Re: accepting pain and improper treatment to Maggie / right side pain
From: anonymous (anonymous@obgyn.net)
Tue Sep 18 21:47:47 2007
to the woman who has right side pain, i wonder if you have endo on yur
appendix? a lot of women do
please, don't waste your time with lupron doctors!
have you seen this?
http://health.groups.yahoo.com/group/EndoDocs/
At Tue, 18 Sep 2007, andrea wrote:
>
>Hi Maggie,
>
>I'm so glad your husband is ok with you finally seeing another doctor!!
>:) That must be a huge relief!!! I am going to give you that like on
>alternative med docs again, because you could at least see one of them
>just to get your hormones tested, and get on progesterone if you choose.
>You could probably get in to see one of them sooner too. I don't think
>they are specialists, but getting your levels checked would be a great
>start for you and give you some answers about why you are having certain
>symptoms. Hope all goes well! Go to the bottom of this page, and click
>on the first letter of your state and it will give you a list of docs
>who test hormones.
>
>http://www.altmednetwork.net/whealth/doctors.html
>
>At Tue, 18 Sep 2007, mdustin wrote:
>>
>>It really is rediculous isn't it? To be diagnosed with having Endo...and
>>then treated by that same doctor like you're crazy?!?! And for many of
>>us, we are stuck with going to doctor after doctor and not having any
>>better treatments. I called around yesterday to a huge list of doctors
>>in and out of my area...anything within driving distance for me. And I
>>finally called one doctor whom I talked with his nurse for about 25
>>minutes. He is supposedly the best Endo doctor in my "area", but is not
>>a specialist. He uses all of the same treatments that my current doctor
>>uses, which have not worked. And after expressing fear about that, the
>>nurse said, well, our doctor knows Endo specialists all over the country
>>and if there are treatments (new) that are known, he may try them on you
>>even though he doesn't normally try them on his other patients, due to
>>the other treatments failing me. Meaning, he uses the Lap to diagnose
>>and remove endo and he uses Lupron and BC pills.
>>
>>After telling the nurse my age and my situation, she almost sounded
>>giddy about my becoming a patient. Like, I'm the only one who doesn't
>>react "normally" to these treatments....which I know is not true from
>>reading other posts on here. I keep battling with myself...is it worth
>>going to this doctor and just possibly recieving the same treatments
>>that I recieve right now? PLus, I have to wait untill atleast December
>>to be seen...waiting list. Or should I just 'deal with it', like my
>>current doctor suggests. I know...I know that I do not have IBS (which
>>my current doc thinks is the cause of all of my current pain). My pain
>>is on my right side...in my pelvis, almost right between my leg and low
>>pelvis and radiates down my leg. I don't think that's IBS...I've had
>>that pain for over 3 years now. And I'm expected to just 'deal with
>>it'.
>>
>>At Mon, 17 Sep 2007, anonymous wrote:
>>>
>>>seems to me that a big part of this disease is accepting pain and
>>>treatment that is not the best. Endo causes so much pain and discomfort
>>>that most doctors do not understand. Sadly, we learn to "put up with
>>>it" and "suck it up" for lack of a better phrase. This leads to
>>>acceptance of pain and discomfort that is not acceptable. We are also
>>>treated by others in a manner that is unacceptable. I feel like a big
>>>part of overcoming endo is learning how to stand up for yourself and be
>>>treated properly - with respect and dignity. I am re-learning that the
>>>way to live life is without pain, and with respect and caring from
>>>others. Anything else is unacceptable, and should not be taken.
>>>
>>>Good luck to all of you. Keep pushing for answers. Never give up.
>>>Trust your instincts, you know your body better than anyone. Don't let
>>>anyone treat you like it is "in your head" and you are a "head case".
>>>You are not. This is real. Don't forget it!
>>>
>>>Wishng you all pain free and happy days.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)