ENDO Messages for October, 2007: Re: Help!!!! My doctor is pushing Lupron

Re: Help!!!! My doctor is pushing Lupron

From: andrea (anonymous@obgyn.net)
Thu Oct 4 23:18:23 2007

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Teresa,

Do for yourself what you really feel you need and don't let ANY doctor push you or talk you into anything. They've always pushed Lupron on me too, and I've always refused to take it. It's scary how many side effects there are! It infuriates me that even women with serious existing health problems are pressured to take Lupron, which could make their already fragile conditions even worse.

Did you read Jess's last post? She said her rheumatologist said that her fibromyalgia was caused by Lupron. Finally, a doctor who is willing to admit that that drug DID the damage! Is your doctor who did your lap a specialist? She probably missed a lot of your endo and that is her fault. Everyone on here who has taken Lupron says that the endo pain only goes away temporarily, but it is traded for other, more serious pain and problems. I really wish we could all start some kind of petition to get it taken off the market. That drug devastates lives.

D, who posts on here had a lap with Dr. Cook in August I believe at the CEC and feels that her pain is no longer a problem. It sounds like he did a really great job on her, she had lots of endo and she said he was a great doctor. Unfortunately, there are only a select few doctors out there who are able to really help us with this disease, so we have to be patient and careful when it comes to choosing who we can allow to operate on us, as well as trusting the treatments they recommend.

I feel that most if not all regular OB's have no business doing laps, because they are not trained to know their way around the entire abdominal cavity, just the reproductive system and they miss a lot of areas with endo. They end up doing more harm than good and waste our money. If you can go to the CEC, that would probably be best! I really hope you get the help you need and deserve. You need to go to a doctor who is one of the best, considering you have a heart condition. You can't take chances with that.

I'm sorry you are having to suffer, just know we are all in that boat with you, Teresa. Get your records from that doc and find someone who can really give you hope and on the road to feeling better. I've changed docs so many times, trying to find the right one, so I know how frustrating that is.

Wishing you all the best, Andrea :)

At Thu, 4 Oct 2007, Teresa wrote: >
>I have been on here several times in the last couple of months. I had a
>lap done 8/17/07 and diagnosed with Endo. My doctor found 3 areas and
>removed them. 2 days before my 2 week f/u appt, my started all over
>again. I have had LLQ pain since March.
>
>So since my surgery in August, I have continued to have terrible,
>horrible LLQ pain, bloating, so much gas (all on the left) bowel
>symptoms. In fact, she has told me that I probably still have endo and
>need to start Lupron. Well, she told me this on my 1st f/u appt and
>then today on my 6 week f/u. She was almost insisting that I do Lupron.
>
>I have a complex cardiac history of CHF, Diastolic heart Dysfuntion,
>rhythm problems, pacemaker, 2 open heart surgeries, ablation. I
>explained to her that I didn't want to do Lupron and I was considering
>CEC. Well, that was a huge mistake. I guess she felt intimidated. She
>didn't think that was a good idea. I was wanting my records and she
>said I needed to do Lupron or Progesterone. I have got to do something.
>My pain is so much worse. I get all this gas feeling from nowhere along
>with my pain. My pain is so piercing.
>
>Also does anyone recommend maybe an another specialist in another area.
>I live in NC. I know Atalnta would be the closest but I have 3 sisters
>that are nurses and want to be sure its a well known medical center
>where the surgeries are done at with my complicated heart history. I
>just don't feel comfortable with Lupron. Any advice would be
>appreciated. Thank you so much!! Teresa

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