Re: accepting pain and improper treatment to Maggie
From: andrea (anonymous@obgyn.net)
Tue Sep 18 19:55:11 2007
Hi Maggie,
I'm so glad your husband is ok with you finally seeing another doctor!!
:) That must be a huge relief!!! I am going to give you that like on
alternative med docs again, because you could at least see one of them
just to get your hormones tested, and get on progesterone if you choose.
You could probably get in to see one of them sooner too. I don't think
they are specialists, but getting your levels checked would be a great
start for you and give you some answers about why you are having certain
symptoms. Hope all goes well! Go to the bottom of this page, and click
on the first letter of your state and it will give you a list of docs
who test hormones.
http://www.altmednetwork.net/whealth/doctors.html
At Tue, 18 Sep 2007, mdustin wrote:
>
>It really is rediculous isn't it? To be diagnosed with having Endo...and
>then treated by that same doctor like you're crazy?!?! And for many of
>us, we are stuck with going to doctor after doctor and not having any
>better treatments. I called around yesterday to a huge list of doctors
>in and out of my area...anything within driving distance for me. And I
>finally called one doctor whom I talked with his nurse for about 25
>minutes. He is supposedly the best Endo doctor in my "area", but is not
>a specialist. He uses all of the same treatments that my current doctor
>uses, which have not worked. And after expressing fear about that, the
>nurse said, well, our doctor knows Endo specialists all over the country
>and if there are treatments (new) that are known, he may try them on you
>even though he doesn't normally try them on his other patients, due to
>the other treatments failing me. Meaning, he uses the Lap to diagnose
>and remove endo and he uses Lupron and BC pills.
>
>After telling the nurse my age and my situation, she almost sounded
>giddy about my becoming a patient. Like, I'm the only one who doesn't
>react "normally" to these treatments....which I know is not true from
>reading other posts on here. I keep battling with myself...is it worth
>going to this doctor and just possibly recieving the same treatments
>that I recieve right now? PLus, I have to wait untill atleast December
>to be seen...waiting list. Or should I just 'deal with it', like my
>current doctor suggests. I know...I know that I do not have IBS (which
>my current doc thinks is the cause of all of my current pain). My pain
>is on my right side...in my pelvis, almost right between my leg and low
>pelvis and radiates down my leg. I don't think that's IBS...I've had
>that pain for over 3 years now. And I'm expected to just 'deal with
>it'.
>
>At Mon, 17 Sep 2007, anonymous wrote:
>>
>>seems to me that a big part of this disease is accepting pain and
>>treatment that is not the best. Endo causes so much pain and discomfort
>>that most doctors do not understand. Sadly, we learn to "put up with
>>it" and "suck it up" for lack of a better phrase. This leads to
>>acceptance of pain and discomfort that is not acceptable. We are also
>>treated by others in a manner that is unacceptable. I feel like a big
>>part of overcoming endo is learning how to stand up for yourself and be
>>treated properly - with respect and dignity. I am re-learning that the
>>way to live life is without pain, and with respect and caring from
>>others. Anything else is unacceptable, and should not be taken.
>>
>>Good luck to all of you. Keep pushing for answers. Never give up.
>>Trust your instincts, you know your body better than anyone. Don't let
>>anyone treat you like it is "in your head" and you are a "head case".
>>You are not. This is real. Don't forget it!
>>
>>Wishng you all pain free and happy days.
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