Re: hystorectomy at 23?
From: andrea (anonymous@obgyn.net)
Tue Oct 9 16:36:22 2007
Hi Stephanie,
Don't let doctors scare you. When I was in my twenties, that's one of
very few options they would offer me as well, but there are other things
out there to try. Doctors always said Lupron or Hysterectomy? I felt I
had no options either. It just depends on the doctor. If they don't
make you feel hopeful and don't offer you any real options, you just
need to be strong and find another doctor. I've been through 12 doctors
over the last 20 years for this.
Finally, 5 years ago, my general practitioner could see that I was
hopeless when it came to gynecologists and the way they were treating
me, so he said he would do all that stuff for me from then on. I was so
glad!! He tested my hormones like I had wanted all the other doctors to
do, but they refused and it turned out that I had a major hormone
imbalance!
That's what I had suspected for so long, but docs would not help me. He
put me on a natural progesterone and I went from having 19 nasty
symptoms down to 4, which is a lot more bearable. I still have severe
periods, with 2-3 days usually of BAD pain, but most of the other junk
went away. I have to take Vicodin or Lortab for those few days and
can't work, but I finally found someone who helped and who listened and
you can too.
Unfortunately, there are not many caring doctors out there and it does
take a while to find one who really wants to help you. Keep looking and
don't give up! You do not need a hysterectomy. Keep your head up and
hang in there!
Take care,
--
Andrea
At Tue, 9 Oct 2007, Stephanie wrote:
>
>thanks for the info i had always thought that with a hysto you are
>pretty much done with the endo but when you explained it it does make
>sense that it will come back and can attatch to anything.... there is
>actually a study going on about endo but where i am at there are no drs
>in my area doing the study.... my husband heard it on the radio and i
>went on the net to sign up i cant remember where to go but when i do i
>will let everyone know and hopefully there will be someone that can be
>in the study.... thanks stephanie
>
>At Tue, 9 Oct 2007, mdustin wrote:
>>
>>Stephanie,
>>I am in your situation as well, as far as our ages; although my doctor
>>said he would never consider doing a hystorectomy on me any time soon.
>>And I think that is wise. A hystorectomy does NOT cure Endo. My cousin
>>opted for a hystorectomy and still has problems and pain due to Endo.
>>She said that it did help eliviate some of the pain and problems, but
>>not all of them.
>>
>>Once Endo is in your system, it can spread and attach to just about any
>>organ in your body. This is why there needs to be more information
>>about this nasty disease out in the public...as tabboo as some may think
>>it is....it is a very nasty disease that effects millions of women! The
>>first step is to make everyone aware and the second is for researchers
>>to work harder on finding a cure and some treatments that will actually
>>help us untill that time comes. That is what I am holding out for. I
>>couldn't imagine going through having a hystorectomy at our age and then
>>only to find that it spread somewhere else.
>>
>>I know how you're feeling...believe me. The thought has crossed my mind
>>too about having a hystorectomy. But I really think that it's smarter
>>to not to so at such young ages. I'm here if you ever need someone to
>>talk to.
>>
>>~Maggie
>>
>>At Tue, 9 Oct 2007, Stephanie wrote:
>>>
>>>Hello my name is Stephanie I am 23 and was diagnosed with endo in 2005.
>>>my first surgary was aug 2005 and was just in for my 2nd on sept 12
>>>2007. first time i had stage 4 endo this time they said i was around 2
>>>or 3. ive been having problems with my left ovarie and they said that
>>>they could take it out. well at 23 with no kids yet i wasnt really
>>>wanting to hear that. then he also told me that the ovarie being gone
>>>was not going to fix the problem obviously.... so he said that probably
>>>the next time i am looking at a total hystorectomy.... AT 23!!!! ????
>>>anyone else been told this this young??? obviously i have a little while
>>>to have a kid before i do this but i still aint sure i want to go
>>>through all that at 24 or even 25.. any advice or anything??? What do i
>>>do to try to avoid having this done at such a young age do i keep going
>>>through laps and hope nothing else goes wrong??? Anything will help so
>>>please i will take any ideas or remidies.... thanks so much stephanie
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