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Re: ANYONE ELSE OUT THERE WITH BLADDER & INTESTINAL ISSUES?
From: paula (anonymous@obgyn.net)
Fri Oct 26 20:16:23 2007
Hi Elisa,
I know it has been a while since you wrote this. I have a history of
endo and now i am having problems that remind me of when it was active.
I had the last spots on my bladder. I also had a UTI at the a time of
surgery. I have another one now 3 months later. I have no signs of
infection except odor and blood shown in a urinalysis. I feel stupid
asking the doctor if it could be endo, but i'm hurting and so tired all
the time just like before. How did you get someone to diagnose yours in
the urinary tract?
Thanks,
Paula
At Wed, 19 Jul 2006, Elisa wrote:
>
>Hi There~
>
>Yes, I have bladder issues and retroperitoneal fibrosis. It turns out
>years ago I had a cyst on my right ovary that ruptured it was the size
>of a grapefruit when the found it then it ruputured and it has created a
>big nightmare ever since. That was in the mid 80's and it didn't get
>discovered until 1994. By then both of my ureters where like cement and
>my bladder did not function properly. I could stand up and urine would
>flow out of me without control. I also had and still have
>hydronephrosis and a dialated ureter even after a "Bioari Flap" was
>created in 1998 to by pass and cut out the right ureter and redirect it
>and put it in the middle of my stomach. I had relief for almost 8 years
>and now the flap may have scarring which is to be expected and the right
>kidney can only function at 46% because of the scarring. There is no
>guarantee on these areas but the temp. relief and removal of endo back
>in those areas was a BIG relief without all the colicky attacks and
>various Dr's wanting to remove this and that until all organs where
>removed on the right side and then they said it was in my head. I
>joined an Endo support group who lead me to specialist in 1994 and they
>found it was in my urinary tract which at that time only 3% of women
>could get. I have seen this is so regular now...I know the numbers are
>up. It took them doing a laparotomy or the Nezhat's who specialize with
>scoping in unique ways to get to those ureters and find it. Some only
>look topically which is frustrating since you spend all that money and
>hope they are doing a complete review of all the areas it can go.
>
>I even had great urologist who where not endo specialist looking on
>renal scans and IVP's and could see a slight stricture in the ureter at
>the UPJ (uterine pelvic junction) but thought auh..that is a tight area
>that is to be expected. Well it was kinked back there so I can see how
>they would have thought one thing but it was truly something else that
>needed further review.
>
>Hope this helps.
>
>--
>Elisa :)
>
>At Wed, 19 Jul 2006, Angie wrote:
>>
>>Are you taking a narcotic for the pain because some of the symptoms you
>>are talking about, specifically itching, can be a side effect of
>>hydrocodiene and the like.
>>
>>At Tue, 18 Jul 2006, PAMELA wrote:
>>>
>>>To anyone who will listen,
>>>
>>>I just had Laser Ablation for Stage II Endometriosis. The only thing
>>>that the surgery got rid of was my pain in my pelvic region. However,
>>>all of the problems that I was having before my surgery are still here.
>>>They are actually worse. I could have dealt with the pain. It is all
>>>these problems together that I just have a hard time dealing with. Has
>>>anyone out there found that they are having alot of other issues & they
>>>think it might be related to the Endometriosis & that they may have it
>>>in other areas of the body? Do you think that if you already have Endo
>>>in one place isn't it very likely that it is somewhere else if you start
>>>having other problems? My Reproductive Endocrinologist did not even
>>>check anywhere else in my body when he did the surgery. He said that
>>>Endo is only in the Reproductive region. How do I know that I may not
>>>have it in the bladder or the intestines? I have been having alot of
>>>abdominal pain (of which no one can tell me the cause) & urinary
>>>problems (alot of urine retention with urinalysis that shows blood cells
>>>but negative urine cultures). The past 3 days I have been having
>>>horrible middle back pain that radiates into my chest (just below my rib
>>>region). The pain is pretty bad & I do not know what is causing that. I
>>>just had an Endoscopy & Colonoscopy & they did a Biopsy on both with
>>>showed nothing at all wrong with me. Everything was completely normal.
>>>They did have to Dilate my Esophagus. It had a stricture & they could
>>>not tell me why I had a stricture (They said it was normal for my
>>>age---I am only 32 years old---how is that normal). Of course I also
>>>have the severe fatigue. I also have pretty severe hot flashes at times
>>>& my hair has been falling out pretty bad for the past 5 years or so. At
>>>times I have severe nausea & dizziness (I have not had that as much
>>>though since I had the surgery). I also get this itching all over my
>>>body. It is not in any specific area. I just itch & itch & cannot stop
>>>itching. I have no idea what causes that. I have been told 2 times
>>>that I have a cyst on my ovary (about 3.0 cm) but everytime the CT is
>>>done in the ER they tell me it is not causing my pain. Of course, I
>>>have the pain too. My pelvic pain is gone since I had the surgery. Now,
>>>I am still having pain in my belly button. Sometimes I have sharp pains
>>>that shoot through my sides too. Does anyone else have any or some of
>>>these symptoms? Was it Endo? If not, what was it? I am just feeling so
>>>bad all the time & I want some answers (I am in the process of maybe
>>>going to the CEC to get surgery, but right now I do not have the money
>>>or the time saved up from work so I am just having to sit around & live
>>>with this for the time being).
>>>
>>>Thank god for this forum:)
>>>Pamela
>>
>>--
>>Personally I'm always ready to learn, although I do not always like being taught.
>><br>-Sir Winston Churchill
>>
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