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Re: See a specialist!!!!From: anonymous@obgyn.netThu Oct 25 16:38:35 2007
At Thu, 25 Oct 2007, Bennerebe wrote: > >I was just wondering what kind of specialist you saw? > >At Thu, 25 Oct 2007, Lisa S. wrote: >> >>I am sure this is all common knowledge for the majority of you reading >>this, but if you are diagnosed with Endo...see a specialist!!! >> >>I was diagnosed with Endo less than two months ago. I was having >>surgery for what they thought to be an infection that turned out to be >>severe endo. At my post-op appointment my doctor (who I loved...thought >>she was great) told me that I have endo and that I need to get pregnant >>before I turn 30 if I ever want to have children and that I will >>probably need to have a hysterectomy in my mid 30ies. I am 26 years >>old, not married and not ready to have children just yet but definitely >>want a family someday. >> >>I scheduled a specialist appointment after my aunt suggested I get more >>information and a "second opinion". My aunt said that women are more >>likely to get a second opinion on their cars than they are on >>themselves. We are too trusting and don't want to hurt our doctor's >>feelings. Sounds so ridiculous writing that. THIS IS MY BODY NOT HERS. >> >>I had my specialist appointment Monday. I gave my new doctor my records >>and surgery photos. He gave me soo much information and mentioned how >>irresponsible it was for my previous doctor to give me dates and times. >>Nobody can say for sure when I will or won't be able to have children. >>He did notice that she didn't remove all of my endo and told me that I >>have stage 4 and need to take aggresive action in order to preserve my >>fertility. He also kept assuring me that I NEVER had an infection and >>that this was not my fault. I could not have prevented this and >>probably have had it since I was a teenager and misdiagnosed my whole >>life. >> >>Anyway, he thinks I have some endo in my left tube (they removed my >>right tube during my surgery) and some behind my uterus and possibly >>some on my rectum...He told me that he is going to work with me to make >>sure that the medication I am on effectively suppresses any further >>growth of endo and is willing to try new things and change meds if what >>I am on does not work. I will also probably need another surgery in >>less than six months and that will be determined by what he sees in a >>sonogram/ultrasound in 2 months. >> >>I can't explain how nice it is having a doctor answer all my questions >>and care about tackling my situation as aggresively as possible. I left >>my post-op feeling confused and bewildered by my new diagnosis and now I >>am still scared and sad but I know that I have a doctor who will take >>care of me and cares about my wellbeing. >> >>-- >>Lisa >> >-- >~Rebecca > I really believe that you need to see a specialist about Endo and adhesions and scar tissue. I was one of the mothers that thought I did not have time for Mommy to be sick. I was told by my doctor that I needed to go ahead and have a hysterectomy, I was finished having kids and had endo really bad. So we went ahead and scheduled it. At that time I was working at a job that I loved and really enjoyed. So I took the time off work and had that done. It wasn't 3 months later that I started have serve right pelvic pain again. So he said lets do a Lap surgery on you to see if you have more endo, scar tissue or adhesions. We did that, again taken off time from work. After that everything seemed to be going great. 3 months again and the same thing happens, at this time my boss just could not let me take off anymore time, so I lost that job(bring more depression). Jump forward to having 9 to 10 surgries as they call them "clean up", Of course with an awesome new doctor, that is tring very hard to help, but also at the same time still has no new answers, and with me at the end of my rope!! Now the pain is coming quicker after surgries, at the longest that I have been without having anything done is 2 months, What can I do I need help!!!!!!
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