Re: Lupron - are there doctors against this drug yet to Dawn & CP
From: andrea (anonymous@obgyn.net)
Fri Sep 21 22:49:13 2007
Hi there,
Just saw your posts that maybe you are interested in trying the
bio-identical thing in Canada.
Hope this helps! I am so sorry that you have been hurt by Lupron. I
agree, something must be done about this drug. Were you given the
10-page warning leaflet "required" by the FDA?
I think girls who start developing puberty at an unusually young age
(like I did) or have severe pain to start off with periods should have
their hormones checked & maybe balanced, instead of doctors giving the
"one shoe fits all", the BC pill.
I think developing breasts or having periods at 7 or 8 years old is an
indication of having too much estrogen in the body, then we are given
EVEN MORE with the Pill and to this day, I don't know why doctors have
not tested that to be the cause of endometriosis. Doesn't that sound
like an obvious cause or educated guess to you? It's frustrating........
Take care & hope you feel better soon,
Andrea
Here is a list of doctors there who test hormones and prescribe
Bio-identical hormones in Canada:
Dr. Shehla Ebrahim
104-2609 Westview Drive,
North Vancouver, BC V7N-4M2
Canada
Dr. Alvin Pettle
3100 Bathurst St., Suite 217
Toronto, Ontario
Canada
416-633-4101
Dr. Gidon Frame, M.D.
2482 West 41ST Ave.
Vancouver, B.C. V6M 2A7
Canada
604-431-6585
Dr. Edward Ragan
Clinical Director, Metalife Biomedical Centre
Suite 204 - 1305 Richmond Road
Ottawa, Ontario K1B 7Y4
Canada
613-721-3669
Dr. Clare Westmacott, M.D.
346 Lady Macdonald Crescent
Canmore, Alberta T1W 1H6
Canada
403-678-2737
Dr. Weidong Yu, TCMD. R.Ac.
Wellspring Clinic for Holistic Medicine
916 West King Edward Avenue
Vancouver, BC V5Z 2E2
604-737-7876
At Fri, 21 Sep 2007, CP wrote:
>
>Hey Dawn,
>
>I too am Canadian (but living in California now). I would justsearch
>online for Bio Identical Doctors. It pisses me off that they are
>pushing this in Canada, I actually have considered just going back for
>the socialized medicine benefits.....between preium and co pays and meds
>I spend about $550-$600 USD per month!
>
>Just today I flew up my hands at my docs. I KNOW I have Endo or really
>bad scar tissue spreading, but because 2 yrs ago they tested me for Endo
>and didn;t have it they don;t buy that it could have grown within 2+
>yrs!
>They want me to take the add back now as well since the pain isn;t going
>away. I am going to research it as you too may have seen the posts
>about it being animal urine. I don't buy that it would take away all
>the side effects.
>
>Have you had a surgery yet?
>
>Cherise....from Mississauga, Ont. Go Jays!
>
>At Thu, 20 Sep 2007, Dawn wrote:
>>
>>I can appreciate what you're going through, totally. I'm not sure about
>>finding a bio-identical doctor - I live in Canada. I do have a
>>naturopath and have spent thousands trying to gain some hope of getting
>>my health back.
>>
>>Currently, I take morphine for the absolutely crippling bone pain in my
>>legs, spine, and every other bone in my body but it doesn't cut it. I'm
>>waiting for a pain specialist who can work with me so that I can at
>>least live life. I feel that lupron has cost my job, my everyday
>>enjoyment and precious time with my daughter and husband.
>>
>>Now I am just furious that I was pressured, convinced and assured that
>>if I took the add-back therapy there would be no side effects if I tried
>>it a second time. I can't believe that in this day and age, that women
>>still continue to be guinea pigs for the medical profession and no one
>>will be accountable for the damage that we suffer when things go wrong.
>>I had felt lucky to have such a good ob/gyn who did my surgery and
>>seemed to genuinely care that I have the best possible outcome but now
>>that I have problems, he just tells me that he has never had anyone in
>>his practice have problems with Lupron.
>>
>>To add insult to injury, the last time I was at his office in tears, my
>>husband overheard a woman say that since she has been on Lupron, she has
>>never felt better. So the problem is that the awful side effects seem
>>to happen to a select few and not the majority, therefore making it more
>>difficult to make anyone listen to how truly awful it can be.
>>
>>I wish anyone who has endo luck in navigating the health system...it
>>seems like it takes forever to get a diagnosis and when you finally do,
>>there aren't a lot of options out there. But it continues to make me so
>>angry that a drug that has the potential to wipe out what health you
>>thought you had, comes with no warnings and no solutions when the worst
>>happens.....
>>
>>At Thu, 20 Sep 2007, CP wrote:
>>>
>>>Hi Dawn,
>>>
>>>I know your pain. Within 3 years I have been examined by 9 Kaiser
>>>OBGYN's and 1 Dr. of natural Bio-Identical treatment (natural
>>>progesterone mentioned in a reply to you). Only the natural doc gave me
>>>some relief (between bio-id. thyroid (armour, pig or cow thyroid),
>>>adrenal boosters,nat. progesterone, proper diet and other vitamins from
>>>B's to Fish oils.
>>>
>>>Ok this is how bad Kaiser is(and many other health care systems).
>>>Summer 2003 I went to the ER twice for long bleeding with bad cramps and
>>>being very very tired. He did an exam, peliv and wand and said, take
>>>the B/C pill and it is all due to stress. One year later 2 GYN's and an
>>>ultrasound found I had a small grapefruit size dermoid INSIDE ea. ovary.
>>>Since that surgery (removal of dermoids most of my ovaries kept) I have
>>>NEVER been the same (they did the kind where they go in like a
>>>hysterectomy). From that period post surgery up until now they lasted
>>>anywhere from 1.5-5 wks and when I am bleeding I am in the most pain,
>>>had to leave my great job and am bed ridden for most of the day when
>>>bleeding. Since then they have been pushing Depot Lupron BUT I have
>>>refused because of the side effects that hundreds of women declare, my
>>>biggest fear irreversible bone loss...I am in my late 20's now. Well I
>>>caved (after 5.5wks out of 6.5wks of bleeding and 3 ER visits, since the
>>>OBGYN dept. couldn't get me in for 1.5-2wks even though it was urgent)
>>>took it Aug. 29th and within hours got shooting pains down my leg bones
>>>and joints that made me cry out of pain, it's now in my fingers, wrists,
>>>forearm, and neck/shoulder area as well. I told my GYN who gave it to
>>>me (number #9 on the list) and he too promised I would not get that side
>>>effect since I was so young - WRONG! Obviously most Docs do not take the
>>>time to come to forums like these to read about the women who have been
>>>horrifically changed for the worse perhaps to please a pharm. co. like
>>>Tap or to please their shareholders, bosses or just going by their
>>>western brainwashing education (most docs only get 3-5 hrs in
>>>college/uni for nutrition!)!
>>>
>>>The best route you can go in my opinion/exp., if you can afford it, is
>>>to go to a Bio-Identical Hormone Doctor...the one in Santa Cruz I see is
>>>http://www.draudrafoster.com she has helped my mom and I we line in the SFO bay
>>>area. There are not many Bio-Identical docs out there but go that route
>>>if you can. This drug SHOULD never have been approved and I am at the
>>>point (even with only 3 weeks of it in me) to take on a class action
>>>suit. I am in crutches, having to take percocet for the pain (that
>>>isn't even quite cutting it) and have been to the ER twice within almost
>>>a week for the bone/joint pain. I am begging for a lap. like I have
>>>been for a year since I know I have endo or serious adhesions from the
>>>aug. surgery but they just keep pushing me around. DO NOT let them do
>>>that to you, cuz they will, docs only have X amount of spots per quarter
>>>to fill for surgery or special treatment and you need to work your butt
>>>off to get one. google depot lupron lawsuit and you will see that in
>>>the past docs were given rebates for using the drugs from Tap. It looks
>>>like no Side Effects law suits have been filed or big enough to hit the
>>>internet, I personally am looking into it and against Kaiser as they
>>>have stolen my life/health over the last 3 years in my prime 20's!
>>>
>>>--
>>>CP
>>>
>>>At Thu, 20 Sep 2007, anonymous wrote:
>>>>
>>>>Premarin is terrible...it's pregnant mare's urin (pre-mar-in) - search
>>>>on it! search drerika.com also
>>>>
>>>>have you ever looked into natural progesterone? most women have problems
>>>>with stupid lupron
>>>>
>>>>At Wed, 19 Sep 2007, mdustin wrote:
>>>>>
>>>>>Dawn,
>>>>>My doctor was actually suprised at my reactions to Lupron. He said that
>>>>>I was the only woman in his practice that had the reactions that I did
>>>>>that took the treatment. After finishing my 3 months, I told him that I
>>>>>would never take Lupron again. And he said...I don't blame you. Now,
>>>>>I'm having problems again and my doctor has told me that he will not
>>>>>prescribe Lupron for me again. It's a little too little too late about
>>>>>that now. I still have many health problems from the Lupron and my
>>>>>add-back therapy (Premerin). I hope that I will feel better soon. And
>>>>>I hope that more people will come forward and make the medical industry
>>>>>face the possibly devistating reactions that Lupron can give. It may be
>>>>>one of the only treatments out there for Endo right now...but that is
>>>>>something that needs to be fixed! Awareness must be spread and we should
>>>>>all do our parts to work towards a cure....atleast a better
>>>>>treatment...one that is made available to women all over the world...not
>>>>>just a select few. This disease has turned my life upside down, and I
>>>>>really feel that something needs to be done...not just for me...for all
>>>>>the women of the world. And maybe someday, for my daughter (as they
>>>>>think it may be a genetic disease).
>>>>>
>>>>>At Wed, 19 Sep 2007, dawnriser wrote:
>>>>>>
>>>>>>I'm wondering if any of you who were convinced to try Lupron and
>>>>>>suffered the horrible side effects either for the short or long term,
>>>>>>have found any doctor who will attribute the problems you've had with
>>>>>>Lupron?
>>>>>>
>>>>>>It seems to me that if 7 million women suffer from endo in the U.S. and
>>>>>>a majority of those are going to be told to try Lupron at some point,
>>>>>>then one day soon, it has to become clear that the drug is not a miracle
>>>>>>cure-all but a potentially dangerous one that should not be used so
>>>>>>lightly.
>>>>>>
>>>>>>I, unfortunately, was convinced to take it not once but two times and
>>>>>>now I fear that I will never get my health back. I know how I felt
>>>>>>before this drug and I know how I felt after - are there any doctors out
>>>>>>there that are starting to agree that Lupron can cause lasting problems?
>>>>>>
>>>>>>If you've had lasting problems due to lupron, have you had any support
>>>>>>from the medical system in believing your issues or are you still
>>>>>>begging for someone to listen?
>>>>>>
>>>>>>I'm curious to know if our experiences have made a difference or not.
>>>>>>
>>>>>>THanks to all,
>>>>>>Be well,
>>>>>>Dawn
>>>
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