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Re: area's of pain, is it Endo? to D
From: mdustin (anonymous@obgyn.net)
Wed Oct 10 10:51:39 2007
I am being sent for a GI consult on the 25th of this month. My gyn told
me that he doesn't think any of my current symptoms are gyn related and
further more, suspects IBS. That's all well and good, I suppose, but
IBS doesn't cause bleeding for 33 days, does it? I am going through with
the GI consult to rule anything out.
As far as the pain I still feel, my doctor informed me that either it
could be referred pain and/or I might have had 'microscopic endo' that
he could not see. Which is why he gave me Lupron. I still have this
pain though. It plagues me every single day and only worsens but does
not go away. I have had this pain since my c-section over 3 years ago.
It feels like a tennis ball on my right side....not to the touch though,
just like it's inside of me...hard to explain. I used to think it was
my ovary, I really don't know what is right there inside,whether it's my
ovary, my appendix...I don't know...but whatever it is, it feels very
hard and like it's going to burst. It feels this way especially when I
have my period, which is right now, even though I'm hardly bleeding
today.
At Wed, 10 Oct 2007, D wrote:
>
>>My question I guess is 1.) was all of your Endo found on the area(s)
>>that you actually had pain.
>
>Yes, and no. I had most pain on my left side but also on my right side
>and just everywhere. My doctor found an adhesion in that area on the
>left and removed it. I had small, diffuse endo scattered all over my
>lower pelvis - cul-de-sac, sidewalls, ligaments, etc. - and he had to
>remove quite a bit of peritoneum to get it all. I also had pain in my
>legs before surgery, and removing the endo got rid of that pain, too.
>
>>2.) what else could this pain be from if
>>it's not my Endo? Like I have said before, my doctor (gyn) has decided
>>that my pain is not gyn related, but suspects GI instead. Besides my
>>appendix (which you would think would have burst by now if that was the
>>problem), what else is there that would be the reason for the constant
>>pain?
>
>It could be referred pain, as you mentioned before, but I suspect more
>that your doctor simply missed some of the disease. Have you had a GI
>workup? If not, what are they waiting for? At my first lap (June 2006)
>the obgyn who did it couldn't find ANYTHING she thought was endo, didn't
>even do any biopsies. A year later, the endo specialist found the
>disease all over the place and removed it all. In between, I was sent
>for a GI workup, which ruled out any causes in that area - if you
>haven't had a colonoscopy/endoscopy, you probably should - it's
>important to rule that stuff out. My GI doctor also found a couple
>small ulcers I got due to taking NSAIDs, and although they weren't a
>source of pain they surely would have become one if they hadn't been
>found and treated!
>
>Lots of doctors do not know how to recognize all the many appearances
>endo can take, and they simply don't see it. That's one of the biggest
>reasons I think it is so important to go to the very best endo excision
>specialist you possibly can.
>
>If your doctor burned the endo off, rather than excising it, he may have
>left endo behind - they often can't burn deep enough to get it all. Have
>you considered sending your records to a specialist for a review? They
>may be able to answer some of these questions for you.
>
>--
>Find an endo specialist in the ERC's EndoDocs group:
>http://groups.yahoo.com/group/EndoDocs/
>
>Try an excellent endo support group:
>http://groups.yahoo.com/group/erc/
>
>Info on pain management:
>http://www.painfoundation.org/
>
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