Re: Scared of having Endo & needing support!
From: andrea (anonymous@obgyn.net)
Fri Oct 26 05:29:59 2007
Hey there,
Saw that Dana was recommending Fibrovan to you. Just to let ya know,
the main ingredient that is supposed to disolve the fibroids,
Nattokinase, can be purchased at any healthfood or vitamin store for a
lot less money! I buy it at the vitamin shoppe for $20 a bottle. The
other ingredients are just licopene and EGCG (Green Tea). I think the
fibrovan is $40, and they make you buy 2-3 bottles at a time. I've been
taking it for 2 months now, but have not noticed a difference in pain or
bleeding. I also just found a great site if you are looking for a new
doctor. Women who have been to them write reviews and every state is
listed, with doctor reviews. Take a look & hope you get to feeling
better!
http://www.suggestadoctor.com/index.php
Take care,
Andrea :)
At Fri, 26 Oct 2007, La wrote:
>
>yeah that fibrovan is expensive, but you said it does work well for you?
>looks like ima have to save some money, even tho i don't have a job,
>haha. dang ur friend has an "ED" that really sucks, yeah mine started
>as anorexia and i weighed like 90lbs, then it slowly switched into full
>blown bulimia, binging and purging multiple times daily, that whole
>world is really horrible, i wish i could offer some advice for ur
>friend. I mean it's a miracle, because i don't have an eating disorder
>anymore, for about 4 to 5 months i haven't binged and thrown up maybe
>but 2 or 3 times and i haven't at all for a couple months, i'm doing
>really good, not to mention i weight 120-125, i could stand to lose
>about 10 but it'll be okay. I never never never thought i'd be able to
>stop, i thought i knew, i was going to die from my eating disorder, and
>i accepted it as that, i didn't think there was any way i'd ever change.
>i just stopped, i don't know how, but i did. I'd slowly try to stop my
>urges to binge and purge, so when i'd go like 3 days without doing it, i
>realized how nice it was not to have the anxiety that came along with
>knowing i'd have to puke after i ate so much. i didn't wana feel like
>that anymore and started thinking how much i hated stuffing myself and
>having to puke, and i just finally gave it up.
>I don't think anybody can really help somebody who suffers with an
>eating disorder, i think the person isn't going to change or stop it
>until they realy feel ready, and are willing to give it up, and i
>finally after nearly 5 yrs. was ready to give it up, and i FREEKING
>DID! but now i have a new disorder to claim right? i have chronic pelvic
>pain and possible ENDO, yay!! haha but ne ways Dana, you already know
>you're absolutely fabulous! and amazing! =D soooo thanks again! =)
>La Cole
>
>At Thu, 25 Oct 2007, Dana wrote:
>>
>>At Thu, 25 Oct 2007, La wrote:
>>>La Cole,
>>
>>I'm so happy I could give you some helping advice. You can only get
>>Fibrovan online. It is expensive and a lot of the things in the pill
>>you can find in everyday foods. I know tomatoes are one of the things
>>that carries the same main ingredient. lol don't go nuts and eat a ton
>>of tomatoes. I'm so sorry to hear you have an eating disorder on top of
>>things. I know what its like to be slapped in the face with life. One
>>of my best friends has a severe eating disorder. I don't know what
>>you're going through with it, but I can empathize.
>>I live my life day to day. I wake up, put my feet on the ground and
>>say, "ok, lets have a good day." I work for a supermarket right now and
>>I go to community college part time. I have a hard time going to school
>>full time. When I get sick I can't keep up. But, slow and steady wins
>>the race. I have missed a descent amount of work throughout this year.
>>They're really used to me being sick. They know when its really bad. I
>>do wear two medical bracelets or at least keep them in my pocket at all
>>times. One is for endo and the other is for migraines.
>>I have a wonderful boyfriend, we have a happy relationship and he
>>supports me 110%. I go out, have fun with friends and live my life.
>>^__^ You have to live. You can be strong too chicky. Just take it one
>>day at a time and don't think "omg today I could have really bad pain".
>>You'll drive yourself nuts. I know I suggested a lot of different
>>dietary things to you. Be smart before buying all this stuff and taking
>>it, do the research and make sure it will be right and true for you and
>>your body. Talk about this with your doctor too. They might have some
>>advice for you. : )
>>
>>>Hey Dana, thanks for your time to try and make me relax about this.
>>>Where do you get Fibrovan? can you only get it online?
>>>wow 13 until now, that's crazy. I know i'm like freaking out, it just
>>>sucks and you obviously know way more than I. You're so strong, what do
>>>you do as far as life, like a job or school or whatever else...?
>>>
>>>well i'm going to try the things you told me and hope it helps, because
>>>my life can't just stop, i need to DO something, it's so hard to be
>>>dependable for a job or whatever else, when i don't know how my pain is
>>>going to be tmrw or within 5 hrs, it changes a lot. I guess i'm so down
>>>because i've been depressed for yrs and after almost 5 yrs of having an
>>>eating disorder i've finally have let it go and wanted to be happy and
>>>LIVE for once, then this happens and i feel like i'm getting slapped in
>>>the face, ha, so i guess that has a lot to do with my freaking out...
>>>but thanks again! you're amazing!
>>>=)
>>>La Cole
>>>
>>>At Wed, 24 Oct 2007, Dana wrote:
>>>>
>>>>At Tue, 23 Oct 2007, La wrote:
>>>>>Hey Girl,
>>>>
>>>>Sweetie, you need to calm down, take a deep breath. Ok? Endo does not
>>>>mean the end of your life or the end of your world. Everyone on this
>>>>forum has been through their own hell and back with this disease. But
>>>>you need to just accept it. It is what it is, you have it. It may suck
>>>>with pain, and be frustrating, but you have to put this in persepective.
>>>>Its not cancer, its not heart disease, its not diabetes, its not
>>>>glaucoma, its not AIDS, its not anything that will kill you.
>>>>My pain is horrible too, but there are things you can do to help
>>>>yourself in finding some relief. I'm taking a natural supplement called
>>>>Fibrovan. It helped me so much in lessoning my pain. (http://www.fibrovan.com)
>>>>Also, change your diet. Google foods that are good for endo. Exercise!!
>>>>You can help by doing a few sit ups or walking or being a little active.
>>>>There are help lines you can call that help give you ideas in pain
>>>>management with endo. These people are trained pros and will be there
>>>>when you need to just talk. They are a wonderful emotional
>>>>support.(http://www.endometriosisassn.org)(phone:1414-355-2200)<---endo
>>>>association
>>>>And don't be shocked when over the counter meds stop working. lol NONE
>>>>of them work for me at this point. I've lived with endo so far for 9-10
>>>>years of my life. (age 13-22/23)Find what works for you. ^__^ Manage
>>>>your disease, don't let your disease manage you.
>>>>
>>>>>Hi, i'm new here...
>>>>>I'm really depressed and i need some support, some insight on what i'm
>>>>>going through, anybody have any GOOD things to say about endo or pelvic
>>>>>pain...?? I'm not sure i have endo but i'm guessing that's it.
>>>>>
>>>>>for the past few years i've had bad menstrual cramps, but midol took
>>>>>care of it, then within the last couple yrs they've gotten worse, and
>>>>>midol no longer worked, so i went to my dr and he gave me naproxen,
>>>>>which was my miracle drug for cramps. Now my periods are very SEVERE
>>>>>that naproxen isn't working as well and i literally scream and cry at
>>>>>the top of my lungs for hours and can't get out of bed for a couple
>>>>>days... not to mention my flow is pretty heavy.
>>>>>
>>>>>I feel like i'm so complicated...
>>>>>It all started 4 months ago, i started getting pains in my pelvic region
>>>>>and started getting real sharp pains during sex here and there then all
>>>>>the time. Then my pelvic pain became CONSTANT, and after a month i went
>>>>>to the hospital because i'm poor and i have no job or anything, so i
>>>>>went there for fast help, and they told me i had PID and i was really
>>>>>constipated, so they gave me stuff to make me shit, haha.. and
>>>>>antibiotics... a week later i felt great.... no more pain. UNTIL, i
>>>>>got my period, severe cramps and mid cycle it brought that same aching
>>>>>pelvic pain back!!!! andddd i got the test results back and i never had
>>>>>an STD so i didn't have PID!!! i went back to the hosp, and they gave me
>>>>>an ultra sound for cysts and stuff, and nothing but a small cyst on my
>>>>>right ovary... they just have me antibiotics again and said it's
>>>>>probably just an infection... took it, 2 weeks later, perfect! no
>>>>>pain!!! .... UNTIL my period came, and AGAIN it brought back constant
>>>>>pelvic pain! and here i am... i went to my family dr, a rude snobby
>>>>>gynecologist, and i went to a surgeon, who basically told me he can't
>>>>>find anything wrong with me and they don't know what i should do, not
>>>>>exactly what i wanted to hear.In the last month 1/2 my pain has shifted
>>>>>from the left low side to the right side, and it just switches all the
>>>>>time and i've been recently getting sharp pains but not in my pelvic
>>>>>area, it's more up by my belly button, and they'll last for minutes,
>>>>>sometimes many hours...
>>>>>
>>>>>I'm just so scared, I feel like my life is ruined, i feel dead inside.
>>>>>There's so much i want to do in life and i feel so stomped in the
>>>>>ground, i almost don't wana live. I have a great bf i've been with for
>>>>>over a year and i feel like all my bitching and crying and not having
>>>>>sex hardly is affecting us, even though he says it's okay and he loves
>>>>>me and wants to be with me forever, i just feel so empty and depressed.
>>>>>what am i suppose to do? i can't hold a job, i have nothing, i was about
>>>>>to move to Florida for a glamour modeling career and now, i have
>>>>>nothing. i lay in bed all day everyday and wish i could have my life
>>>>>back! I think i have Endo, and i'm SO SCARED! with all i read about the
>>>>>treatments and pain, i'm sooooo scared! 4 months of constant pelvic pain
>>>>>is about to drive me nuts, i think i'm starting to lose my mind, i can't
>>>>>imagion going through this for years! I'M SO SCARED (crying) i don't
>>>>>know how you women do it! I try to be strong and go out sometimes, but
>>>>>some days, (most days) the pain is so bad and i get constipated here and
>>>>>there and that causes more pain and i just don't understand! i'm so
>>>>>frustrated!
>>>>>IS THERE really any HOPE out there???
>>>>>
>>>>>I don't know how much longer i can stand being in pain every minute of
>>>>>every day and nite... 4 months of it is sending me to the edge! I have
>>>>>no pain killers to even HELP a lil...
>>>>>
>>>>>I have an appt with a NEW gynecologist Monday oct. 29th & i'm worried.
>>>>>i HOPE and WISH she can help me! i want a life, i'm turning 20 next
>>>>>month and i have nothing to claim for myself and i desire so much.
>>>>>
>>>>>Does it sound like ENDO to you guys? I mean i duno what else it could
>>>>>be, doctors can't find anything else... sigh.
>>>>>
>>>>>I KNOW i've written you all a book, forgive me for that, but i just
>>>>>needed to tell my story to some people who actually UNDERSTAND what i'm
>>>>>going through. So many people don't think it's serious, but it really
>>>>>is! it's affecting me mentally and psyhically, and i'm having nervous
>>>>>break downs every week! and i can't believe i've had to wait A MONTH for
>>>>>this appt with the gyn. it's just outstanding, "yeah i'm in constant
>>>>>pain but sure, i can just wait 30 more days to get checked out, no
>>>>>problem," heh!! it's like are u ppl serious!!?
>>>>>
>>>>>It just baffles me how shitty this disease is and how there's really no
>>>>>GREAT treatments for it, it's unbelievable!
>>>>>I swear if i ever get well, and do become successful at modeling and
>>>>>that whole industry, i'd give a lot of money to research for Endo, they
>>>>>really need to find something that's successful for women who go through
>>>>>this. THIS is NO WAY to LIVE!
>>>>>
>>>>>THANKS TO YOU ALL who TOOK THE TIME TO READ ALL OF MY SOB STORY!!!
>>>>>it means a lot!
>>>>>thank you!
>>>>>La Cole
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