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AndreaFrom: Michelle (anonymous@obgyn.net)Wed Oct 17 15:32:37 2007
At Wed, 17 Oct 2007, andrea wrote: > >I would like to see all the research studies too, but I think the real >results are all hidden. I know that document that Maggie found was >probably buried, so that no one would ever find it, but luckily someone >did! To know that there were falsified studies printed is very >disturbing. > >Pulmonary embolism has been a side effect reported to the FDA for a long >time now from Lupron. >http://www.geocities.com/lupronfacts/sideeffects.html#Women > >I think either problems from this drug are very underreported, because >people are simply too sick to mess with it, or the FDA is in the pocket >of TAP. A billion dollar company can buy anything or anyone that they >want. I would not put it past them. If the FDA knew about the rat & >pituitary study, as reported in the testimony, why was that not included >in the Lupron warning leaflet? Hardly anyone receives the leaflet, which >is an FDA regulation of this drug. They have never followed up on that >and doctors do not follow that rule, or no one would want to take it! > >All doctors say that women with all these terrible illnesses are in the >minority, but I don't believe that. I think that is just what the >doctors want us to believe. Lupron dominates the market when it comes >to ghrh antagonist drugs, because TAP offers doctors the biggest >incentives of all the drug companies. Notice that you don't hear nearly >as much about Zoladex, made by Astra-Zeneca, it is the same kind of >drug. EVERY doctor who I've seen, except for one over the last 20 >years, has pushed me to take LUPRON and nothing else. That is scary. > >My period pain is terrible too, I get a 102 fever, can hardly make it to >the bathroom and will faint if I walk more than 20 feet. It hurt just >to insert a tampon. That lasts about 3 days...but the pain women like >you go through every day is unimaginable to me. > >Doctors would never give me pain meds until I found my general >practitioner when I was 30. All of them wanted to give me a >hysterectomy or Lupron, though. It just does not make sense. My GP is >the ONLY doc who has helped me and I have spent thousands on pills and >docs over the years. Why is it so impossible to get help for endo? The >only doc who I would really trust to do surgery on me is Redwine in >Oregon. He is totally against gnrh drugs, but I can't afford him. > >I thought I trusted the specialist I have been seeing to do my surgery, >because he did not push Lupron on me and was super nice, but I think he >gave me preferential treatment, because an ex-boyfriend of mine who he >plays golf with sent me to him. I sent a friend of mine to him, >thinking he would be good to her too, but he wants her to do 6 more >months of Lupron and she just did 7 mos of it! That is beyond FDA >regulations!! She has bad fibromyalgia. So now, I think he's a total >creep too. Can't he see how sick she is? I guess his greed is more >important than her health. I told her how sorry I was, that I did not >think he would do that. So now, I am just going to stay on pain >managment for a while til I figure something out. I feel like I'm at >square one again. He is supposed to be a great surgeon, but how can I >trust someone to operate on me, who is knowingly making thier patients >sick? >At Wed, 17 Oct 2007, Michelle wrote: >> >>Andrea, thanks. I do have a lot of health problems and I'm not sure why >>they have developed. My problems began with severe endometriosis, >>followed by autoimmune disease and Raynauds. The pain and inflammation >>in my abdomen was so severe that if I was exercising at the time my >>period began, I would faint. I have spent many a day in bed and missed >>much school and work. The devastating impact of this disease has been >>largely ignored by the medical establishment for decades, unfortunately. >> >>In the years after the surgeries and Lupron, I developed a pituitary >>microadenoma, adrenal insufficiency and the pulmonary hypertension. I >>don't know why I have developed these additional conditions. There is >>no clear cause at this time. As for Lupron, the main thing I know for >>sure is that it did not stop or even delay the progression of my >>endometriosis. Three years after having nine months of shots I was back >>in the operating room and extensive adhesions and damage to left ovary >>and fallopian tube, which had to be removed. So I'm not at all sold on >>its effectiveness as a treatment for endometriosis. Aside from being >>completely ineffective, the next concern is the side effects. My >>pituitary tumor has developed at a time when it would be very possible >>that Lupron caused it to develop. I'm intrigued by the reference in the >>testimony to monkey studies that showed pituitary microadenomas as a >>result of exposure to Lupron. I'd like to see those studies. I wonder >>how many other women with endometriosis who have taken Lupron have >>developed pituitary tumors. This needs to be researched. Along these >>lines, I believe that if anyone thinks that Lupron has harmed them in >>this way or any other way, you should report your concerns to the FDA. >>Here is the link: >> >>http://www.fda.gov/opacom/backgrounders/problem.html >> >>If several people have developed pitutiary microadenomas, for instance, >>if we all report the problem, the FDA will see a trend and look into it. >> >>I also think that genetics could play a key role in making certain >>people more susceptible to developing illnesses such as endometrisosis >>and pituitary microadenomas. All of this needs to be researched. I >>just wish more researchers were interested in this disease. >> >>Take care all, >> >>-- >>Michelle >> >>At Wed, 17 Oct 2007, andrea wrote: >>> >>>At Wed, 17 Oct 2007, andrea wrote: >>>> >>>>Michelle, >>>> >>>>I'm so sorry for all you are going through, I can't imagine how hard it >>>>must be. When I first joined this site, I thought my problems were bad, >>>>but to see so many women on here sick from Lupron makes my cramps seem >>>>minor. I've had tons of doctors pressure me to take it, but I've always >>>>refused. I really do want to fight for all of you with Lupron >>>>illnesses, I just hope I can. Please e-mail me, so we can keep in touch >>>>& I can keep you updated on things. >>>> >>>>Take care of yourself, >>>>Andrea >>>> >>>>At Tue, 16 Oct 2007, Michelle wrote: >>>>> >>>>>Hmmm...very interesting. I developed my pituitary microadenoma in the >>>>>years after taking Lupron in 1997. The idea that Lupron could lead to >>>>>pituitary disease sounds very plausible to me because the drug so >>>>>artificially and abnormally hyperstimulates the pituitary gland to >>>>>produce FSH that I'm sure damage could easily occur to this tiny gland. >>>>>Further, I have been told I have a "nonfunctional" pituitary adenoma >>>>>which tumors typically arise from abnormal cells of the gonadotroph >>>>>variety. The tumor has grown 4mm in size and is almost a macroadenoma >>>>>now, growing at a rate of 1mm+ per year. I will probably have to have >>>>>pituitary surgery some year soon. Also, I have adrenal insufficiency >>>>>that I believe is due in part to this pituitary tumor, which has almost >>>>>killed me three times now with adrenal crises. With a nonfunctional >>>>>adenoma, you can end up with adrenal problems, thryoid problems, >>>>>gynecologic problems, etc., such as mine because the abnormal tissue in >>>>>the pituitary continues to grow over time, displacing the normal >>>>>pituitary tissue and that is how you end up with a virtual >>>>>hypophysectomy because the normal pituitary cells are destroyed and >>>>>replaced by the abnormal ones and the pituitary therefore loses the >>>>>ability to produce the pituitary stimulating hormones such as ACTH, FHS, >>>>>TSH, GH, and so one, that stimulate the adrenals, thyroid, etc. >>>>> >>>>>I truly believe that the link between Lupron and pituitary problems >>>>>should be studied further. Also, I think that researchers and doctors >>>>>should be much more attentive to the side effects of long-term use of >>>>>estrogen/progestin pills for endometriosis. I believe that I have >>>>>suffered a lot of damage from these pills. For years, they caused >>>>>numbness in my arms, sharp head pains, and other such symptoms. I have >>>>>evidence of small infarcts, liver damage, and pulmonary hypertension >>>>>now. I believe the pills played some role in much of this, based on my >>>>>symptoms. Doctors should not dismiss offhand, as mine did, the >>>>>complaints of a patient with regard to such symptoms as I now know they >>>>>are quite serious. Focal nodular hyperplasia in the liver, sharp head >>>>>pain and evidence of microvascular disease in the brain, Raynauds, heart >>>>>strain, nonspecific ischemia, shortness of breath, and so on, should all >>>>>be taken seriously and not dismissed. Instead, doctors are waiting for >>>>>a major stroke or heart attack to occur before they take any complaints >>>>>seriously. By then, it's too late. >>>>> >>>>>Stay vigilent everyone. And thanks for the post. Interesting. >>>>> >>>>>At Tue, 16 Oct 2007, andrea wrote: >>>>>> >>>>>>These quotes are from the PDF that Maggie found of testimony of a nurse, >>>>>>Lynne Millican, to the Senate, who became ill from Lupron 10 years ago. >>>>>> >>>>>>I also spoke with Emily Page, the woman who started the Lupron petition, >>>>>>and she also believes there is a cover-up going on when it comes to >>>>>>Lupron. She sued TAP, but was given very little money, because her >>>>>>doctor denied her problems were caused by the Lupron. She is still very >>>>>>sick today. >>>>>> >>>>>>Please read these outtakes, and see what you think....falsifying 80% of >>>>>>info in 4 Lupron studies? That sounds like a cover-up to me.... >>>>>> >>>>>>pg 54: TAP has been declared a criminal enterprise based upon its scheme >>>>>>with physicians and billing fraud and kickbacks and they just paid the >>>>>>largest fine in history at the time, $875 million. >>>>>> >>>>>>pg 58: The internet posts of women identify the badgering, and coercion, >>>>>>and manipulation, and threats used to convince women into taking Lupron >>>>>>for a variety of indications—many refer to their doctor as trying to >>>>>>‘‘shove it down [their] throat’’. >>>>>> >>>>>>pg 58: I would later learn that the director of this IVF clinic, Dr. >>>>>>Andrew Friedman, had been a lead Lupron investigator, had received >>>>>>numerous grants and funds from Lupron’s manufacturer, Takeda Abbott >>>>>>Pharmaceuticals (TAP), and had published extensively on Lupron. Dr. >>>>>>Friedman was ultimately found guilty of falsifying and fabricating >>>>>>approximately 80 percent of the data in four Lupron studies, two of >>>>>>which had been published and were subsequently retracted. Friedman had >>>>>>‘‘altered and fabricated information in patient medical records, >>>>>>falsified research notes by changing dates and changing and adding >>>>>>text’’, and fabricated notes and fabricated patients for clinical visits >>>>>>that had not taken place. >>>>>> >>>>>>pg 61: The profoundly significant and despicable thefts (‘‘conversion’’, >>>>>>‘‘sharing’’) of women’s ova and embryos by Drs. Ricardo Asch, Sergio >>>>>>Stone and Jose Balmaceda at the University of California at Irvine >>>>>>(Regents; Press; 1995) should be a serious reminder to the utter (and >>>>>>anesthetized) ease with which such menacing maneuvers can be executed. >>>>>>(And Dr. Asch had co-authored studies of Lupron, ‘‘which was kindly >>>>>>provided by Abbott’’ [Guerrero, 1993]). The contemptible violations of >>>>>>stealing women’s eggs and embryos should highlight the profitability of >>>>>>schemes to procure women’s eggs and embryos for use in research and/or >>>>>>covert ‘re-sale’. Dr. Asch reportedly ‘left his office daily with >>>>>>briefcase stuffed with thousands of dollars’. And attention should be >>>>>>directed to the drug protocol(s) used—medications administered >>>>>>‘‘deliberately’’ ‘‘so there would be a surplus of eggs’’ (Challender, >>>>>>1995). Who is exerting any oversight over the field of reproductivity? >>>>>>Who would exert oversight over therapeutic cloning—this same industry? >>>>>> >>>>>>pg 63: Women are told that Lupr. QUIT
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