Re: I finally saw the rheumatologist! LEG/JOINT PAIN DUE TO LUPRON
From: CP (anonymous@obgyn.net)
Thu Sep 20 01:23:56 2007
Hey Erica,
I didn't know you are 27 as well! (you wrote me about my joint pain from
lupron and also had big dermoids). Jess you sound pretty young as well!
Were both of you told by your GYN that you would NOT get the whole bone
loss side effect cuz you were too young? I know I did! Any of you in the
bay area or use Kaiser? EVERY Kaiser doc I have seen about this (so 7
out of 9, the first two were just taking care of the dermoids) have
majorly PUSHED Lupron as the last resort and left it as, well these
possible sede effects are better then being bed ridden 2+ wks a
month.....well no they are not since I have to use crutches or hobble
around like an idiot!
I do have to push diet here, calcium rich FOODS and yeah cuttin gdown on
alcohol does help since alcohol greatly hinders bone growth cells, and
yeah Vit. D I gotta agree with Erica and also B,C's pretty much them
all, omega 3's, fish oils are really and COLON cleansing is super
important to rid of the toxins from all the meds (and lupron) I am on
the http://www.drnatura.com cleanse and it is going well....also a bio based
toxin release system where you put your legs in water and it sucks the
toxins out (I had lots of orange and green, orange joint and green
liver) toxins come out. If you are in the bay area I can tell ya where
to go for that!
You two use Kaiser or who do you have?
Cherise 9(CP)
At Tue, 11 Sep 2007, Erica wrote:
>
>Hi Jess,
>
>I too have been suffering from joint pain primarily in my knees but also
>in my wrists since using Lupron in November and December of 2006. I've
>had acupuncture which I think slightly improved my symptoms although it
>can be pricey at $60 a visit for 10 visits.
>What I recommend to you that my GYN and acupuncturist recommended is
>getting Glucosamine pills from a store (Walmart I've found to be
>cheapest and from all the brands I've tried Cosamin DS works best; I
>tried a brand at Costco and it wasn't as good). For the first month
>take 2-3 a day then taper to only 1 a day. I saw results after 1-2
>months of takign them. Iknow that seems long but hey it improved my
>pain some (not all but some). I plan on taking it everyday and notice a
>big differnce if I don't take it. My acupuncturist says he recommends
>all his patients take Glucosamine b/c its a natural product and really
>has no side effects. I get so angry when I think about the extra damage
>this hidious drug has done to my body-I'm only 27 and feel like an old
>lady sometimes.
>
>Try the Glucosamine and you may see improvements! But stick with
>it...Erica L
>At Mon, 10 Sep 2007, Jess wrote:
>>
>>What a disappointment this was. I finally got a referral after
>>switching insurances. My new GP was quite certain this new Dr. the
>>rheumatologist(sp?) would be able to find the source of my leg
>>pain(WHICH STARTED TWO WEEKS AFTER MY FIRST ROUND OF LUPRON BACK IN
>>2004, AND IS STILL THERE AND NOT GETTING ANY BETTER)and they would be
>>better suited to help me with pain management. I went in to see the new
>>DR. she did a physical, half ass family history(auto-immune diseases
>>run in my family. All the women have one or more)and then wanted to
>>interrogate me on my previous drug use.
>>
>>I told her I did not do drug nor did I ever and even now what I'm legal
>>to drink I don't because it makes my legs worse. She asked me three or
>>four times after that if I had done any drugs and pretty much accused me
>>of at least smoking weed, She said "you never used drugs? Come on not
>>even marijuana?"
>>I said no and then she asked what I used for pain when my legs got
>>really bad. I told her they were always really bad but when It got to
>>the point I could no longer function my previous GP(before my insurance
>>switched) would prescribe vicodin or percodan.
>>
>>She then told me those were not good to take and I should continue with
>>the ADVIL and to start taking Vitamin D and follow up in a month. I
>>feel so discouraged. I started taking the Vitamin D but no change yet.
>>I just thought I would share my experience because I know many other
>>women are suffering the same side effect from Lupron
>>If any one out there has any suggestions I'd fell blessed if they shared
>>them. Thank you all for the support
>>Jessica
>>jessicarozzez@hotmail.com
>
>--
>Erica L.
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)