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See a specialist!!!!From: Lisa (anonymous@obgyn.net)Thu Oct 25 13:09:38 2007
I am sure this is all common knowledge for the majority of you reading this, but if you are diagnosed with Endo...see a specialist!!! I was diagnosed with Endo less than two months ago. I was having surgery for what they thought to be an infection that turned out to be severe endo. At my post-op appointment my doctor (who I loved...thought she was great) told me that I have endo and that I need to get pregnant before I turn 30 if I ever want to have children and that I will probably need to have a hysterectomy in my mid 30ies. I am 26 years old, not married and not ready to have children just yet but definitely want a family someday. I scheduled a specialist appointment after my aunt suggested I get more information and a "second opinion". My aunt said that women are more likely to get a second opinion on their cars than they are on themselves. We are too trusting and don't want to hurt our doctor's feelings. Sounds so ridiculous writing that. THIS IS MY BODY NOT HERS. I had my specialist appointment Monday. I gave my new doctor my records and surgery photos. He gave me soo much information and mentioned how irresponsible it was for my previous doctor to give me dates and times. Nobody can say for sure when I will or won't be able to have children. He did notice that she didn't remove all of my endo and told me that I have stage 4 and need to take aggresive action in order to preserve my fertility. He also kept assuring me that I NEVER had an infection and that this was not my fault. I could not have prevented this and probably have had it since I was a teenager and misdiagnosed my whole life. Anyway, he thinks I have some endo in my left tube (they removed my right tube during my surgery) and some behind my uterus and possibly some on my rectum...He told me that he is going to work with me to make sure that the medication I am on effectively suppresses any further growth of endo and is willing to try new things and change meds if what I am on does not work. I will also probably need another surgery in less than six months and that will be determined by what he sees in a sonogram/ultrasound in 2 months. I can't explain how nice it is having a doctor answer all my questions and care about tackling my situation as aggresively as possible. I left my post-op feeling confused and bewildered by my new diagnosis and now I am still scared and sad but I know that I have a doctor who will take care of me and cares about my wellbeing.
-- Lisa
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