ENDO Messages for October, 2007: Re: porting Lupron??

Re: porting Lupron??

From: andrea (anonymous@obgyn.net)
Thu Oct 11 16:46:30 2007

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Maggie,

Last night, I sat and wrote a letter to the woman who started the Lupron petition. I asked her how old this petition was, what the outcome of it was and why there only were 400 signatures on it. I told her that I believe that TAP goes so far as to somehow cover up how many people are hurt by this. I think maybe they can hack into sites and delete some of the signatures or something. I don't believe that there is an accurate number anywhere of how many people are sick from this and my goal is to somehow find that number!!

Every Lupron victims site only has a few hundred people on it, when if the reports are true, that there were over 2 million Luporn prescriptions written just from 1997-1999, then there should be way more people complaining of illnesses. There was a phone number on that article that I posted to the FDA and to TAP.

I don't believe for a minute, that the numbers are s so low! I don't think it's a matter of them NOT KNOWING, it's their bread and butter and they want to somehow keep hidden all the reports of injury due to this drug. That, and I think people become too sick after taking it, and feel they can't fight. Emily, the woman I wrote to, was in a class action law suit against TAP, well, here was her reply back to me:

-- Andrea, thanks for writing! I never did anything with the petition because I just couldn't get enough signatures. I know countless women who've had a horrible time after taking Lupron, but for whatever reason, I just couldn't get more signatures. I don't even remember the website I had it on (refresh my memory please!). It's been around 5 years. I also was part of a class action suit (with four other women from Florida) against TAP Pharmaceuticals for how sick it made us, but our doctors wouldn't back us up, so we ended up settling for VERY little money. I'm afraid at this point, I don't have a lot of energy left to fight. However, if you come up with any great ideas, I'm game to help in any way I can. I'm happy to discuss the lawsuit further with you so you know what we're up against and can plan ahead. Anyway, I'm sorry I'm not more enthusiastic - it's been a long hard week and I'm worn out. I don't in any way want to discourage you. I hope you WILL take up this cause, and as I said, I'm happy to help if you do. I just can't LEAD the fight any longer. Let me know if you need me to lend a hand with anything.

Love, EM Group Leader EndoCenter of St. Petersburg

HERE IS THE PETITION:

http://www.ipetitions.com/petition/Depot-Lupron/signatures-1.html

Gosh, all I wanted was to find a website of women who were suffering with endo like me to talk to when I was sad, but after reading about so many of you that have suffered due to Lupron, it makes me feel lucky that I always refused it. My stupid cramps are nothing compared to what many of you go through everyday. I could have easily been a victim of it too, though. I think about this night and day and want to find a way to make TAP and the doctors pay and make them admit of their wrongdoing.

At Thu, 11 Oct 2007, mdustin wrote: > >The more time that goes by, mind you, I have only been 4 months off of >Lupron...I would like to report my side effects to someone...TAP...the >FDA, someone. Has anyone done so? Reported their side effects, >continued or not to someone other than their doctors? I am curious about >who I should contact and how to go about doing it. > >Possibly, part of the problem is that TAP is unaware of just how many >women and men mind you, have had serious side effects from Lupron. >Therefor, why should they do anything about it? Atleast, that is what is >in their warnings. Adverse side effects are hardly mentioned, and only >mentioned that it happens very infrequently. With all that I have read >from the women that it has effected, I wonder if anyone has reported to >the correct people or not? I know that i have not yet and am interested >in doing so. > >Does anyone have any advice on how to do so?

Next message: andrea: "Re: Help regarding Insurance Company! Redwine surgery"
Previous message: Sarah: "Re: Positive Lupron Experiences? anyone?"
In reply to: mdustin: "Reporting Lupron??"
Next in thread: Lisa: "Re: porting Lupron??"
Reply: Lisa: "Re: porting Lupron??"
Reply: Kristy: "Re: porting Lupron??"
Reply: Kristy: "Re: porting Lupron?? (this is the corrected post)"

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