Re: To All
From: Caitlin (anonymous@obgyn.net)
Fri Sep 28 09:35:27 2007
Katy-
I absolutely agree with you. I have been on a GnRH Agonist for 6 months
and like you, have been pain free the entire time. And, for the first
time in about 8 years! I too, have recieved criticism about my choice of
treatment. This is a place to share experiences, opinions and ideas.
Thank you for recognizing that.
Caitlin
At Thu, 27 Sep 2007, Ashley wrote:
>
>Hello All,
>
>I am seeking advice. I have been battling Endo for over 5 years now. I
>have had it all Surgery, Lupron, Depo, and birth control (many types). I
>am only 24 and don't plan on having children soon. (By the way that is
>so unfair that my gyno reminds me an unmarried woman to have a baby when
>I so can't right now.)I am currently a Graduate Student. The problem I
>am having is I lost all my health insurance and cannot find a company to
>count endo as a non-preexisting condition. This means that any
>treatments I could have would have to come out of pocket. I just
>started Depo Last year and it seems to be working better than anything I
>have tried before without near as many side effects. But it cost $900 a
>shot. I cannot aford that and so I am terrified at loosing my health. I
>wanted to do the petal study but for some reason they say I don't
>qualify. I hate spending days and days in bed in pain and forced to
>take pain pills that knock me out.The fear of going back to pain is
>daunting. Does anyone have any suggestions?
>
>--
>Ashley * Afraid of suffering again!
>
>At Sun, 26 Aug 2007, Katy wrote:
>>
>>Hi Deirdre
>>
>>I sorry you feel that way but just because my treatment happens to work
>>for me, doesn't mean that it is a mistake.
>>both the website for implanon, and my doctor whom is a specialist in
>>endo both say that I can be back to fully fertile in 3 days, I'm just
>>going on what I have researched and and what the experts have told me.
>>the implant has a hormone called etonogestrel and yes it is a synthetic
>>birth control, but I have had the implant taken out at one stage, for a
>>fair amount of time, and in that time I did not have any heavy or bad
>>periods, my periods were light and pain free.
>>The treatment that I have has worked for me, and it could work for
>>someone else, I feel that you are not seeing the bigger picture, where
>>some treatments may seem radical can work as much as the normal
>>treatments, and I do not appreciate the way you have just disregarded my
>>advice, this is a website for advice and that is all I have given, and
>>like I said earlier it has worked for me and therefore COULD help
>>someone else, and the reason why I think that it's affective is that
>>I've only had needed one surgery in 7 years and that was when I was
>>first diagnosed and now I am no longer on any pills for bc or pain meds
>>due to the implant, which I think can give any sufferer a new lease of
>>life.
>>This is website for help and support, and to explore new ideas, I just
>>sugested a new idea that has worked for myself
>>regards
>>Katy
>>
>>At Fri, 24 Aug 2007, deirdre wrote:
>>>
>>>this is so not the way to go.
>>>
>>>talk about a mistake! be prepared for really bad periods...i hope you
>>>don't have them but many women do
>>>
>>>and there is no way you will have a return to fertility within 3 days
>>>
>>>anything that is birth control is synthetic...that is not progesterone
>>>you're putting in your body, but progestin, which lowers your natural
>>>progesterone
>>>
>>>i wish you luck, but this is not the way to go for other women
>>>
>>>At Fri, 24 Aug 2007, Katy wrote:
>>>>
>>>>Hi Clare as you have only JUST found out then you can hopefully learn
>>>>from our mistakes.
>>>>the treatment all depends on what you want in the future, for example I
>>>>was diagnosed 7 years ago, and my Doc asked do I want children yet, I
>>>>said not yet I'm not ready, as I was only 19, so she basically decided
>>>>to stop all my periods until I was ready, See, without the oestrogen and
>>>>the body thinking that it's pregnant or waiting on the sperm, it
>>>>produces more progesterone, and then add that to the progesterone
>>>>tablets and you have an environment that Endo doesn't like and it
>>>>doesn't work as well as it used too.
>>>>
>>>>For the last 7 years I haven't had any periods, the first 2 years I did
>>>>have some trouble with spotting and a little bit of pain but nothing
>>>>compared to what I used to get, considering that I was on a morphine
>>>>based drug most of the time which used to make me abit sleepy and think
>>>>that I could do anything, but knowing that I couldn't (quite weird)
>>>>Anyway all I'm saying is that if your not going to commit to having
>>>>children yet it would be a good idea to get one of 2 things, the first
>>>>one is what I have and it's called implanon, and it's an implant in the
>>>>arm, it doesn't hurt, it last three years and I haven't had to take ANY
>>>>pills for pain or periods at all and it doesn't have any side effects
>>>>and if you want it taken out early then you can with no risk, the other
>>>>is the coil which lasts 5 years, and does the same thing really.
>>>>I've noticed with this website that alot of women are on certain meds
>>>>and have 6 monthly treatments and then go back to normal periods, which
>>>>brings you in a circle, which means that they are having surgery more
>>>>frequent and more pain meds and more Birth control pills, which can't be
>>>>good for the body, as endo leaves scarring where ever it goes and you
>>>>need to give your body time to heal so if your constantly having a
>>>>period then your not giving your body a chance, so I stopped my periods
>>>>and have been pain free.
>>>>and now I'm ready for children and so I'm going to be taking out my
>>>>implant which by the way doesn't have a year long wait to become
>>>>fertile, it only takes 3 days
>>>>Hope this helps you and good luck
>>>>
>>>>At Fri, 24 Aug 2007, Clare76 wrote:
>>>>>
>>>>>Hello,
>>>>>I was diagnosed with endo in june this year, and am due to see gyne to
>>>>>discuss treatment in 2 weeks, i have been researching some of the
>>>>>options and have found it all to be a bit bewildering, it seems that the
>>>>>treatment can be as bad as the disease!!
>>>>>
>>>>>Period arrived yesterday and am on the pk's again! I feel afraid by the
>>>>>pain sometimes, does anyone else feel that too? I am so worried about
>>>>>being fobbed off by the gyne.
>>>>>
>>>>>Any way Im glad to have have found this site,
>>>>>thanks xx
>
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