ENDO Messages for October, 2007: Re: Endo has returned after 1st surgery to Marce

Re: Endo has returned after 1st surgery to Marce

From: andrea (anonymous@obgyn.net)
Mon Oct 1 17:53:58 2007

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In reply to: Marce': "Endo has returned after 1st surgery"

Marce,

First of all,

Do not feel alone! We are all having to deal with the pain and the frustration of this awful disease together. If the only advice your doctor had to help you was to have a baby, they are a friggin idiot. Please find another doctor. I have been to about 12 doctors over the last 20 years for my endo and at times, I thought I would lose my mind. It is very hard to find someone you trust, who offers you reasonable treatments and has a good bedside manner and is understanding. I've been to so many doctors who made me feel hopeless and made me cry - do not let them take away your hope!

If your doctor's remedy for this disease is to have a baby, I doubt that they know what the hell they are doing or talking about, so your endo may not be as bad as they say. Don't let them get you all worked up and scared.

The first thing that ever helped me was getting my hormones checked and balanced. They were all out of whack. I had been begging doctors to check them for years, but they would always refuse. I had a severe hormone imbalance and when I fixed that, many of my horrible endo symptoms went away. I still have 2-3 days of severe pain each month usually now, and am seeing a pelvic pain specialist. I do need to have a lap surgery and maybe my uterus out, but I keep going back and forth with that decision. If you would like to e-mail me, you are very welcome to and perhaps we can try to find you a decent doctor where you live and get on the road to feeling better.

Sincerely, Andrea

At Mon, 1 Oct 2007, Marce' wrote: >
>I have been diagnosed with Endo. I guess I have had it since my 1st
>ever menstal cycle.... explains alot as a teen and young womanb. I was
>operated on in Dec 06 had a growth removed and part of my bowel.... Now
>6 months later it has returned . I am told it is on my bowel,
>bladder... right ovary ... maybe as far as lungs and kidney.... I am
>scared and feelin alone!!! I was told have a baby and things would get
>better... Being single , unmarried... That is NOT an Option!! and I
>was shocked to be even told that!!!??? By reading a few stories here I
>find I am NOt alone.... I am Lost and no Idea which wa to go...another
>surgery Scares me so much.... I have even felt suicidal at times.....
>due to the pain and confusion!!! I just don't know what to do???

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In reply to: Marce': "Endo has returned after 1st surgery"

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