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Re: advice on treatment for younger womanFrom: mdustin (anonymous@obgyn.net)Fri Oct 26 08:28:27 2007
Misty, I am 24 years old, I have two children as well. I was just diagnosed with Endo in March of this year after many many years of dealing with the same issues. Anyhow, after my Lap to diagnose Endo, I was still in pain...a lot of pain. So, my doctor said that Lupron was the way to go. I knew of "some" side effects and was in so much pain at the time that I would try anything. So, I agreed to it. I was given 3.75 mg of Lupron per month for three months. It did stop my bleeding, however, it did not stop my pain. It only made things worse for me for a while. On top of the pelvic pain I was already getting, I begain to have joint/bone/muscle pain from head to toe; hot flashes; moodiness; confusion; eye problems including blurriness and temporary blindness; I could not concentrate, drive, type or do anything that required my attention...my head was in perminant fog, what I can only describe as feeling constantly drugged/drunk. I began having spasms, mostly pelvic/bladder, but also experienced them from head to toe. After the second month of this, I could not take it, I begged my doctor for something to help me. I was given an add back therapy (Premerin) to eliviate some of the problems. This didn't really kick in untill after the third shot. I still had pain untill after I stopped taking the shot. It takes just as long that you've taken Lupron for it to get out of your system....so I had this going on for almost 3 months after taking the last shot. It was a half of a year of this! I also did not understand this before taking Lupron. Since then, my pain is still there. And my doctor has now told me that there is nothing he can do for me. He won't do another Lap and said the only other option for my is a Hystorectomy. Now, from what I understand...once Endo is in your system...even if you get a hystorectomy, Endo can attach to any organ in your body...not just your uterus/ovaries. For that reason...I have decided that a Hystorectomy is not the best option for me. I, too, do not wish to have any more children, but how awful would it be...to go through a hystorectomy and all of the things that does to your body...and then have Endo flare up on another part of your body??? A hystorectomy does not cure Endo. Don't get me wrong...I understand where you're coming from...believe me. And I know that Lupron has "helped" some women. But, for those women, Lupron is a temporary "fix". And for some women...like me...it may do more harm than good. It is a decision that we must all make for ourselves. Before you decide, I hope you will dig deep into research about it before putting it in your body. Ask questions from women who have experineced it...get informed. That is your best defense. I am here if you should have any questions. Hoping for painfree days, Maggie
At Thu, 25 Oct 2007, anonymous@obgyn.net wrote:
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