ENDO Messages for October, 2007: Re: area's of pain, is it Endo?

Re: area's of pain, is it Endo?

From: D (anonymous@obgyn.net)
Wed Oct 10 10:38:25 2007

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: mdustin: "Re: area's of pain, is it Endo? to D"
Previous message: D: "Re: the reason doctors push Lupron - Lupron Victims group"
In reply to: mdustin: "area's of pain, is it Endo?"
Next in thread: mdustin: "Re: area's of pain, is it Endo? to D"
Reply: mdustin: "Re: area's of pain, is it Endo? to D"

>My question I guess is 1.) was all of your Endo found on the area(s)
>that you actually had pain.

Yes, and no. I had most pain on my left side but also on my right side and just everywhere. My doctor found an adhesion in that area on the left and removed it. I had small, diffuse endo scattered all over my lower pelvis - cul-de-sac, sidewalls, ligaments, etc. - and he had to remove quite a bit of peritoneum to get it all. I also had pain in my legs before surgery, and removing the endo got rid of that pain, too.

>2.) what else could this pain be from if
>it's not my Endo? Like I have said before, my doctor (gyn) has decided
>that my pain is not gyn related, but suspects GI instead. Besides my
>appendix (which you would think would have burst by now if that was the
>problem), what else is there that would be the reason for the constant
>pain?

It could be referred pain, as you mentioned before, but I suspect more that your doctor simply missed some of the disease. Have you had a GI workup? If not, what are they waiting for? At my first lap (June 2006) the obgyn who did it couldn't find ANYTHING she thought was endo, didn't even do any biopsies. A year later, the endo specialist found the disease all over the place and removed it all. In between, I was sent for a GI workup, which ruled out any causes in that area - if you haven't had a colonoscopy/endoscopy, you probably should - it's important to rule that stuff out. My GI doctor also found a couple small ulcers I got due to taking NSAIDs, and although they weren't a source of pain they surely would have become one if they hadn't been found and treated!

Lots of doctors do not know how to recognize all the many appearances endo can take, and they simply don't see it. That's one of the biggest reasons I think it is so important to go to the very best endo excision specialist you possibly can.

If your doctor burned the endo off, rather than excising it, he may have left endo behind - they often can't burn deep enough to get it all. Have you considered sending your records to a specialist for a review? They may be able to answer some of these questions for you.

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Info on pain management: http://www.painfoundation.org/

Next message: mdustin: "Re: area's of pain, is it Endo? to D"
Previous message: D: "Re: the reason doctors push Lupron - Lupron Victims group"
In reply to: mdustin: "area's of pain, is it Endo?"
Next in thread: mdustin: "Re: area's of pain, is it Endo? to D"
Reply: mdustin: "Re: area's of pain, is it Endo? to D"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: