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Re: Anticardiolipin and Heprin

From: Shanille (anonymous@obgyn.net)
Wed Sep 19 18:33:29 2007


At Wed, 13 Aug 2003, Alexandra wrote: >
>At Mon, 11 Aug 2003, Sunny wrote:
>>
>>At Tue, 17 Jun 2003, Rhena wrote:
>>>
>>>I am pregnant for the fifth time, had four miscrgs( on in the second
>>>tri.). Fourth pregnacy doctor prscb. Heprin.in 8th week of preg., Baby
>>>was born okay. My concern is that I dont have medical insurance and I
>>>want to know if there is a chance that I may develope a blood clot. What
>>>are the symtoms of DVT.
>>
>>Rhena,
>>
>>My condolences for your losses and the difficulties that you have faced.
>>So happy that heprin worked and you finally have a healthy child. I
>>also have anticardiolipid and lupus anticoagulent. I was diagnoised
>>with this after a stroke at age 28. Two months after my stroke, I had a
>>severe DVT and blood clot in my leg. The clot was in my entire upper
>>thigh. You had asked about DVT symptoms. I felt an uncomfortable
>>pressure (not really painful) in the crease of my upper thigh for a few
>>days. Then a few days later, my calf quickly swelled up spontaneously.
>>(Due to the clots,my blood couldn't be pumped from my leg and it settled
>>in my calf. )I had a hard time putting pressure on that leg when I
>>tried to walk. I rushed to the hospital and they did an ultrasound on
>>my entire leg and diagnoised the clots in my veins. They then
>>immediately installed a "green field filter" to prevent loosened blood
>>clots from reaching my heart/lungs. For a few weeks, it was agony to
>>walk on my leg and to even stand for a minute. I have never felt such
>>pain. I am now on coumadin daily, which has dissolved the clots and I'm
>>doing great. If I want to get pregnant, I will have to go on herpin as
>>well. So, heprin or coumadin is essential to prevent blood clots. I'll
>>have to take either medication for the rest of my life to prevent
>>another stroke or clot. Exercise and drinking water is also important.
>>
>>Please let me know how you are doing. Hope your doctor put you on daily
>>medication to prevent DVT or clots. If not, then at least take one
>>aspirin a day, since it's a blood thinner. But, I recall my doctors
>>saying that aspirin wouldn't be effective for me since I have those 2
>>blood disorders, so I'm on coumadin. Get a second opinion if you're not
>>on either herpin or coumadin!
>
>this is a nother new thing for me. I also was diagnosed with
>anticardiolipin antibody. My left hand is always very sowllen. I was
>told that's not lupus even thought I have the clots and the antibody.
>I'm taking aspirine twice a day and is helping so far but still my hand
>is swollen. I"m depressed about that. I'm so affraid to have the nasty
>lupus. I'll go crazy after I feel such a relieve when my endo pain stop
>for the past 3 or 4 months now I have this. this is a situation to be
>frustrated. good luck!

Hi My name is Shanille. I have gone through frequest miscarrages also as a result of the anticardiolipin syndrome. I have had 3 misscarages and had twins prematurely at 22 weeks. I insisted that doctors perform tests to figure out why I kept having so many losses. they informed me that I had to have a total of 3 miscarrages for them to do tests and the twin pregnancy didnt count as a misscaraige. I got preg after the twins about 2 months later and loss another twin preganancy. I was told tht I could finally have the tests done and they found the disordr i my blood. Its a shame that you have to loose so many babies for doctors to take notice. I am now trying to become pregnant again and am a lttle worried about the side affects of heprin on the baby if I do. I also wasnt prescribed anyting to take it the meantime. Should I be taking anything now? if anyone knows please let me know I would apprecciate it.




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