Re: Endo,IC, EBV, recently diaganosed with Adenomyosis what do I do now?
From: jenny (anonymous@obgyn.net)
Sun Sep 30 02:11:26 2007
stinks !
why does he say you have adeno? what on the mri tells him that?
have you joined the Endometriosis Association? they have a list of
doctors
there is an endo group in your state, i think
also, there is an ERC group in your area,
they can offer help, solutions, ideas
http://health.groups.yahoo.com/group/EndoDocs/
http://groups.yahoo.com/group/erc
there is a doctor koh in the midwest, and a dr hilgers
napro.com
At Sat, 29 Sep 2007, Yvonne wrote:
>
>I am 28yrs old. I have had problems since I was 11 from my first period
>and pain has progessively gotten worse over the years. I was diagnosed
>with Endo in 2001 and have had many surgeries since because of issues
>with the Endo and Scar tissue. I have been out of work since January
>because pain has been soo excruciating that it has traveled down my legs
>and feet it is as if everything from the waist down has stopped working
>and all I feel is pain. I have also gone through this year Pelvic Floor
>physical therapy but that just seems to aggrivate my pain, and Constant
>BCP has not controlled my cycles at all it continues to last 1-2 weeks
>or more and is extremly heavy. I am soo tired of not being able to live
>my life. I have just started to see ANOTHER Dr. Here in Chgo at Rush
>and after an MRI I just had he said that I have Adenomyosis. Beginging
>half of the year I got nowhere at another hosp. Noone can explain the
>severe pelvic pain, pain in my legs feet, abdomen, vaginal area etc. I
>know many of you all now this too well. i don't know what to do
>anymore. Does anyone here have both Endo and Adenomyosis? I am at my
>wits end between having trouble with this and getting covered my
>Disability.
>
>--
>Yvonne
>
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