Re: To All
From: Ashley (anonymous@obgyn.net)
Thu Sep 27 17:36:26 2007
Hello All,
I am seeking advice. I have been battling Endo for over 5 years now. I
have had it all Surgery, Lupron, Depo, and birth control (many types). I
am only 24 and don't plan on having children soon. (By the way that is
so unfair that my gyno reminds me an unmarried woman to have a baby when
I so can't right now.)I am currently a Graduate Student. The problem I
am having is I lost all my health insurance and cannot find a company to
count endo as a non-preexisting condition. This means that any
treatments I could have would have to come out of pocket. I just
started Depo Last year and it seems to be working better than anything I
have tried before without near as many side effects. But it cost $900 a
shot. I cannot aford that and so I am terrified at loosing my health. I
wanted to do the petal study but for some reason they say I don't
qualify. I hate spending days and days in bed in pain and forced to
take pain pills that knock me out.The fear of going back to pain is
daunting. Does anyone have any suggestions?
--
Ashley * Afraid of suffering again!
At Sun, 26 Aug 2007, Katy wrote:
>
>Hi Deirdre
>
>I sorry you feel that way but just because my treatment happens to work
>for me, doesn't mean that it is a mistake.
>both the website for implanon, and my doctor whom is a specialist in
>endo both say that I can be back to fully fertile in 3 days, I'm just
>going on what I have researched and and what the experts have told me.
>the implant has a hormone called etonogestrel and yes it is a synthetic
>birth control, but I have had the implant taken out at one stage, for a
>fair amount of time, and in that time I did not have any heavy or bad
>periods, my periods were light and pain free.
>The treatment that I have has worked for me, and it could work for
>someone else, I feel that you are not seeing the bigger picture, where
>some treatments may seem radical can work as much as the normal
>treatments, and I do not appreciate the way you have just disregarded my
>advice, this is a website for advice and that is all I have given, and
>like I said earlier it has worked for me and therefore COULD help
>someone else, and the reason why I think that it's affective is that
>I've only had needed one surgery in 7 years and that was when I was
>first diagnosed and now I am no longer on any pills for bc or pain meds
>due to the implant, which I think can give any sufferer a new lease of
>life.
>This is website for help and support, and to explore new ideas, I just
>sugested a new idea that has worked for myself
>regards
>Katy
>
>At Fri, 24 Aug 2007, deirdre wrote:
>>
>>this is so not the way to go.
>>
>>talk about a mistake! be prepared for really bad periods...i hope you
>>don't have them but many women do
>>
>>and there is no way you will have a return to fertility within 3 days
>>
>>anything that is birth control is synthetic...that is not progesterone
>>you're putting in your body, but progestin, which lowers your natural
>>progesterone
>>
>>i wish you luck, but this is not the way to go for other women
>>
>>At Fri, 24 Aug 2007, Katy wrote:
>>>
>>>Hi Clare as you have only JUST found out then you can hopefully learn
>>>from our mistakes.
>>>the treatment all depends on what you want in the future, for example I
>>>was diagnosed 7 years ago, and my Doc asked do I want children yet, I
>>>said not yet I'm not ready, as I was only 19, so she basically decided
>>>to stop all my periods until I was ready, See, without the oestrogen and
>>>the body thinking that it's pregnant or waiting on the sperm, it
>>>produces more progesterone, and then add that to the progesterone
>>>tablets and you have an environment that Endo doesn't like and it
>>>doesn't work as well as it used too.
>>>
>>>For the last 7 years I haven't had any periods, the first 2 years I did
>>>have some trouble with spotting and a little bit of pain but nothing
>>>compared to what I used to get, considering that I was on a morphine
>>>based drug most of the time which used to make me abit sleepy and think
>>>that I could do anything, but knowing that I couldn't (quite weird)
>>>Anyway all I'm saying is that if your not going to commit to having
>>>children yet it would be a good idea to get one of 2 things, the first
>>>one is what I have and it's called implanon, and it's an implant in the
>>>arm, it doesn't hurt, it last three years and I haven't had to take ANY
>>>pills for pain or periods at all and it doesn't have any side effects
>>>and if you want it taken out early then you can with no risk, the other
>>>is the coil which lasts 5 years, and does the same thing really.
>>>I've noticed with this website that alot of women are on certain meds
>>>and have 6 monthly treatments and then go back to normal periods, which
>>>brings you in a circle, which means that they are having surgery more
>>>frequent and more pain meds and more Birth control pills, which can't be
>>>good for the body, as endo leaves scarring where ever it goes and you
>>>need to give your body time to heal so if your constantly having a
>>>period then your not giving your body a chance, so I stopped my periods
>>>and have been pain free.
>>>and now I'm ready for children and so I'm going to be taking out my
>>>implant which by the way doesn't have a year long wait to become
>>>fertile, it only takes 3 days
>>>Hope this helps you and good luck
>>>
>>>At Fri, 24 Aug 2007, Clare76 wrote:
>>>>
>>>>Hello,
>>>>I was diagnosed with endo in june this year, and am due to see gyne to
>>>>discuss treatment in 2 weeks, i have been researching some of the
>>>>options and have found it all to be a bit bewildering, it seems that the
>>>>treatment can be as bad as the disease!!
>>>>
>>>>Period arrived yesterday and am on the pk's again! I feel afraid by the
>>>>pain sometimes, does anyone else feel that too? I am so worried about
>>>>being fobbed off by the gyne.
>>>>
>>>>Any way Im glad to have have found this site,
>>>>thanks xx
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