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Re: Scared of having Endo & needing support!
From: La (anonymous@obgyn.net)
Fri Oct 26 02:26:01 2007
yeah that fibrovan is expensive, but you said it does work well for you?
looks like ima have to save some money, even tho i don't have a job,
haha. dang ur friend has an "ED" that really sucks, yeah mine started
as anorexia and i weighed like 90lbs, then it slowly switched into full
blown bulimia, binging and purging multiple times daily, that whole
world is really horrible, i wish i could offer some advice for ur
friend. I mean it's a miracle, because i don't have an eating disorder
anymore, for about 4 to 5 months i haven't binged and thrown up maybe
but 2 or 3 times and i haven't at all for a couple months, i'm doing
really good, not to mention i weight 120-125, i could stand to lose
about 10 but it'll be okay. I never never never thought i'd be able to
stop, i thought i knew, i was going to die from my eating disorder, and
i accepted it as that, i didn't think there was any way i'd ever change.
i just stopped, i don't know how, but i did. I'd slowly try to stop my
urges to binge and purge, so when i'd go like 3 days without doing it, i
realized how nice it was not to have the anxiety that came along with
knowing i'd have to puke after i ate so much. i didn't wana feel like
that anymore and started thinking how much i hated stuffing myself and
having to puke, and i just finally gave it up.
I don't think anybody can really help somebody who suffers with an
eating disorder, i think the person isn't going to change or stop it
until they realy feel ready, and are willing to give it up, and i
finally after nearly 5 yrs. was ready to give it up, and i FREEKING
DID! but now i have a new disorder to claim right? i have chronic pelvic
pain and possible ENDO, yay!! haha but ne ways Dana, you already know
you're absolutely fabulous! and amazing! =D soooo thanks again! =)
La Cole
At Thu, 25 Oct 2007, Dana wrote:
>
>At Thu, 25 Oct 2007, La wrote:
>>La Cole,
>
>I'm so happy I could give you some helping advice. You can only get
>Fibrovan online. It is expensive and a lot of the things in the pill
>you can find in everyday foods. I know tomatoes are one of the things
>that carries the same main ingredient. lol don't go nuts and eat a ton
>of tomatoes. I'm so sorry to hear you have an eating disorder on top of
>things. I know what its like to be slapped in the face with life. One
>of my best friends has a severe eating disorder. I don't know what
>you're going through with it, but I can empathize.
>I live my life day to day. I wake up, put my feet on the ground and
>say, "ok, lets have a good day." I work for a supermarket right now and
>I go to community college part time. I have a hard time going to school
>full time. When I get sick I can't keep up. But, slow and steady wins
>the race. I have missed a descent amount of work throughout this year.
>They're really used to me being sick. They know when its really bad. I
>do wear two medical bracelets or at least keep them in my pocket at all
>times. One is for endo and the other is for migraines.
>I have a wonderful boyfriend, we have a happy relationship and he
>supports me 110%. I go out, have fun with friends and live my life.
>^__^ You have to live. You can be strong too chicky. Just take it one
>day at a time and don't think "omg today I could have really bad pain".
>You'll drive yourself nuts. I know I suggested a lot of different
>dietary things to you. Be smart before buying all this stuff and taking
>it, do the research and make sure it will be right and true for you and
>your body. Talk about this with your doctor too. They might have some
>advice for you. : )
>
>>Hey Dana, thanks for your time to try and make me relax about this.
>>Where do you get Fibrovan? can you only get it online?
>>wow 13 until now, that's crazy. I know i'm like freaking out, it just
>>sucks and you obviously know way more than I. You're so strong, what do
>>you do as far as life, like a job or school or whatever else...?
>>
>>well i'm going to try the things you told me and hope it helps, because
>>my life can't just stop, i need to DO something, it's so hard to be
>>dependable for a job or whatever else, when i don't know how my pain is
>>going to be tmrw or within 5 hrs, it changes a lot. I guess i'm so down
>>because i've been depressed for yrs and after almost 5 yrs of having an
>>eating disorder i've finally have let it go and wanted to be happy and
>>LIVE for once, then this happens and i feel like i'm getting slapped in
>>the face, ha, so i guess that has a lot to do with my freaking out...
>>but thanks again! you're amazing!
>>=)
>>La Cole
>>
>>At Wed, 24 Oct 2007, Dana wrote:
>>>
>>>At Tue, 23 Oct 2007, La wrote:
>>>>Hey Girl,
>>>
>>>Sweetie, you need to calm down, take a deep breath. Ok? Endo does not
>>>mean the end of your life or the end of your world. Everyone on this
>>>forum has been through their own hell and back with this disease. But
>>>you need to just accept it. It is what it is, you have it. It may suck
>>>with pain, and be frustrating, but you have to put this in persepective.
>>>Its not cancer, its not heart disease, its not diabetes, its not
>>>glaucoma, its not AIDS, its not anything that will kill you.
>>>My pain is horrible too, but there are things you can do to help
>>>yourself in finding some relief. I'm taking a natural supplement called
>>>Fibrovan. It helped me so much in lessoning my pain. (http://www.fibrovan.com)
>>>Also, change your diet. Google foods that are good for endo. Exercise!!
>>>You can help by doing a few sit ups or walking or being a little active.
>>>There are help lines you can call that help give you ideas in pain
>>>management with endo. These people are trained pros and will be there
>>>when you need to just talk. They are a wonderful emotional
>>>support.(http://www.endometriosisassn.org)(phone:1414-355-2200)<---endo
>>>association
>>>And don't be shocked when over the counter meds stop working. lol NONE
>>>of them work for me at this point. I've lived with endo so far for 9-10
>>>years of my life. (age 13-22/23)Find what works for you. ^__^ Manage
>>>your disease, don't let your disease manage you.
>>>
>>>>Hi, i'm new here...
>>>>I'm really depressed and i need some support, some insight on what i'm
>>>>going through, anybody have any GOOD things to say about endo or pelvic
>>>>pain...?? I'm not sure i have endo but i'm guessing that's it.
>>>>
>>>>for the past few years i've had bad menstrual cramps, but midol took
>>>>care of it, then within the last couple yrs they've gotten worse, and
>>>>midol no longer worked, so i went to my dr and he gave me naproxen,
>>>>which was my miracle drug for cramps. Now my periods are very SEVERE
>>>>that naproxen isn't working as well and i literally scream and cry at
>>>>the top of my lungs for hours and can't get out of bed for a couple
>>>>days... not to mention my flow is pretty heavy.
>>>>
>>>>I feel like i'm so complicated...
>>>>It all started 4 months ago, i started getting pains in my pelvic region
>>>>and started getting real sharp pains during sex here and there then all
>>>>the time. Then my pelvic pain became CONSTANT, and after a month i went
>>>>to the hospital because i'm poor and i have no job or anything, so i
>>>>went there for fast help, and they told me i had PID and i was really
>>>>constipated, so they gave me stuff to make me shit, haha.. and
>>>>antibiotics... a week later i felt great.... no more pain. UNTIL, i
>>>>got my period, severe cramps and mid cycle it brought that same aching
>>>>pelvic pain back!!!! andddd i got the test results back and i never had
>>>>an STD so i didn't have PID!!! i went back to the hosp, and they gave me
>>>>an ultra sound for cysts and stuff, and nothing but a small cyst on my
>>>>right ovary... they just have me antibiotics again and said it's
>>>>probably just an infection... took it, 2 weeks later, perfect! no
>>>>pain!!! .... UNTIL my period came, and AGAIN it brought back constant
>>>>pelvic pain! and here i am... i went to my family dr, a rude snobby
>>>>gynecologist, and i went to a surgeon, who basically told me he can't
>>>>find anything wrong with me and they don't know what i should do, not
>>>>exactly what i wanted to hear.In the last month 1/2 my pain has shifted
>>>>from the left low side to the right side, and it just switches all the
>>>>time and i've been recently getting sharp pains but not in my pelvic
>>>>area, it's more up by my belly button, and they'll last for minutes,
>>>>sometimes many hours...
>>>>
>>>>I'm just so scared, I feel like my life is ruined, i feel dead inside.
>>>>There's so much i want to do in life and i feel so stomped in the
>>>>ground, i almost don't wana live. I have a great bf i've been with for
>>>>over a year and i feel like all my bitching and crying and not having
>>>>sex hardly is affecting us, even though he says it's okay and he loves
>>>>me and wants to be with me forever, i just feel so empty and depressed.
>>>>what am i suppose to do? i can't hold a job, i have nothing, i was about
>>>>to move to Florida for a glamour modeling career and now, i have
>>>>nothing. i lay in bed all day everyday and wish i could have my life
>>>>back! I think i have Endo, and i'm SO SCARED! with all i read about the
>>>>treatments and pain, i'm sooooo scared! 4 months of constant pelvic pain
>>>>is about to drive me nuts, i think i'm starting to lose my mind, i can't
>>>>imagion going through this for years! I'M SO SCARED (crying) i don't
>>>>know how you women do it! I try to be strong and go out sometimes, but
>>>>some days, (most days) the pain is so bad and i get constipated here and
>>>>there and that causes more pain and i just don't understand! i'm so
>>>>frustrated!
>>>>IS THERE really any HOPE out there???
>>>>
>>>>I don't know how much longer i can stand being in pain every minute of
>>>>every day and nite... 4 months of it is sending me to the edge! I have
>>>>no pain killers to even HELP a lil...
>>>>
>>>>I have an appt with a NEW gynecologist Monday oct. 29th & i'm worried.
>>>>i HOPE and WISH she can help me! i want a life, i'm turning 20 next
>>>>month and i have nothing to claim for myself and i desire so much.
>>>>
>>>>Does it sound like ENDO to you guys? I mean i duno what else it could
>>>>be, doctors can't find anything else... sigh.
>>>>
>>>>I KNOW i've written you all a book, forgive me for that, but i just
>>>>needed to tell my story to some people who actually UNDERSTAND what i'm
>>>>going through. So many people don't think it's serious, but it really
>>>>is! it's affecting me mentally and psyhically, and i'm having nervous
>>>>break downs every week! and i can't believe i've had to wait A MONTH for
>>>>this appt with the gyn. it's just outstanding, "yeah i'm in constant
>>>>pain but sure, i can just wait 30 more days to get checked out, no
>>>>problem," heh!! it's like are u ppl serious!!?
>>>>
>>>>It just baffles me how shitty this disease is and how there's really no
>>>>GREAT treatments for it, it's unbelievable!
>>>>I swear if i ever get well, and do become successful at modeling and
>>>>that whole industry, i'd give a lot of money to research for Endo, they
>>>>really need to find something that's successful for women who go through
>>>>this. THIS is NO WAY to LIVE!
>>>>
>>>>THANKS TO YOU ALL who TOOK THE TIME TO READ ALL OF MY SOB STORY!!!
>>>>it means a lot!
>>>>thank you!
>>>>La Cole
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