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Re: Saw my doctor this morning TO ALL
From: ada (anonymous@obgyn.net)
Fri Oct 12 19:28:21 2007
Lisa,
I agree with you. I think like in life there are good people and bad
people. I do think most doctors want to help people and do not want to
cause harm. I myself never took Lupron but did take bc pills for
years.I do not think that my past dr's who did suggest lupron or the
never ending bc pills did it to hurt me, I think they were doing the
best they could. They were ob/gyn's which is where most of us start.
There are not enough specialist and honestly not enough interest in the
disease to come up with more solutions. In the meantime, it is up to
each woman to decide what is best for her.
At Fri, 12 Oct 2007, Lisa H, wrote:
>
>Great answer D. I agree totally.
>
>I think that the point I have been trying to make with my recent
>postings is:
>
>There is not a great solution to this problem at this time. We have to
>accept that, complain to the right people, and deal with the problems of
>endometrosis through the available options- surgery, lupron, pain
>management- whatever works best. Getting angry with doctors,
>pharmacetical reps., and whoever else that we come in contact with when
>dealing with this is not going to improve the situation. Try to think
>positively..... what if there were NO options? Pain management is a
>good one for some people, and I think that is the way I am going to stay
>until they come up with something better.
>
>For Gods sake- this isn't cancer, or AIDS, or something that has no hope
>at this time. It's painful and disruptive and frustrating, but so is
>life. I thank god for the fact that anti-depressants and pain meds are
>available! There was a time in recent history when they werent and we
>dont have to live in that time, fortunate for us.
>
>I am sorry for all of those women that have suffered from the Lupron
>side effects, I am really, really sorry for those that suffer with
>Lupron problems on top of the endo pain. My heart goes out to them, and
>I am thankful that I am not a Lupron victum. But I dont believe that it
>is reasonable to jump to the conclusion that doctors are conspiring
>against patients- I think the truth is the most doctors do the best that
>they can and when patients refuse treatment, they feel as helpless and
>frustrated as we do. There may be a few unscrupulous doctors out there
>profiting from prescribing medications that are inappropriate, but to
>throw a blanket over all doctors is just ludicrous.
>
>--
>Lisa H.
>
>At Fri, 12 Oct 2007, D wrote:
>>
>>I know it's difficult right now, but in a way this doctor did you a
>>favor - he was honest with you and admitted that he's run out of
>>options! Some doctors will attempt multiple surgeries, recommend
>>more/other hormonal treatments, and otherwise run a woman through all
>>kinds of things that don't help. He's not pushing for a hysterectomy,
>>either, which would be very premature at this point - I'm just trying to
>>point out that things could actually be worse! Not to take away from the
>>problem that you now face, finding a better doctor who can help. But no
>>one can blame you - your own doctor has told you he's got nothing, it's
>>definitely time to move on.
>>
>>I really can't imagine that he doesn't think your bleeding is
>>gyn-related - um, excuse me, is the blood coming from some orifice you
>>never mentioned? Because I always assumed it was coming from your vagina
>>- if that is not gynecological, what is?? Please do continue to look for
>>a good endo doctor, I think any good family doctor would send you that
>>way!
>>
>>Get your records, too - it's always good to have a copy of your records,
>>and now he absolutely knows you'll be seeing another doctor so it's not
>>going to raise any eyebrows - and send them to a specialist! The one
>>thing you might ask this guy for is a referral to a pain management
>>doctor, he really ought to do that for you. If he doesn't, talk to a
>>primary care doctor and/or whoever you see next - you need to reclaim
>>whatever quality of life you can, and pain doctors are very good at
>>that.
>>
>>You know what kind of doctor you need, don't let this man's lack of
>>expertise stop you from getting the help you deserve! It's okay to be
>>upset - just know that help is out there! The sooner you move forward,
>>the faster you'll be on the way to feeling better, in my opinion.
>>
>>At Fri, 12 Oct 2007, mdustin wrote:
>>>
>>>Well, I'm pretty sure that I've exhausted all options with my current
>>>doctor. I saw him this morning for a one month follow up because he
>>>started me on anti-depressants. For those who are unfamilliar with my
>>>story, I have now been bleeding for 35 days since starting bleeding post
>>>Lupron. So, I told him about that, told him about the bleeding and when
>>>the bleeding occurs during the day, etc.
>>>
>>>He told me that he would up my antidepressants and to continue taking my
>>>birth control pills for another month and see how that goes. (I've been
>>>through this before, I bled like this for the past 3 years except while
>>>on Lupron) He then asked me about my pain, which is still there, mostly
>>>on my right side and down my legs and my back. He said that there
>>>wasn't much he could do for me...that I wouldn't like Lupron....(What??)
>>>I informed him that I've just finished my treatment with Lurpon...he
>>>stuttered and said, well, um, yea, you wouldn't like that.
>>>
>>>Then he said that there are other options, but not ones that he would do
>>>at this point in time, surgical options. That affect my fertility. I
>>>informed him that I do not want any more children, but do not wish to go
>>>for that option anyways, due to my feeling that it wouldn't work.
>>>
>>>Then, he was about to send me on my way and I asked him to give me a
>>>hormone level check. He rolled his eyes and said that there was no
>>>point...continued on to tell me how there is no "normal" hormone level
>>>because they constantly change. And even if they were able to figure
>>>out what was lacking...there's no real way to change that. I said,
>>>well, doesn't estrogen dominance explain many of my symptoms, and he
>>>said, possibly, but there is no real way to tell.
>>>
>>>So, I asked him about a good family doctor, because he believes that
>>>none of my symptoms (including bleeding and pelvic pain) are not gyn
>>>related...he gave me a few names.
>>>
>>>I did everything I possibly could do not to scream out at the top of my
>>>lungs. Not to sign a release form for my records right then and there.
>>>I probably should have but thought I would be hasty...maybe, maybe not.
>>>I mean, what other option do I really have?
>>>
>>>Sorry to be so long with this...I'm upset.
>>
>>--
>>Find an endo specialist in the ERC's EndoDocs group:
>>http://groups.yahoo.com/group/EndoDocs/
>>
>>Try an excellent endo support group:
>>http://groups.yahoo.com/group/erc/
>>
>>Info on pain management:
>>http://www.painfoundation.org/
>>
--
Ada
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