much with my female organs that I think I just want to have
>>the surgery. I am not planning on having any more children. I am
>>worried about having the surgery so young and what will happen to my
>>body if I do. I really need to talk to some one who has dealt with this
>>stuff at such an early age as myself. I really need advice. This
>>illness has consumed my life and is driving me crazy. I am an emotional
>>wreck.
>>
>>--
>>misty
>>
--
misty
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