ENDO Messages for October, 2007: Re: Going to see my RE tomorrow

Re: Going to see my RE tomorrow - need advice

From: andrea (anonymous@obgyn.net)
Mon Oct 1 16:23:33 2007

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In reply to: Mary: "Going to see my RE tomorrow - need advice"

Mary,

I thought you wanted to try the bio-identicals? Did you get all of the links I sent you? I really think taking it would help with your fatigue. Did you get copies of your last hormone level tests? I bet they are not in normal range. Your progesterone should be at least a 14. Most women with endo have a deficiency in progesterone and too much estrogen. Do you know if there's a compounding pharmacy near you?

I really do believe that when I hit puberty, it started off as a severe imbalance and the pill just made it worse. My friend's daughter is having severe cramps at age 13 and my friend is going to take my advice and get her levels checked. I will be curious to see if she is starting off with estrogen dominance and if that is the cause of her pain. My friend does not want to just stick her daughter on the pill like all doctors suggest. That's the mistake most of us made and now we have to deal with all of this. I think if my friend gets her daughter's hormones balanced early enough, before any endo can spread, she may be fine and not have to go through all that we've had to.

At Mon, 1 Oct 2007, Mary wrote: >
>I am going to see my RE tomorrow. I have endo bad - 2 surgeries, and in
>the recent one in June, doc removed 6 endometriomas, part of my right
>ovary and tube. I already had part of my left ovary removed due to a
>large endometrioma that ruptured years ago [horrible experience!!.
>
>Question: I do not do well with the synthetic hormones, and I am
>questioning whether or not to have another surgery. I have bad pain,
>nauseau, sinus joy, etc. pretty much all the time. I have had my
>hormones tested a few times. My RE says they are WNL - within normal
>limits, but when I was pregnant with my son I had to take progesterone
>supplements - they told me I had low progesterone. I also have no
>energy at all lately. Again, doc says it is most likely due to the
>endometrioma that my body is fighting [I have 2 new ones less than 1
>month after surgery!]. MY RE is a very good doctor, but he used a laser
>to remove many of the lesions I had along with excision. I have an
>appt. to see an excision specialist next week, but I really like my
>doctor. He had me on Femara, but I was not able to sleep for about 2
>weeks while I was taking this so I stopped
>
>Any advice you can give? What kinds of questions should I ask him? I
>want to make the most of my visit, and not just get pushed out the door
>like I usually do with a useless script for hormones that I wont be able
>to tolerate for very long.
>
>Thanks for the support, and sorry soooo long.
>
>--
>Mary
>

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