ENDO Messages for September, 2007: Re: accepting pain and improper treatment

Re: accepting pain and improper treatment

From: mdustin (anonymous@obgyn.net)
Tue Sep 18 08:57:12 2007

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It really is rediculous isn't it? To be diagnosed with having Endo...and then treated by that same doctor like you're crazy?!?! And for many of us, we are stuck with going to doctor after doctor and not having any better treatments. I called around yesterday to a huge list of doctors in and out of my area...anything within driving distance for me. And I finally called one doctor whom I talked with his nurse for about 25 minutes. He is supposedly the best Endo doctor in my "area", but is not a specialist. He uses all of the same treatments that my current doctor uses, which have not worked. And after expressing fear about that, the nurse said, well, our doctor knows Endo specialists all over the country and if there are treatments (new) that are known, he may try them on you even though he doesn't normally try them on his other patients, due to the other treatments failing me. Meaning, he uses the Lap to diagnose and remove endo and he uses Lupron and BC pills.

After telling the nurse my age and my situation, she almost sounded giddy about my becoming a patient. Like, I'm the only one who doesn't react "normally" to these treatments....which I know is not true from reading other posts on here. I keep battling with myself...is it worth going to this doctor and just possibly recieving the same treatments that I recieve right now? PLus, I have to wait untill atleast December to be seen...waiting list. Or should I just 'deal with it', like my current doctor suggests. I know...I know that I do not have IBS (which my current doc thinks is the cause of all of my current pain). My pain is on my right side...in my pelvis, almost right between my leg and low pelvis and radiates down my leg. I don't think that's IBS...I've had that pain for over 3 years now. And I'm expected to just 'deal with it'.

At Mon, 17 Sep 2007, anonymous wrote: >
>seems to me that a big part of this disease is accepting pain and
>treatment that is not the best. Endo causes so much pain and discomfort
>that most doctors do not understand. Sadly, we learn to "put up with
>it" and "suck it up" for lack of a better phrase. This leads to
>acceptance of pain and discomfort that is not acceptable. We are also
>treated by others in a manner that is unacceptable. I feel like a big
>part of overcoming endo is learning how to stand up for yourself and be
>treated properly - with respect and dignity. I am re-learning that the
>way to live life is without pain, and with respect and caring from
>others. Anything else is unacceptable, and should not be taken.
>
>Good luck to all of you. Keep pushing for answers. Never give up.
>Trust your instincts, you know your body better than anyone. Don't let
>anyone treat you like it is "in your head" and you are a "head case".
>You are not. This is real. Don't forget it!
>
>Wishng you all pain free and happy days.

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