Re: Me again!! Doc now telling me to go elsewhere if I don't try Lupron or PT
From: andrea (anonymous@obgyn.net)
Fri Oct 5 20:49:36 2007
Hey there, Teresa
Here is the 9-page leaflet that patients are supposed to receive before
being given Lupron injections:
http://www.hemingways.org/GIDinfo/drugdata/lupron_depot.pdf
I don't think she even gave you the right leaflet! In her e-mail, she
tells you to read the package insert and that's all it says? Is HOT
FLASHES?? Then she says, "I'm not sure where you're hearing about these
other adverse effects?"
Well, HERE YA GO, B*^*&&!
This leaflet I have says, Cardiovascular System: Palpitations, Syncope,
Tachycardia, Hypotension, Pulmonary Embolism...and many more not having
to do with the heart.
And she wants you to take it, knowing you have a pace maker??!! Crazy
B*%ch!
Sorry, but boy does this make me angry! They are risking our lives by
making us feel we have to take this stuff....
Print this out and fax it to her or e-mail it to her! Read pgs. 6-8,
they tell of all the warnings and side effects. Now, you can show your
lying doctor that there are way more risks than just hot flashes. All
the docs in the past who wanted me to take it, said the only side
effects were hot flashes too. Liars!!
8(
I don't think ANYONE is given the REAL leaflet, which is supposed to be
a law of the FDA. I would also send her e-mail to the FDA and say, why
do doctors all pressure us to take this dangerous drug and lie about the
side effects of it? And they don't give us the correct leaflet?
If I were you, I would be very pissed too! I would love to get that junk
taken off the market. I'm so sorry you are going through all this, it
seems we all have to...why won't anyone listen to us? Get your records
from her and I hope you find someone good. Ask D about Dr. Cook at
CEC.
Try and have a good weekend....
--
Andrea
At Fri, 5 Oct 2007, Teresa wrote:
>
>Hi everyone. I need some help and advice so bad. I posted last night
>"help doc pushing Lupron." I emailed her last night. Just reminding her
>of my heart history. I haven't been going to her all that long. So
>really she hasn't seen all the bad things that have went wrong with me
>with meds and with my heart. I have Diastolic CHF, pacemaker, 2 open
>heart surgeries, Diastolic Heart Dysfuntion, Rhythm problems, interminet
>Complete Heart block, and I have had a heart ablation. My pain is
>unreal. LLQ!!! I also have so many bowels symptoms. When I saw her
>yesterday I brought up CEC. She had been very nice but now things have
>changed. I am going to try and paste the email she sent me.
>Let me know what you think. I am so mad and upset.
>
>--
>Teresa,
>
>If you read the package insert or PDR for Lupron, the only
>cardiovascular side effect listed is hot flashes. There is no risk of
>DVT, as it decreases your own estrogen level. For Aygestin
>(norethindrone acetate), the only adverse cardiovascular one is possible
>elevation of blood pressure. Although it lists an increased risk of
>blood clots with Aygestin in the adverse reaction segment, much of this
>applies to norethindrone combined with estrogen, as is a common
>preparation for many birth control pills. When norethindrone is used
>without estrogen, most of us feel there is not any increased risk of
>clots, and we are comfortable using it in pts who have risk factors for
>clotting. Norethindrone can cause fluid retention, but it is usually
>minor and not noted by pts. I think your heart looked strong on your
>last ECHO, and this would likely not be an issue for you. I am not sure
>where you are hearing about these other adverse effects from that you
>mention.
>
>To summarize our visit yesterday, you are still having pain on your left
>side. You had a very small area of what looked like endometriosis on
>the back of your left broad ligament, (the supporting tissue of the
>uterine blood vessels). We removed this lesion in it's entirety. The
>pathology report did not show any endometriosis from this area, only
>inflamed tissue, which most likely means there was a small area of endo
>there at one time but it has resorbed. The pathology report did show
>definite endometriosis from you right broad ligament and bladder flap,
>and I excised both of these areas also.
>
>Since you are still hurting on the left side, either:
>1) There is something else going on over there besides endometriosis,
>such as a pelvic floor muscle tension problem OR
>2) You have a deeper lesion somewhere on that left side that is not
>visible laparoscopically.
>
>I still strongly feel that hormonal therapy for endometriosis would be
>helpful to sort this out....if you get no relief of pain from a
>temporary shutting down of your menstrual cycle, it is likely not
>endometriosis - related pain. If you absolutely don't want to do
>hormone Rx, then I would
>recommend a visit to our pelvic Physical therapist to evaluate for
>pelvic floor muscle spasm/dysfunction before you have any other
>surgeries.
>
>This is the best I can tell you for now. IF you would like to pursue
>one of these options, you can call the clinic and let us know if you
>decide to get Lupron or want a PT referral. If you aren't comfortable
>with these recommendations, then it would be best if you saw another
>physician about this.
>
>Sincerely,
>
>The side effects that I mentioned to her that I was concerned about was
>mostley the CHF, PE, arrhythmias, I have read this on line and told by
>one out of 3 of my sisters that are nurses. She is an obgyn nurse.
>
>I am so confused!!!
>
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